Post 553 10000+ members wow 27 Oct 2019

[RoyceNewton]

Yes, 10 000 + member5s that is a serious wow, I remember when, but enough of that, let us talk about my absolute favourite subject today. Not Prince, or my joint dog, or she who must be obeyed. "YOU", yes "YOU" my absolute favourite subject. Let us be clear perhaps not "YOU as an individual, but"YOU" as a scared newly diagnosed (NEWBIE) with Relapsing-Reemitting ms (RRms) First off do not be scared, I highly recommend crying, but there is no need to be scared. This disease we have is incurable, chronic and progressive, BUT no matter what anybody says it is not life-threatening or life-shortening.

Nobody was born and promised a certain amount of years. Some live longer some less, but "YOU" my ms sibling (That is YOU just to be clear) were never promised anything. That being the case, my suggestion might be, start doing everything that "YOU" can to make the life that "YOU" have got, a really good one. Wipe away those tears for a moment, stop sit quietly and think. RRms is my situation now. I can not change it or make it go away. What can I do to live with it and live well and long with it?

First stop, YOUTUBE Dr AAron Boster md. I always get his name wrong one o or two o's I am not certain. An exercise in research for "YOU". Research is your friend in ms, get used to doing a lot of it. Be careful who "YOU listen to out in the world. There are lots of charlatans, some well-meaning, but wrong. Some who just want to take advantage of "YOU", I will let "YOU" decide which one I am, I will tell "YOU" this though. Sometimes I am wrong, if "YOU" are concerned by something I say get a second opinion, that goes for anything anybody says. Sad that, but is the world and society that we live in.

"YOU" might notice if "YOU" look at any of my posts they are about a page long, mostly because I do not like reading long multipage texts. So, I try not to put "YOU" through it. Somebody posted yesterday an article about resilience, 20 tips on everyday health I believe. I recommend having a read of that, "YOU" are going to need to start building your resilience. RRms is a lifelong condition, RRms takes a special person with special skills. Most of these skills we hav, we merely need some guidance in retrieving them. "YOU" can do ms, live it. live it well and live it for a long time. Take a little time, shed a few tears. I believe in "YOU", start believing in yourself. "YOU" truly can do RRms, go on make me proud.

Royce (the ms writer)

YOUTUBE Dr AAron Boster, Everyday health 20 tips about building your resilience

I almost forgot, wear protective underwear, when out in public. DEPENDS are a good brand

[Fattius]

Every post I read is some kind of premonition of some magical place. Intelligence isn't misleading. If u have the title of m.s. writer then write about m.s. As it pertains to planet earth. I see and smell the rainbows and puppy farts and is bothersome. Pain is real, dead brain matter is real, vertigo is real and so on ,maybe try to write about the things they will face rather than argue about the legitimacy of the kitty posters and help someone that is new by letting others share experiences they've had or going through, rather than give a daily tour of what may happen but I guarantee things will happen. They will have to be dealt with accordingly but remember u know it body and mind and u will encounter these charlotons I speek of regularly and make your decision one that is vetted in research and common sense.

[RoyceNewton in reply to Fattius]

thank you for your constructive input. out of curiosity do you have any idea what trigeminal neuralgia is? What it's nickname is? Merely a question.

[Fattius in reply to RoyceNewton]

Yes I surely do .And if your face Feels like it's being ripped apart from the ear to the chin well I would advise talk to ur doc.😉

[jackiesj]

Royce, you are a really wonderful person.many here are but thought id pick on you today...

[RoyceNewton in reply to jackiesj]

thank you very much I really ne4eded that today, I appreciate it

[twooldcrows]

another good one ...YOU have some good fun with words and help us all if they take the time to read and don't laugh to hard to keep reading along ...i love the good and honest about your writing for it is true that it will not kill us but we do have to make a few adjustments and then some don't have but one episode with it and nothing for years and years that is why they say it is different for everyone ...yes at first when i was dx i was on line and books and wow did i get scared ...then went to a couple of meeting and staring reading stuff from the MS web pages and watch their webinars and they really helped me to understand and with lots of help in dealing with it ...of course the MS doctor i have now is so great if i could of started with here would of helped too ...it really helps having a doctor that understands the disease really helps others don't ....well hope everyone gets some great help here and on other web pages ...love and happiness is to good for all ....laugh a lot and smile to help someone else....we all have something going on in our lives not just us with this monster MS....

[RoyceNewton in reply to twooldcrows]

yes, a good Doctor really does help, and the right people in a self help group

[carolek572 CommunityAmbassador]

Good post and info on Aaron Boster. Thank you for sharing

[RoyceNewton in reply to carolek572]

ha I got his name right at last

[carolek572 CommunityAmbassador in reply to RoyceNewton]

And you trust me to get his name right? Just teasing you. I just watched a YouTube on ‘MS Progression’. It was interesting.

[RoyceNewton in reply to carolek572]

I think I am avoiding knowing about progression , silly I know maybe another day

[carolek572 CommunityAmbassador in reply to RoyceNewton]

Don't be afraid. The explanation is given in a way so that it is easier to understand, and Dr. Aaron Boster makes it somewhat 'enjoyable' to listen to. Give it a try, he doesn't bite!

[RoyceNewton in reply to carolek572]

I quite like Dr Boster