Good morning ms Sisters and Brothers, I hope “YOU” are well and had a good nights sleep. I know what it is like to not to rest, be it from pain or turbulent thoughts running through your head, all night. I would suggest that “YOU” take a BRUTALLY HONEST assessment of your condition.
This is a chronic, incurable, progressive disease. Do not ask it to go away, it will not. This is yours and my lot in this life. The cards we were dealt and we MUST play them too the best we can. I do not mind that “YOU” have been diagnosed(Dx’d) 6 minutes, 6weeks, 6 years or in my case20+years ago. This is our lot, the hand we were dealt and it is up to me to learn to play it the absolute best wat that we can. I would think that “YOU” might do the same.
Cry when “YOU” need to. Let those frustrations that anger and hurt out. Do not be a hero, sit in the bathroom and cry your eyes out. This illness does not get better, IT GETS WORSE. That is a fact and it is up to “YOU” to make it get worse SLOWER. Reread that and understand it. There are things that “YOU” can do to help it progress slower, not stop it but slow it down. Take Disease-Modifying Therapy (DMT). Modifying means slowing, not stopping. Nothing stops it, understand that and accept it. ms is with us all for life, and it will be a very long life. Accept this and make yours as good as “YOU” possibly can then make it better. Never stop your therapy and never stand still, trying to make your days a little bit better. I understand that it may be dark. That “YOU” see no light and that “YOU” see no way to go. Take your DMT and start moving, anyway just start moving.
“YOU” will go the wrong way, “YOU will make mistakes. I am sure I did and I am sure that I still do. In fact, I know I do and I accept this. Nobody that I know of is perfect, nobody makes no mistakes and does everything perfectly. If “YOU” know somebody who does, please share their secret. I would love to know it.
Do not expect miracles, three laser surgeries on my face and years of constant DMT, and my face is still tingling, twitching numb and my mouth dribbling. My Magnetic resonance Images (MRI) still show disease progression. This is mine and your lot in this life, I accept it. constantly do what I can to slow it down but never expect it to stop. It will stop one day, when I am put 6 foot underground. I am not in a hurry for that day so I keep doing my best to slow ms down. That is the best any of us can do. Do not be disheartened, this is a VERY longterm illness. Accept it, believe it and live IT. It takes a special person to live well with it and believe me or not, "YOU" my ms sibling are that kind of special person.
Cry, let the hurt out. It will come back but feel free to cry again. Mourn the past for it is in the past. Look to your future. Not the black scary bits the grey and possible blue cheerier bits.
Royce (your ms writer)
Love somebody deeply and totally. Yourself might be a good idea
