I do not understand: Why anybody with... - My MSAA Community

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I do not understand

RoyceNewton profile image
6 Replies

Why anybody with Relapsing-Remitting ms (RRms) would not lead a happy and fulfilling life. Come to think of it anybody with RRms today in 2018 particularly.

There are so many medicines available to "YOU", I just had "B" Betaseron, then for years the A B C's. I was so happy when Tecfidera came on the market. No more every other day needle in my bony and lumpy butt. There has never been much fat anywhere else. Now I can wake up and take a pill and go back to bed. Repeat in 12 hours. Easy peasy.

"LIFE IS GOOD" I still have no money, that was never promised. I only have four or five people outside of very close family that make an effort to understand. But why would anybody else, they have their own issues that I am not privy to, and to be honest I do not really care about. I do know me a great deal better, strange person that I can be. All in all life is pretty good, I can complain, or be angry . Say why me, but I know the answer already. It is "YOU" because "YOU can" "YOU will" "YOU DO" this ms life, Sometimes it may knock "YOU" around a little. Things happen that "YOU" really do not like, but "YOU" adapt, "YOU" persevere and "YOU" get to the other side of any obstacle. Not every person can do what "YOU" do, but "YOU" my friend do and "YOU WILL" continue doing it, for this is your ms "YOU and I ", yes "YOU" are going to continue doing it, right up until they put that last shovel full of dirt on "US", and then the songs, the songs of your strength will be in the great halls of heroes. Okay, gossip at family gatherings but "YOU" can picture what I mean. To much Nordic history on television last night:-)

This is under "NO" circumstances a simple and easy condition. It can be quite sneaky and tricksy, but it is very very "DOABLE" Take a little time. Form a goal, then a plan and start moving towards your objective. This illness did not start a day ago, so do not expect to find it in two days gone. We are all in this for the long trek now, so tighten your bootstraps, pull your shoulders back and start moving forward. Just be prepared to do a few circles and maybe take a few steps back. For that is the way of RRms.

Royce

RRms can be done it just takes a choice to "DO' it, and I believe that "YOU" of all people really "CAN", honest. "YOU" really "CAN".

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RoyceNewton
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6 Replies
Kenu profile image
Kenu

Right on 👍. Good Post 😁. Ken 🐾

good post, applies to SPMS like me

RoyceNewton profile image
RoyceNewton in reply to MS_Indestructible

Glad it helps some

kycmary profile image
kycmary

Hi Royce YES!! we can we are survivors I got to talk to my granddaughter-in-law & told her how I feel about what those Drs. are doing about wait & see how things go. She is going to request an MS specialist & she'll let me know what happens. Thanks to everyone for your input & prayers over this situation. I can rest easier knowing she understands things better.

DIsneyQueen profile image
DIsneyQueen

👍😁 What a great insight. Thanks for the encouraging words

hairbrain4 profile image
hairbrain4

You are so right! No one ever promised that life would be easy. This disease actually makes us stronger as each day goes by, as you said: "You can, You will & you do." For those of you that are new to MS, do some research, learn everything you can about MS. The more you know, the more power you have to stay ahead in this game of life with MS.

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