G'Day, my Relapsing Remittg ms (RRms) family. Actually, YOU can be any kind I suppose, but I have RRms and I only ever look at RRms stuff, Having said that I highly recommend this doctor for trustworthy info. Dr Aaron Boster MD on youtube. I believe my spelling is okay but play with the spelling if I got it wrong.
In all seriousness, this is a challenging condition that we all have. YOU may be newly diagnosed, or have been in the game for a few years, It does not matter which. RRms is a physical and mental game. To live your best life with it YOU must be strong in both, for your lifetime. There are no answers and there is only one reason why.
It is a Homo Sapien disease and by all accounts my sibling YOU are Homo Sapien. No other reason, just that. Learn to shrug your shoulders and say "better me than somebody else. I am strong enough to do this, they may not be" Having said that go live that way. Do not give up, cry when you want, it is allowed and it does not mean YOU are weak. Frustrated, most certainly but never weak. RRms is not easy, it takes a lot, but is doable. Especially by somebody like YOU. Try not to fall for miracle cures, any cures actually. This is with YOU for life, as long as that may be. So hitch up your skirt. tighten your belt and go live your BEST life. Prove everybody wrong, accept what has happened and learn to find your own way, around the obstacles that may confront YOU. OF course, I can not, not plug my own pinion. Do not wait and see, do not procrastinate. Start a Disease Modifying Therapy (DMT) yesterday if not the day before that. It will NOT cure YOU, it likely involves needles but it is your best bet to slowing this very tricky illness, and sloe it is what we must do. At least until we all can be cured, but there is no reason as to why. a cure could be a long way away.
Until that day, live your best life, be brave, hate it but still always tasks your DMT. Fight for it, it is yours and this is your life. Be happy, smile and live well. YOU re not forgotten.
Royce
Your very own ms writer
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RoyceNewton
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I really love how you've said about how strong we are! I remember, with my 1st symptom (simple partial, temporal lobe seizures), I often looked to the sky, wondering if he/she had a quota to fill, and I was the strongest one to be given it. I still say that, and I even mention it to people who ask me more about MS, more often about why I have it. I'm not religious, but it helps me when I'm feeling really down about my diagnosis 🫂
Goodmorning brother Royce. Good to hear from you, and I agree with most of what you say. I have experienced 2 kinds of MS in the past 42 years, and in many ways, they were very different. The first 25 or so years I had RRMS, tried several different DMT's, as they became available, had symptoms that neither I nor any of my neurologists had ever expected. I worked full time, raised my son, lived a good life. About 17-18 years ago, my Neurologist began noticing changes in me, so after more MRI's, tests and so on, she told me that I had progressed to SPMS, and that I needed to think about stopping work, or at least cut back to half time. I wasn't ready for that, and I argued my point for 5 more years, trying to ignore the body that was betraying me. I was seeing my Neurologist every 3 months, changing/adding medications, and getting worse every day. So, that was it. RRMS was easier for me to live with. I would have a really bad relapse, but then it would go away. SPMS is no fun at all, and she messes with my mind as well as my body. I don't give up, EVER! Retirement is great! I do what I want to, when I want to! Yes, I live my life, I enjoy the things I do, and I look forward to each new day! Each morning, I thank God for another day, and MS won't get in my way, no matter which one it is! I wish everyone a wonderful and blessed day! Linda
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