Good morning my beloved sisters and brothers. Are you ready for another exciting day with our companion? Are “YOU” well-rested and ready to face the day? “YOU” do realize that we have many many more days to live, this is not a fail condition. I am planning on a little less than 10 000more days myself, but if I can do 10 000 more I will be mighty impressed. That would make 15 000 to 20 000 days with Relapsing-Remitting ms (RRms). Thankfully I am taking a tablet, there is no way that my butt could have coped with that many injections. The few thousand I did was hard enough. Remember when it comes to needles I am a big scaredy-cat (wimp, coward) “YOU” get the picture.
Anyway enough about me, let us talk about “YOU” With this disease there is a lot of misinformation. Having access these days to all of humanities knowledge, it is possible to get lost, confused and bewildered about what to do at first.
To make it easier, let us start with the most important one first. There is NO cure. Anything that “YOU” hear or read, that claims there is, is a is a fairytale,an untruth, a lie. Yes, there is something called clinically isolated syndrome (CIS), but I am not a doctor or any sort of knowledgeable person about this. If “YOU” have it, talk to your doctor, not me.
Your absolute best first step is to start taking a Disease-Modifying Therapy (DMT), not a cure. A modifying therapy, it lessens the damage rate slightly. There are lots out there, only one or two of which are dangerous. Again talk to your doctor, ask questions and research. If “YOU” have that in place the rest, in my opinion, is easy. Eat healthily, there is no ms diet, just try to not become obese and have a heart attack. Exercise, I do not like running, but “YOU” can walk. Ride a tricycle, or bicycle, lift weights, do chin-ups. I like chin-ups because a lot of people can not do them, but I can. A slight ego-boosting success.
Life with a chronic, incurable illness is a big-time mental game. Give yourself opportunities to succeed. I can no longer fly an aeroplane, but I could fly a drone. Not exactly the same thing but I had to pass a test (97%), and I had to fly and use my fingers to control the drone. Not real hard, but neither was flying, to be honest. Give yourself the ability to succeed. Build up your self-confidence, your feeling of self-worth. This is a long disease “YOU” and I will die with it, not from it. Give yourself the chance to succeed, this is so very important. Do not let yourself despair at what “YOU” can no longer do. Be happy and enjoy what “YOU” can do. Do not believe everything that “YOU” may see, read and be told about this illness. Live it for yourself and do your best to make it into what “YOU” want, what “YOU” dream of.
The Central Nervous System is huge, the nerves in the brain are many. The symptoms I suffer may NEVER affect “YOU”. Somebody else’s ms is not yours. How they suffer or what they do may not be your disease path. Make your RRms, your RRms. Be unique, be happy and be comfortable with managing YOU RRms.
Royce (your ms writer)
your RRms is yours, not anybody else’s. No two of us are exactly alike, be careful what “YOU” believe because others story may not be yours
