G’day, my family. I would wish that your night was restful and “YOU” had no ms horrors. No emergency room visits. Today is no different from yesterday, no different from tomorrow. That is how “YOU” want it, the same, always the same. Think about it. Some might say this is boring, I might suggest that this is perfect. Sameness, repetition means that my body is getting worse slowly and this is exactly what I want, no surprises. “YOU” and I have a chronic incurable progressive disease. No matter what we do it will progress and that means, getting worse. There are some periods where things improve a little, but as a rule, we are on a downhill slope. Twenty years ago I could stand on one leg to put my pants on. Today I tried to do it and fell against the wall. That is progression. Twenty years ago I was flat out doing one chin-up, today I smile at the callouses on my hands from doing so many. Not all progression has to be negative, find the positives.Give yourself every opportunity to succeed. Do not fill your life with examples of what “YOU” can not do. Fill it with all the things tat “YOU” can do. These are your treasures. These are your pieces of gold in your Gringotts treasure vault. These are locked away for “YOU” to access on occasions where life is causing “YOU” pain and frustration.
Over my many years of Relapsing-Remitting ms (RRms) many very unpleasant things have happened to me, but there have been many successes as well. These go in my vault. I coped with this once, so I can do it again. Trigeminal Neuralgia will come back, the surgery only works five years, but in my vault is the memory of coping the first time, and I will access that memory when it comes back again, soon.
If “YOU” do not have a memory of success, reach out and ask. We are a family, we are here to help each, help each other cope with this ever-changing condition. “YOU” are not alone, RRms is not something that “YOU” alone have to go through. It is not a pleasant easy disease, but talking, voicing your fears to understanding people can make the progression so much easier. When your spouse and friends do not understand when family and friends merely shake their heads, WE are here. We may not understand exactly. RRms is a very big disease after all, But we live it and perhaps somebody has an idea on how to ease your situation.
RRms demands that every day I move forward, that I do what has to be done to give myself a quality of life that I can live with. It certainly is not perfect but I can make it for filling and give it a purpose. I can go to sleep at night and say to myself that today I tried and maybe tomorrow I will try again. Because I did it once so I will do it again, for as long as necessary.
Royce (your ms writer)
we have RRms, this is not an excuse to give up on yourself
