Not everybody gets it and that is Okay

[RoyceNewton]

Honestly, they do not. I have been travelling this path for many years. She who must be obeyed has been travelling it even longer. I do not totally understand her Relapsing-remitting ms (RRms) and I promise "YOU" that she does not understand mine totally either, .and we both have the same illness. We go to each other's Neurologists appointments so we are aware of what is going on. We share and see what is going on, but. Yes but.

Is it fair of "YOU" to expect that everybody understands something that not even "YOU" fully understand, and this is happening to "YOU"? Think a moment on that, is it fair? As "YOU" progress along your ms life journey "YOU" will start to learn ways that "YOU" are comfortable with to display, share your emotions and feelings. Who "YOU" should share with and who "YOU" perhaps should not. Remember not everybody is strong enough to cope with your whole story. Perhaps a little discretion might be a good thing. "YOU will make mistakes, tell people things that "YOU" should not have and vice versa. Be easy on yourself "YOU" like me are probably far from perfect. RRms means "YOU" will make mistakes, try to make them smallish ones rather than huge ones.

As "YOU" are learning to be careful with your sharing, be careful with your feelings towards others. Friends and family that I thought would be there for me haven't been. People that I expected to be hi hows the weather people have turned out to be close confidants. It is quite strange how life turns out, this RRms path has lots of corners. Life has lots of corners, "YOU" did not know they were coming, RRms is no different.

It is always our ultimate goal is to do our best whatever that may be, to live ,this our RRms life to our greatest and happiest potential. Not to shudder in the corner in the dark and cold. There is no reason to hide yourself away, get out and feel a little sunlight on your face. This is a short life in the scheme of things, enjoy it as much as "YOU" can, and remember this is only RRms, no big deal. "YOU CAN< YOU WILL DO THIS, YOUR MS LIFE."

ROYCE

without fear, I will take my next step

[carolek572 CommunityAmbassador]

Well said! Yes, I agree with you on this one!

[RoyceNewton in reply to carolek572]

thank you very much

[carolek572 CommunityAmbassador in reply to RoyceNewton]

You always know how to say it and I thank you for your thought provoking and wonderful posts, Royce. Please keep them coming!

[1strider]

Royce, in my 20 years of MS I have certainly experienced all that you have written here.

[RoyceNewton in reply to 1strider]

I have as well in my 20years

[Kenu]

Good read as always 👍🙏😊 Ken 🐾🐾

[RoyceNewton in reply to Kenu]

Thanks

[quegh]

You are a freaking genius—what you wrote is the most spiritual and useful thing I have read in a long time. Thank you for that.

[RoyceNewton in reply to quegh]

ahh okay thanks now I am blushing I am glad she who must be obeyed is in bed as she would tease me all day if she saw me right now

[quegh]

Last week I had an "a ha" moment about something you said about sharing. Long story short, I got to question myself about what exactly I wanted to have happen when I shared with somebody, about my situation (medical event or symptoms or disease or recovery). For example just getting really specific like: what do I want out of me sharing this? I had a big surprise: sometimes I share stuff because I think it will give me some relief and make me feel better.

That is not what I expected. I thought I was mr positive survivor with a good attitude and all that, and eager to spread the word about the disease and recovery. And well, that is part of me, but there is an other part that just wants to talk to my friends and family so I can get a relief from my bad feelings. From the worry and fear and anxiety.

But you know that is human. Like you said, give yourself a break. A lot of this, everybody goes through this, I mean every human. There is definitely a twist, or something I feel is unique about what we have to deal with, but at the end of the day the feelings are the same. My take away is that #1 to give ourselves a break is the ultimate tool of empowerment and #2 the power of fellowship of other of the only ones who understand the ones who we don't have to explain things to because they "just know" the ones who can laugh and joke about this crazy stuff in ways that would be too upsetting to friends and family well this is fellowship and it is critical to our success. That is why I always say "We are in it together." We are never alone, and when we are alone, we aren't lonely, either: because of fellowship.

Just loved your post so great you shared it for everyone now and in the future.

[RoyceNewton]

Thank you very much.

[jimeka]

Good post Royce 👍

[RoyceNewton in reply to jimeka]

thanks