16 May U R the boss U matter: G'day my... - My MSAA Community

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16 May U R the boss U matter

RoyceNewton profile image
7 Replies

G'day my RRms (Relapsing-Remitting ms) Sisters and brothers. Do YOU care or have YOU given up? Our disease is chronic and incurable. Seriously it is, for 20+ years I have looked around, read stuff, and listened to all sorts of ms talks and I yet to am yet to find a repeatable cured ms person, anywhere on this planet, NOT ONE. This I believe is no reason to give up, pull the blanket over my head and cry in the dark. NO, I am better than that I deserve more, AND SO DO YOU. I matter, YOU matter, until the day my heart stops I matter and so do YOU.

Am I saying this in a way that makes sense to YOU, do YOU have the feeling, does what I say make sense? There is no need to be an expert, a rocket scientist. Start to learn about your illness. What does a Magnetic Resonance Image (MRI) look like, what are these white spots? What do they mean? To YOU, to your ms? Ask questions, LEARN, It is a lot at first, but if YOU ask questions, remember a little then soon enough YOu will understand what is going on. YOU will remember, that yes, YOU do matter and keep acting like it.

Do not let anybody brush YOU aside and say it is ms why bother? Today there is a lot that can be done. Sometimes even Neurologists (Neuros) can be lazy, advocate for yourself and live your best life.

Royce

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RoyceNewton
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7 Replies
JSSimp profile image
JSSimp

Love it🙏🏾

Xvettech profile image
Xvettech

truth! 🙏

Xvettech profile image
Xvettech

thank you for your words! 🙏

EddaCalderon profile image
EddaCalderon

Words of Wisdom that are appreciated🙏🏽

Tazmanian profile image
Tazmanian

Thank you

Sezlatham profile image
Sezlatham

brilliantly said Royce, the timing of your post is also perfect it’s exactly what I needed in this moment in time as I am suffering more than I have in 21 years of this chaotic world of MS . We do live in another world to others and have to fight to be heard, seen , treated with the respect of a person who was once not as progressive as she now is. Thank you so much for your inspiring words. Midnight is another day and I plan on facing it with renewed and vigorous fight.

pamgarner profile image
pamgarner

sometimes, it is just tiring😃laugh or you will cry

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