26 FEB 2023 ONLY FOR YOU: G ood Sunday... - My MSAA Community

My MSAA Community

9,018 members20,706 posts

26 FEB 2023 ONLY FOR YOU

RoyceNewton profile image
6 Replies

G ood Sunday afternoon. My Dearest Relapsing-Remitting ms(RRms) family I am sorry the message is not for YOU. This is for her, or maybe him, I am not sure which, but it is for YOU.

I have said this over 700+ posts, but I understand if YOU have not read them all, I am a little repetitive at times.

It is OKAY, seriously it will be okay. YOU are going to be okay. This is a lifelong, long-term, sadly incurable illness. There are treatments, yes some involve needles, and none as yet will make this illness go away forever. I know YOU want this, but I am so sorry YOU can not have it, maybe one day but not today.

Cry, it is okay, we mostly all do, but RRms is nobody's fault. Especially not yours, it is just a part of the human condition. There are steps that YOU can take that may help. Look through those 700+ posts. The advice YOU need is in there, if YOU do not see it, ASK.

Be careful, be smart. Be careful with your money. YOU will be okay, good luck this is a long journey that we take and you are at the beginning. I have been on mine 20+ years, and the wife has been on hers for23+ years. We are all different, my answers are not perfect for YOU. Be thoughtful and find your own answers.

I wish YOU always the best , and good luck and in 20 years YOU give this advice to somebody who is a little lost.

Be well be happy and be strong.

Royce

Written by
RoyceNewton profile image
RoyceNewton
To view profiles and participate in discussions please or .
6 Replies
kwhompus profile image
kwhompus

Must you constantly remind us of all the negative aspects of MS? WE are well aware of what is happening to our bodies and our minds. And yes ,YOU are repetative in a annoying , negative, reminding way! Please find a positive thing to say without telling us how we should feel.You are not the know all, end all in MS knowledge.

goatgal profile image
goatgal in reply to kwhompus

You needn't read a post when it doesn't apply to you. It is also possible to disagree without becoming disagreeable. I'm sorry you were having a grouchy day and hope you are feeling cheerier today.

kwhompus profile image
kwhompus in reply to goatgal

I wasn't " grouchy " until I read his post and was reminded of how unpleasant things could be.

RoyceNewton profile image
RoyceNewton in reply to kwhompus

thank you for your constructive input. I feel positivity is in the eye of the beholder, something not for me to push.

Tazmanian profile image
Tazmanian

🙂 Smile and have a good day! 🙂

twooldcrows profile image
twooldcrows

yes we are all going on this journey..

You may also like...

11 Feb 2023 The search is on

G'day my Relapsing Remitting ms {RRms} family, I hope all are well and your sleep last night was...

2 Feb 2023 Not Doctor

with YOU. Perhaps they are trying their best as well. YOU are loved and cared about. Royce,...

24 Apr 2023 Do not be scared you are okay.

take your time, YOU are going to be OKAY. Live well, YOU are loved and cared about. Your RRms...

28 May 2023 Who are you?

need an answer it is for YOU to think about. WHO ARE YOU? Seriously who are YOU? Do YOU know?...

26 May 2023 It is not always ms

all along. YOU have ms, not your family, not your Dr, nobody but YOU. At 0300 (3AM) YOU are...