big shout out to a certain lady for getting me here
Severe rls 3-4 times a day now
I struggle to have any relaxation or sleep without rls interruption although i even get it in my arms now
20 odd years of severe rls augmenting many medications tried nothing really has worked
The side effects of pramipexole for me personally are horrendous the personality change the compulsive ocd behaviours lost many good relationships over it
Unless im on the go 24/7 with my mind busy
But i just end up so exhausted
The gp has no or little interest in helping and i go in with more knowledge of my condition than they have trying to explain the violence of the spasms
My back and neck and leg muscles are virtually rigid the injuries from rls when you muscles are contracted but then explosively kick out hurt so much
I’ve tried just about everything from medicine to herbal to therapy to rieki holistic therapys
Screaming for true help
But i lost count of the times i want to take a long walk of a short pier
The deep depression episodes that come associated the nasty personality changes from the meds and tiredness the isolation it causes im 58 now but feel 88 rigid stiff and miserable
Where do you turn