help rls

[Slayedbroken]

big shout out to a certain lady for getting me here

Severe rls 3-4 times a day now

I struggle to have any relaxation or sleep without rls interruption although i even get it in my arms now

20 odd years of severe rls augmenting many medications tried nothing really has worked

The side effects of pramipexole for me personally are horrendous the personality change the compulsive ocd behaviours lost many good relationships over it

Unless im on the go 24/7 with my mind busy

But i just end up so exhausted

The gp has no or little interest in helping and i go in with more knowledge of my condition than they have trying to explain the violence of the spasms

My back and neck and leg muscles are virtually rigid the injuries from rls when you muscles are contracted but then explosively kick out hurt so much

I’ve tried just about everything from medicine to herbal to therapy to rieki holistic therapys

Screaming for true help

But i lost count of the times i want to take a long walk of a short pier

The deep depression episodes that come associated the nasty personality changes from the meds and tiredness the isolation it causes im 58 now but feel 88 rigid stiff and miserable

Where do you turn

[Omniscient1]

Hi. That sounds really grim. I had to look up what rls was as I'd not heard of it. You obviously have it bad. I did know an old lady many years ago (and long since passed away) who had periodic injections to sort out a restless leg, but whether it is what you have I have no clue.What I'm about to say is probably stupidly naive but have you video'd yourself in spasm for the benefit of the GP? My only other constructive thought is a private consultation may be worthwhile.

One other thought - this forum tends to be more about prostates and willys than anything else. I just looked and there is an rls forum with 20,000 members, you may get more educated and coherent thought over there. I can get you a link if you can't find it but look under 'hub' on the website and search for rls.

Best wishes to you, Gary

[Omniscient1]

... and hang on to that certain lady. We all need them.