Experiences with

Betaseron

I take Betaseron and randomly get hit with flu-like symptoms. This unpredictability gets debilitating. Anyway, I have gotten 3 months at a time, and am stopping at the end of one month. So I have two months of unopened meds that I hate to just throw away.

When I started Australia only had Beta Betaseron or nothing. Today that is very different, we have options. Our ms has options it can be slowed down. How GREAT is that? Smile and have a really fabulous day. Royce :-) Read Stoic philosophy

When I started Australia only had Beta Betaseron or nothing. Today that is very different, we have options. Our ms has options it can be slowed down. How GREAT is that? Smile and have a really fabulous day. Royce :-) Read Stoic philosophy

I have taken Betaseron Tecfidera and now Ocrevus. I walk, bathe and perform most other functions. I do not drive, apart from down to the mailbox and hold on to a cart at the grocery store most of the time. There are far to many people rushing around that might knock ME over.

After my diagnosis only the ABC drugs—avonex, betaseron and copaxone—were available and I had intolerable symptoms. My doctor recommended Tysabri which was new at the time and it was recommended to be used only—not in combination with any other interferon or MS drug. 

It was long enough ago that I was in the lottery to go on Betaseron. I turned it down the first time, and took it the next time my number was called. I didn't stay on it long as I had a true allergic reaction. I've sampled a couple of the other DMTs.

I started long ago on Betaseron\betaferon. Interferon beta 1b and I have the scarring to prove it. The wife likes to tease me about all the lumps in my butt. No soft fat for her to pinch. Ahh well this is life with a chronic incurable disease.

I remember when I was on Betaferon\betaseron for years I took ibuprofen religiously before injections and a meal. To advert side effects. The4se are SERIOUS medicines that we take. Protect yourself, BUT take them.

I have the scaring from years on Betaseron to remind me of that. So that is your first step. Wipe away the tears, remind your Neurologist that it is “YOU” that have the disease and “YOU” want the strongest medicine, Ocruvus regardless of side effects which there will be..

The ONLY medicine available at the time was Interferon Beta 1b, Betaseron or Betaferon depending where “YOU are in the world, and I was an absolute coward when It comes to needles and they asked for one every other day. Well eventually I pulled my head In gritted my teeth and did it.

I put up with headaches, painful injections and a basic feeling of crap for years on interferon Beta 1B(Betaseron). Even worse for my month on Rebif Interferon Beta 1A. None on Tecfidera, and it is a tablet so no needles. Yaay as I have a needle phobia.

For example, Copaxone, Rebif, Avonex, and Betaseron don't prevent you from building immunity, and they don't make you more likely to become sick from any vaccines.

When drugs were available it was betaseron on lottery. Waited until choices were ABC. Chose A. On it until 3years ago. Suddenly the every 2 yr followup showed multiple new lesions. No idea when during the 2 years or if gradual or sudden. No new symptoms.

I was on Betaseron for several years, then switched to Tecfidera, but my liver function numbers were not good. I then switched to Copaxone. I am currently taking nothing. My white blood cell count is low. My blood platlet count is low.

Interferon Beta 1b Betaseron or Betaferon depending on where"YOU" were in the world. Same stuff different names, marketing issues I guess. The next year I believe Avonex then Copaxone came along.

Silly but is a coping mechanism Just like DMT (Disease Modifying Therapy) or ABC’s (Avonex Betaseron\Betaferon. Copaxone) or Tec (Tecfidra) is. Make things smaller easier to handle and come to terms with. I do not start at 150 kilogram (300 pounds) weight at the gym.

I can still remember the procedure for Betaseron injections from 10 years ago. I know where in the fridge space has to be made, bottom left corner midway back nothing in front so they are always seen.

My blood test gentleman knows how much I appreciate him and the two ladies that used to inject me with Betaseron\feron know how appreciative I am of them. I have mentioned that I am a true baby when it comes to needles haven't I? We all have ms in some form. Do not let it destroy "YOU".

I intensely dislike needles, but back in the day, Interferon Beta 1b (Betaseron) was the only Disease Modifying Therapy (DMT) available. So my choice was to suck it up or... and or was not really an option. Two of my strong women in my life quickly vetoed that option.

There are so many medicines available to "YOU", I just had "B" Betaseron, then for years the A B C's. I was so happy when Tecfidera came on the market. No more every other day needle in my bony and lumpy butt. There has never been much fat anywhere else.