Post 688 be gentle with yourself 1... - My MSAA Community

My MSAA Community

9,099 members20,861 posts

Post 688 be gentle with yourself 16 Sep 2020

RoyceNewton profile image
12 Replies

Good Morning beloved ms family. Was last night a good night? I certainly hope it was. If it was not, guess what “YOU” got through it, now “YOU” know how to do it again. Before I had my first Trigeminal Neuralgia surgery, I have had three times. I used to dread going to sleep. The pain was let us say rather intense. I used to remember each night how I had survived, the night before and tried to do it again. I am only human and I do make mistakes, so I ended up overdosing several times but I DID learn what to do and what NOT to do. This is something that “YOU” need to learn for yourself. It would be very good if I could stand there and hold your hand. Tell “YOU” that it will be okay and that, ”YOU” will get through whatever aches “YOU”. That dawn and the soothing light of a new day is just a few hours away.

Sadly I can not, in spirit I can and I will if “YOU” ask for me, but “YOU” have to ask first. Until then, know that “YOU” can get through this. “YOU” will come out the other side. “YOU” maybe very different, totally changed, but “YOU” will come to the other side. A diagnosis (Dx) of Relapsing-remitting ms (RRms) is NOT the end of “YOU” Take it easy on yourself. Be a little gentle, cut yourself some slack. Find new and different ways to do things. Just do not do them, why bother. This is a very long journey that we are on. Mine started at 29ish, it has lasted over twenty years so far., who knows how far it will go. I could not have survived this long if I was constantly fighting a monster. I have, because I adapted, changed, failed, accepted. I have allowed ms to change me. I have adapted to give it less power, influence over my life and body. These are things I feel “YOU” must do as well. 20+ years ago I had a little old lady that told me to go easy on myself. To do what I can, to forgive myself for what I can’t and to take the next step. Thank you Mother, I am banned again on facebook so she will not read this. But “YOU” get the hint, catch my drift don’t “YOU”. “YOU” like me have been dx’d with RRms now. We will have it forever, we can not make it go away. Nobody can. It is OURS.

So why not go easy on yourself. Accept what “YOU” are and accept what has happened to “YOU”. It will take time, so give it time. Complex things have and are happening to “YOU”. They will not be solved with one aspirin and a lie down (nap). “YOU” have to treat your RRms as a challenge. The biggest that “YOU will ever face. Be gentle with yourself, learn to forgive. This takes effort, a lot os effort, BUT my sibling “YOU” are up for the challenge. RRms did not know what it was taking on when it attacked “YOU”. Within “YOU” lays a spark, a gently smouldering cinder. These fires burning on the western united States coast are nothing compared to the fire that can burn inside of “YOU”. Be gentle, give yourself time and the tools “YOU” need to feed your flame into something truly glorious. Believe, and be gentle with yourself. No matter what anybody may say or how “YOU” might feel yourself, know that at any given moment “YOU” are trying your hardest and that “YOU” are a good and worthwhile person. RRms is what “YOU’ have, NOT what “YOU” are.

Royce ( your ms writer and brother)

take breath, you can live with ms

Written by
RoyceNewton profile image
RoyceNewton
To view profiles and participate in discussions please or .
Read more about...
12 Replies
carolek572 profile image
carolek572CommunityAmbassador

You are banned from Facebook, Royce? What does one do to accomplish that? :-D

RoyceNewton profile image
RoyceNewton in reply to carolek572

break thier stupid community guidelines that nobody reads. They are very sensitive, but it is no great loss. did you know that 688 class is a Los Angeles class Attack submarine. Useless information I know :-) I had to telll somebody and you were the victim

carolek572 profile image
carolek572CommunityAmbassador in reply to RoyceNewton

I don't see what is so sensitive about your reply, Royce. I guess that it is some sort of offense, certainly went over my head, but most things do go over my head as I am not that tall! Useless info, I know, and now we are even! :-D

RoyceNewton profile image
RoyceNewton in reply to carolek572

very funny, yes we are even

twooldcrows profile image
twooldcrows

well said and so true it is different for all and we do what we can ...WHAT WE CAN DO ...so take care of YOURSELF and watch what is working and what isn't for YOU...just love yourself ....laugh and cry if necessary ...smile ...look at others and smile and see the difference it did for them well i should say most...but i do agree with Royce...he does have lots of help for you if you ask or your doctor can help....take care and be happy it does help...

Tulip77 profile image
Tulip77

Well said. I will be reading it several more times. Thank you.

Sandydemop profile image
Sandydemop

❤ I have it it isn't who i am. thanks RoyceNewton

Sandydemop profile image
Sandydemop

curious how you got thrown out of facebook.

RoyceNewton profile image
RoyceNewton in reply to Sandydemop

these things happen IO really do not mind either way

JSSimp profile image
JSSimp

Enjoy the read Royce. Very powerful..

leking1 profile image
leking1

Thanks, Royce, sometimes even I need a reminder!

hairbrain4 profile image
hairbrain4

Thanks for the reminder that sometimes we all need to remember that we aren't defined by MS. Oh, and that FB thing, in my unsolicited opinion..."They have their heads stuck where the sun don't shine!"

You may also like...

Unnumbered post The aim is not to win 11 Sep 2020

move, I guess that was a good thing. I hope last night was good for \\"YOU\\" and today is the...

Unnumbered post My superpower 4 Sep 2020

was a good night for me, and I hope it was for \\"YOU\\" as well. Today I have a question for...

Unnumbered post It is okay to 29 Sep 2020

all will have RRms for a very long time. NOTHING can make it go away. Go easy on yourself. Be...

Unnumbered post I may disagree but 30 Sep 2020

am here to say, relax take it easy YOU can handle Relapsing-Remitting ms (RRms) My intentions are...

Unnumbered post Bulletproof yourself 16 May 2021

Evy pPoumpouras read it, take what lessons that \\"YOU\\" can and make yourself stronger. More...