Prostatitis : Anyone ever had this or has... - Men's Health Forum

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Prostatitis

Bradfordjoiner
Bradfordjoiner

Anyone ever had this or has still got this. It’s sending me mental and also giving me anxiety !!

It started out has me urinating more at work I just put it down to being cold and thought nothing of it .

As the week went on the sensation was getting worse I was like hopping on one leg to go again after 20mins ..... I put up with it for a week and went to my doctors open surgery early morning .... i saw a doctor who did a dip stick urine test that came back clear I told her about the pressure in my anus and constant urge to urinate she did the finger test which was embarrassing but needed to be done all seemed ok so....

Doc said just drink plenty of fluid and see how I go ....this was the 21st dec by Christmas evening I was having an urge like my bladder was full every 3mins it sent me into real anxiety and went straight up to A@E after waiting 7hrs they found blood and infection in my urine and prescribed me trimprothin 400mg a day .... after talking 1st day I felt relief ... but next day symptoms came back and I couldn’t even urinate ... I kept taking the antibiotics but no help ..... so back to docs and saw a different doc who was on open clinic this different day another dip test for urine guess what no infection again ???? So she said she would send my urine off for a growth test and I left with 2 days left of trimeprothin ...

I managed another 2 days and symptoms was getting worse so ended up ringing 111 which is nhs out of hours help line I had pains in my flank was shivering hands was freezing I honesty thought I had a major problem .... they got me an appointment for 4am at hospital where another doctor checked my back and said he could get me a bed on ward with suspected kidney stones ....... but said they wouldn’t do much until after the weekend and that I could go back to my docs on Monday to get a referral to urologist so I went home .... Monday I went back to my docs ..... this time I saw a doctor I was familiar with she was great and got me straight up to hospital and checked out .... after another finger test blood tests and iv antibiotics they said my blood was ok no abnormalities to prostate but found 1 white cell and small amount of blood in urine ... under microscope the main urologist said he’s most certain it’s an infection in my prostate which is hiding .... they prescribed me ciproflaxin ... after taking 500mg 2 hrs later my wrist felt sprained and I got really bad groin pains I think it was my lymph nodes that swelled up I had blurred vision and ringing in ears .... I knew it was due to medication but thought I’d keep trying so went to bed next day my urination did ease up and pains in groin had eased ... so I took next set 2hrs later my groin had same symptoms and was agony ..... wrist same .... evening time I took second dose .... by this time my groin in right side felt like it was busting out so I called doc in the morning .... she said she didn’t THINK it was the tablets and was my infection .... after looking at the side effects myself I noticed they cause tendinitis so I told her ..... so she half listened to me and said ok I’ll give you something else ..... I went to pick up new prescription guess what ... oflaxin ??? I went to pharmacy and asked what side effects these do he said ... he was highly surprised she had swopped them to these has it’s the same family of antibiotics???? WTH ....lucky for me these tablets was out of stock from the main supplier and he told me to ring back and ask for something different... I asked him what he recommended and he said cefalexin which I told receptionist at the doctors to tell doctor .... she called me back 10mins later to say new prescription was ready and sure enough it’s cefalexin .... I was a bit mythical that she just took my word for it !! But glad I had new meds ..... 1st tablet I had violent diarrhoea wow ..... at this point I’m going out of my head ..... anxiety through roof .... are these people trying to kill me ....... i rang doctor

Back to explain she said I have to choose one tablet ..... thanks for concern.... I decided to stick with the diarrhoea....so took another one ... glad I did as the diarrhoea didn’t come back I’ve been on these antibiotics now 4 days ... the symptoms of the prostatitis has calmed down but keep getting bouts of it at some point in the day .... I’ve done endless research on net and noticed most suffers cannot shift it ...... this is sending me crazy the pressure in my butt and urge to urinate is horrible .... my bones around my bum cheeks feel bruised and my ass feels on fire with a stinging pain at the end of my penis ...... anyone else going or gone through this any info would be good ....... thanks

99 Replies
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Hey bud, you got it bad! I had same 6 months ago but nothing as bad as yours dr gave me a course of ciproflaxin and cleared up, just last week symptoms have started again, I was struggling to pee before the prostitus diagnosis, couldn’t start peeing took ages to start n then was going lots during night and gave me tamsulosin for relaxing prostate, hope your new pills sort you out buddy

Bradfordjoiner
Bradfordjoiner
in reply to Hidden

Thanks m1977

I didn’t realise how common and how bizarre prostatitis actually is I wouldn’t

wish it on my worst enemy ..... I hope yours clears up too mate it’s eased today but I’ve done nothing apart from lay in bed and sit on sofa I find sitting makes my ass burn between my cheeks and slight pressure inside .... should imagine this is my prostate ...... wish they was more treatment for this devil ailment

Hidden
Hidden
in reply to Bradfordjoiner

Yeah I get ya, the pain is behind my balls through to cheeks/top of legs, defo a pressure between anus n balls, very frustrating, tender to touch the area when bathing, drives me mad some days

Bradfordjoiner
Bradfordjoiner
in reply to Hidden

Yeah same sort of issue I find massaging this area and back of my thighs when in bed takes of the urge to urinate for me and relaxes my muscles ...... Did you have seizures before taking Cipro ?

Hidden
Hidden
in reply to Bradfordjoiner

Ah ok I’ll try that too, no seizures before, they began September, bloody nightmare they are now

Bradfordjoiner
Bradfordjoiner
in reply to Hidden

That’s a bit weird mate if you look up the side effects of cipro they can cause seizures also what I got ... swelling of the lymph nodes in groin check out symptoms on line mate ..... might be just a coincidence ...... but I get paranoid with tablets ..... have you tried cbd ? I might try the cream after my antibiotics as it can alter how medicine gets distributed I’ve heard this cream can do wonders for some and not for others ..... I’m up for trying everything to get rid lol

Hidden
Hidden
in reply to Bradfordjoiner

I had cipro in July n seizures started September but will defo discuss with specialist at next appointment, not tried cbd yet but it’s worth a thought in the long run, wasn’t aware of a cream. Lol yup I’d be up for trying anything especially with the symptoms you’ve had for sure. I’m on a few different tablets and they all state may cause seizures if you are prone to them.

Bradfordjoiner
Bradfordjoiner
in reply to Hidden

Bloody hell mate sounds like you’ve been through wars too .... I’ll keep you posted on symptoms and what I’ve tried to relieve symptoms .... take it easy mate speak soon

Hidden
Hidden
in reply to Bradfordjoiner

Brilliant, take it easy bud, keep me updated n feel free to inbox anytime

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Bradfordjoiner
Bradfordjoiner
in reply to Hidden

Hi now

Yes mate had blood test for psa all ok

And Dre they say is normal

Urologist said he suspects its bacteria in my prostate ..... thanks for advise I’ll take a look now

Cipro is probably the best course, but there are several antibiotics that will work usually. They need to determine what bacteria is inside your prostate to accurately treat it though, but since you've already been on antibiotics, that data would be tainted, or impossible to obtain without letting the bacteria re-culture in the prostate which would put you back to square one and take a couple months maybe. Every account of prostatitis with bacteria present has taken at least a month's worth of antibiotics to get rid of the bacteria fully. If your doc only prescribed a week's course, this is why you're having recurrence problems. It takes forever for the antibiotics to penetrate the prostate tissue and reach the bacteria, so you'll have to stick to the meds a lot longer than 10-15 days. At this point, I would just take a week or two off of them, and then get a 30 day supply and see how well you do by the end of them. If there's no signs of symptoms and hasn't been for over a week or two, I'd say you're good to go.

Thanks oh hey

Great advise mate ..... I’m feeling a little better today having only been to urinate 3 times from waking up at 730 .... I will defo take the advise on the length of time I’m taking these antibiotics as they seem to be working .... I finish the 7 day course on wed morning so I’m ringing up for another 7 days and see what happens thanks again. Mate all the best

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Bradfordjoiner
Bradfordjoiner
in reply to Hidden

Thanks mate appreciated

Last 3 antibiotics..... finish tom around 2pm I’m taking your advise ohhay give them a break been feeling shattered and losing weight so glad really ... let’s see what this bastard is made of .......has anyone else let it take its course and can it burn itself out ???

Finished my weeks antibiotics yesterday afternoon ..... main symptom came back tonight full on the feeling I needed to urinate it’s driving me wild ...... I’ve no pain just this feeling like I’ve a full bladder back to doctors tom morning .....

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Sh** man, this ain’t good! Another thought have you been to your sexual health clinic? There maybe some others tests they could do?

Get some otc pyridium(spelling might not be right) and you will need cipro or levaquin for at least 2 weeks...also drinking lots of fluids can help and another thing you can do is masturbate as often as you can...infection in the prostate can be helped via flushing of the prostate and the best way to do that is to stimulate your prostate as much as you can..might sound weird, but Google it...it really can help. I suffer with this myself...climaxing will also increase blood flow to the prostate...an even older method that isnt used much anymore, but still can help some is digital stimulation of the gland...climaxing with or with out direct stimulation of the prostate can be painful...but the idea is if you have frequent orgasam's then when your prostate releases its fluid on climax any pus or other infection buildup will be flushed out of the gland upon climax. Hope this helps (btw...pyridium is used to help with discomfort caused by a uti...it has pain relieving properties on the urinary tract...it will temporarily turn your urine a funky orange color, but that will go back to normal with in 24hrs of stopping use of the med...you can get it otc)

Flomax can help too...you can only get flomax from a dr...ivw found in my own personal experiences that 25mg benadryl every 4-6 hours can also help....just be careful with the benadeyl... it will make you sleepy

Thanks jeclear

The only problem I have is the cipro causes me to have tendinitis so they have give me cefoflaxin instead I went back to see her this morning and she gave me another week supply ......she said if it’s still bad after this course she will refer me back to the urologist.....It has been calm today at work but I work on my feet .... the only thing I’ve had today is a weird burning in the back of my inner thigh near my buttocks .....like nerves or Sumat ..... I will take your advise on self relief has you are 100% right has it’s the only way to get the fluid out thanks for taking the time to reply very much appreciated

Hi all

I’ve now noticed a really weak ejaculation is this normal for prostatitis? I have the pressure ....and feel it build up but when I climax it just dribbled out ???? I’ve never had this problem before ... I have chose to not retake the next week of antibiotics as I want to see if the symptoms get any worse as yesterday it wasn’t too bad during the day .... had red wine last night symptoms to urinate was there but I managed to control the stress by Being drunk for a change I’ve not had any alcohol since Christmas Day ...... do you think it’s wise not to continue with the antibiotics..... thanks . Sorry I know I’m a pain in arse .... this shits getting on my tits and a testing time for all family ..... I have bought some cbd balm 750mg today and rubbed it directly below my scrotum ...... I’ll see if I get any relief ..

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I gets ya bud, my ejaculation is weak too, not sure if meds or prostatitis tbh

Hi all

Just a update

I’ve been using this cbd balm on my perineum since Saturday ..... 2 x a day I feel more comfortable and have less pressure to urinate .... I’m not too sure if it’s coincidence or this stuff really works ... I’m not on the antibiotics as I stopped to see what would happen and I feel I’m getting better ....... I’ve took the advise with the self relief 2 times a day I have noticed a better ejection....... I’ll keep you all updated again soon thanks all

Hi guys

Another update

I’m defo on the mend .... thank god .... I’ve been using this balm all week now twice a day plus I’ve been using 2tbsp of apple cider vinegar with 1/2tsp turmeric in small amount of water ..once a day .... also been using saw pelmetto....... I’m not on any prescription meds at minute ..... I went back to docs Friday and they made me an appointment at the urologist for feb ..... I’m hoping I can cancel as this thing will be gone ...something I have done has helped me so hopfully might help someone else ..... hope your all doing well ... speak soon

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Glad things are on the mend mate

Bradfordjoiner
Bradfordjoiner
in reply to Hidden

How you doing m1977

Hope your getting there

Hidden
Hidden
in reply to Bradfordjoiner

Getting there buddy, got GP appointment this week, so fingers crossed 🤞

Bradfordjoiner
Bradfordjoiner
in reply to Hidden

Good mate and yeah all will be well ..... try not to worry like me 🤯lol keep us updated mate

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Hidden
in reply to Bradfordjoiner

Cheers buddy

periperi
periperi
in reply to Hidden

Hey... I'm struggling with something similar myself. It's been 6 months. It's horrible. I've just read a book called 'a headache in the pelvis', which is about Chronic Pelvic Pain Syndrome. I think your symptoms sound exactly like this syndrome. It's a chronic tightening of the muscles in the pelvic floor - with associated side effects. The tightness you feel between your ass and balls is muscular tension. Antibiotics won't fix it, but there are pressure point massage techniques to relax the muscles of the pelvic floor. I'm not a doctor so maybe I am not qualified to give advice... but doctors haven't helped me, so I've had to do my own research... definitely check the book out and read the reviews on Amazon - you'll hear a lot of familiar stories.

Thanks peri

Yeah I took a down turn yesterday again and the urge come back full pelt plus my anus just at front feels like it’s sore bruised cut and loads of pressure there I’ve started taking the trimethoprim again they gave me 28days worth on Friday gone but wasn’t gona bother until I saw the specialist on feb 7th but got a bit cautious as it was an infection spreading g to my arse or Sumat lol ..... this is the worst illness I’ve ever had it’s the not knowing that’s doing my nerves in ........ I was thinking it was what you said has I e always had a bad back with being a carpenter but this is really getting in way of my jobs as I cannot concentrate ..... thanks for the advise mate ... I can believe it’s true what you are saying because its very hard to explain to someone the feeling of needing to urinate all the time .... I’ll keep you informed all thanks ..... it does feel nice to be able to talk to others who know your not losing your f ing marbles .... lol

Bradfordjoiner
Bradfordjoiner
in reply to Hidden

Hope it went ok for you at docs last week mate

Hidden
Hidden
in reply to Bradfordjoiner

Cheers buddy, same as always another 28 days course of antibiotics & monitor it, hows you?

Bradfordjoiner
Bradfordjoiner
in reply to Hidden

Shit mate ......

I’m on 5th day of these trimethoprim again of 28 days lol .... but I do feel better with the urine urgency .......depending how I sit or stand ..... lower back pain and still got burning end of penis ........ arse hasn’t got sore feeling but still feel slightly uncomfortable in the rectum area ..... it’s gona be a long arse fight this .... but we will get there ...... hope you feel improvement soon ......

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in reply to Bradfordjoiner

Cheers bud, glad your feeling a bit better! I’ve not got the burning n urinating that’s another story lol yeah I said to gp about rectum area & a pressure feeling but again monitor it 🤷🏼‍♂️ keep going mate

Bradfordjoiner
Bradfordjoiner
in reply to Hidden

Ey m1977 how’s things with you are you feeling any better ??

Hidden
Hidden
in reply to Bradfordjoiner

Not bad bud, meds seem to be doing trick 👍🏽 same pressure but easing over time

Bradfordjoiner
Bradfordjoiner
in reply to Hidden

Good news mate

I’ve got 1 week left yeah my symptoms have calmed down I’m peeing a lot better and urge is just a slight feeling

I’m getting aching calf muscles and burning down legs now ?

Maybe the antibiotics or the prostatitis .... either way it’s manageable so fingers crossed .....

keep us updated 77

Hidden
Hidden
in reply to Bradfordjoiner

Well done bud, yeah I get you with the calf muscles not sure if related or not tbh, really pleased more manageable now defo fingers crossed for you 👍🏽

Bradfordjoiner
Bradfordjoiner
in reply to Hidden

Check this guy out on YouTube

Check all the comments he gets on all his videos ..... very helpful for our situation 77


Yeah mate. You're not alone in your struggles. I pretty much constantly have the feeling of needing to piss. It's easy enough for someone else to say 'concentrate on something else!'

I have a soreness of the arse too. The pelvic floor muscles are attached to the whole lot. In my case I think it's hemorrhoids. I had a case a couple of years ago. I've stopped sitting so much over the last couple of days and I think it's helping.

Thanks for reply

Before this started I used to get bad cramp in the back of my right thigh if I had it slightly lifted in bed weird I know but trying to back track all my symptoms maybe related to pelvic floor muscles

Do you find you are always holding your arse up tight like when you are holding wind in ..... I am doing this and don’t realise it I then try to relax but it feels like I’m gona urinate myself and the pressure is worse .... I think this is the

Problem causing the sore arse .... I’m not sure ?

I’m ok after a nights sleep I wake up feeling normal then it starts mid

Morning ...... I find if I lay in bed and cross my ankles it releases the pressure to urinate ........ we will find the problem and cure between us mate ... btw ordered the book thanks for that

I think mine might be related to excessive masturbation/sex - not sure, plus general anxiety and uptightness, but there's a chance it could be an infection. My GF was away for a month and I was masturbating pretty regularly in her absence. The prostatitis kind of came on all of a sudden, like leaking precum when I'd get a boner. The urge to piss came a couple of weeks later. I've been tested for STIs multiple times. I came up clear the first 3 times, then on the 4th time they tested for Ureaplasma Parvum - which naturally occurs in women, not so much in men though - and I had it. Doc gave me a week of cipro and doxycycline. The symptoms eased for a few days but returned. I took a month of cipro after that, but it didn't seem to do much. I also took a month of azithromycin and again no joy. The test that showed I had the Ureaplasma I did in Malaysia when I was on holiday. I got another test just the other day in Australia to see if the antibiotics had killed the bacteria, but they don't test for Ureaplasma here. I suspect that the bacteria probably wasn't causing the main issue, that it was probably more related to the pelvic floor. I'm looking all over the internet for answers because the doctors don't seem to have any. For them it's always just bacterial prostatitis and even if they can't find an infection they give you antibiotics.

Sex and masturbation ... Well there’s nowt wrong with that lol .....

what the hell do the doctors actually know about prostatitis...... there’s a video on utube this guy seems to know his stuff mate .... he mentions trying saw palmetto for 2 week .....

try this mate might help you I’m going to contact this guy if there’s no improvement soon 👍🏼


Well I bought some saw palmetto today. I also got some zinc which is supposed to be good for prostate health. Hopefully I'll see some improvement soon. Another urologist appointment in about 10 days - hopefully this one will have more of a clue than the last one.

Yeah me too mate ....... 👍🏼 hope they help .....

Any joy for you? Since being on the Saw Palmetto I think my symptoms have reduced for sure. I'm keen to get to the source of the problem though.

That’s brilliant news mate

I’ve been back on trimethoprim again now for nearly 2 weeks from a 28 day course...I’m not has bad as I was but still got the soreness in my perinium and burning at back of my thighs ...... I have improved though I’ve got the urologist appointments on Thursday so I’ll let you know what he says ......nice one mate

Peri how you doing my mate any better ??

Hey mate, sorry. I just saw this. I'm good. I wouldn't say I'm 100% better, but I'm mostly symptom free. I'd say I'm about 90% there. I would say I'm learning to manage the remaining 10% rather than expecting to go back to full normality. I went to yet another urologist (3 now, and 3 GPs) who said he couldn't do anything and that I should just learn to deal with it. It was totally demoralising. I'm now sure that the issue is related to a chronic over-tightening of the muscles in the pelvic floor. I was on antibiotics for months and they didn't do shit. What has helped is stretching, meditation and learning how to relax. Also limiting sitting time. There is lots of conflicting information out there, but there is a basic consensus that 95% of cases are non-bacterial. I would suggest you give the stretches a go, just to see if they help. I also think stress is a sure fire way to aggravate the issues. Check out uptown Mike on youtube. He has lots of good info and stretches.

It was really difficult for me to accept what was going on for me, but basically I've just had to change my lifestyle and build the stretches and meditation into my daily routine. I'd never mediated before and to be honest I thought it was hippy stuff, but It's completely changing the way I relate to my body and the problems I'm having. Anyway mate, wishing you good health. Peri

Hi all new update

Been for pressure and distance test for urine all ok

Bladder not retaining urine

He did Dre test said it’s firm but doesn’t feel concerned that it could be cancer he has done a psa test and should have results next week he explained they could be a little high without cancer

He said its chronic prostatitis and said to finish my 12 days left from 28 antibiotics and see how I go he said there’s nothing else they can do as they don’t know what causes it .... at least I’m getting there and my symptoms are 80% better and I can see the light at the end of the tunnel ...... he said when or if they do in 18months or so then repeat the process with the tablets ...... I let you know when I have my results

Honestly... 99.9% of urologists are pretty much clueless about this condition. This is the name of the video with the best overview of the condition I've found on youtube: Pelvic Pain in Men - Shan Morrison and the Pelvic Pain Foundation of Australia.

Ey up peri

Yeah me too I’m 90% better and am dealing with it has a disability now l get good and bad days

Stopped taking my 28 days antibiotics last Tuesday and I’ve not got any worse so fingers crossed all I’m getting now is burning down my legs and slight feeling in end of penis for a pee ....... I’ve done some stretches but not everyday ..... I’ll keep you updated next few week hope you are doing well

Hello,

Please consult your doctor time to time.

New update

Got psa test results back and it was something like 0.934 so all good was shitting it because receptionist told me when I rang up I needed to speak with a doctor ..... I had that moment where I felt dead ....... my situation has become loads manageable just a slight twinge at the prostate and feel it when sat driving to jobs and odd time when stood up my arse muscles have relaxed a lot now and I do stretches when sticking my socks on in a morning by sitting bottom of bed one leg folded over other and I sit forward which seems to take out the tightness ..... hope all you guys are ok ....... I’m here if anyone needs to talk ..... all the best

Latest update 8/4/19

Hi guys

Just to let you all know I’m 98% better I get the burning feeling a lot less now but find it in back of top of my thighs and feel the need to stretch it out this seems to make me feel I’m in control and stops me feeling stressed which makes it worse ...... I thank god I’m feeling better because it’s an horrible thing to go through I just want to spend this moment and wish all the people with either prostatitis or prostate cancer my sincere thoughts and wish you strength ...... you can do it ..... all the best

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in reply to Bradfordjoiner

Hi - I've had these issues for a long time now, destroying me. Stated June 2017 - eventually diagnosed as nerve related down there; had 6 brilliant months in remission - then back in May 2018. I'm sure it was brought on by a drinking session - I've got burning symptoms in scrotum, slightly burning urination, difficult burning defecation - very nasty, total bastard. I'm retired now, couldn't work on. I spend much of the day I front of a halogen heater which seems to help some

I think anti-biotics have made it worse - and I don't trust them and won't take them. I finally got a diagnosis of chronic prostatitis last Monday,

I asked the consultant what meds he'd recommend - and he didn't recommend any prescription meds, but a natural product called Quercetin - which I knew about and am taking anyway

So my programme as of now is Quercetin 1000 mg/day; 20mg per day of nerve med amitriptyline; CBD oil - couple of atomiser shots - and more exercise, which apparently is essential

Hope it does something, I'm getting to my wit's end

Bradfordjoiner
Bradfordjoiner
in reply to Hidden

Hi haydock

Yeah it’s a weird horrible illness it’s the burning sensation that really gets you down I find I get a chaffing feeling in both sides of my groin for some reason I agree it’s definitely nerve related and I’m sorry but I don’t know what changed for me to make it fuck off ..... it’s there more some days than others but not like it was I am back active so maybe that’s what has helped stretch it out I’m baffeled myself mate ...... I too don’t think them antibiotics do any good for our illness it’s down to nerves and muscles ..... I get really bad cramp in the back of my thighs if I fold my leg in an Aukward position ...... there’s definitely an underlying problem there also burning in my ankles if legs. Up on couch ..... could you try and be more active ???? Only a thought mate .... I’m here any time mate x I know the limits of this bastard and it’s great for someone to listen and share thoughts ...... talk anytime mate .... mean time keep your head up because it will ease again and mine proberbly will come back ........ all best haydock

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Thanks Brad

The burning in the scrotum is the worst; sometimes it feels likes it's the nerves(I was diagnosed with Scrotodynia back in July 2017 - scrotal nerve pain) - nerve pain has this weird nasty unreal feeling to the touch. I was taking nerve meds for that. And it did get better by the end of that year

But as I say I seemed to have it pushed over the edge by a drinking session in May 2018, but it doesn't feel the same; now it's more of an inflamed feeling; it's not as bad as 2017 when it got so atrocious I was going out of my mind and ended up for a short period under the care of the psychiatric services, I'd been talking topping myself .

This is different, but yeah, I think it's connected; medical profession has lumped Chronic prostatitis together with chronic pelvic pain syndrome so the consultant was saying; so prostate inflammation and nerves sound like they're bound together in the pain syndrome - doctors just don't know

I've just ordered some saw palmetto - having watched one of the youtube vids on your thread. Also diet's very important; I'd pretty well chopped alcohol, caffeine, spicy, sugary and dairy but now I've got a hopefully better idea of the issue with the Consultant's prostatis diagnosis I reckon I've got to avoid acidic foods pretty much altogether and do with mostly plant based diet. Before I was hooked on the idea that my problems were fungal, Candida, related

If I think I've got a viable plan that's a morale booster in itself of course

I walked a mile or so today round the local parks - Bournville, Brum's quite nice, and I've got to maintain it

Thanks for listening, and I do hope you keep it at bay; as for me - we'll see, hope springs eternal as they say

Bradfordjoiner
Bradfordjoiner
in reply to Hidden

Haydock

Burning sensation did my thoughts in too mate x

It has eased at minute for me so it’s easy for me to give advise ??? But serous mate keep in there ... even for a single day with a slight relief gives us strength to fight another day .....

Ey haydock

Just a check up on you mate how’s it going now are you feeling any better ....hopefully the burning has calmed down a bit .....

Hidden
Hidden
in reply to Bradfordjoiner

Hi Bradford, just seen your reply here otherwise I'd have responded sooner - little joy I'm afraid. Symptoms are about the same

In the end I had a semen test done after I insisted; and the result was a bacterial infection of the prostate was found involving a "heavy growth of enterococcus faecilis" - just to be technical about it. Supposedly Amoxocillin can kill it - but the problem is that it is very difficult for the drug to get into the prostate. Anyway I was prescribed a heavy daily dose of this antibiotic; I'm 7 days into it and I can't feel any difference so far

Hope you're well

Bradfordjoiner
Bradfordjoiner
in reply to Hidden

Oh no mate .... at least you got a diagnosis and I think your right nothing penetrates it ...... I’ve googled and googled it think someone in China injects directly in the prostate .... Im just going with flow because I’m sick of all the crap they have give me ..... mine is getting better and hope my own immune system can win over what ever it is ..... keep us posted mate .... good luck haydock

Hidden
Hidden
in reply to Bradfordjoiner

There's an outfit in New York who do direct injections as well; think I'd trust that more than China - it is a more obvious thing to do than taking sh-t loads of antibiotics orally - with loads of damaging side effects a real possibility

To be honest I think I'd have been happier without the diagnosis I struggled hard to get

How are you Bradfordjoiner? Does this get any better? I've had it since March, all tests come back ok, PSA ok, cystoscopy ok, waiting to see specialist after seeing doctors, urologists and surgeons for the last few months. Got to have ultrasound on my prostate still as they FORGOT about that! They say it's either chronic prostatitis or chronic pelvic pain, I don't have any abdominal pain though just pain on urination and penis pain which comes and goes. My stream sometimes goes 2 directions. They've stopped my antibiotics yesterday I was on doxycycline for a month which relieved it a bit. I've cut out all caffeine which helps and haven't had alcohol for months. Been jogging and doing those pelvic exercises. Just would like to have a bit of hope that this gets better as it stops me sleeping sometimes, urinating 20 times per day, 5 times in a night! Hope to hear from you.

Hi jack

Good news mate yes it does get better !! I’m 98% better now forget the antibiotics if it’s chronic prostatitis ..... think mine is to do with tight muscles in my hips and legs I was going to gym at the time mine came on so I stopped it .... I do t think it was the main problem but didn’t do me any favours lifting extra weights on my legs ... I find hot baths do the trick when it’s coming on and a lot of stretching legs out ...... I drink alcohol regular and coffee too so don’t panic about stopping your enjoyment lol try stretching your legs hips ..... your prostate is probably just a bit irritated but it will calm mate .... let me know how it goes and if you need anymore advise or to talk about it then let me know

Yeah I've packed in gym as I used to do a lot of squatting. Given up lots of things to try to figure out what causes it but it seems random. Woke up today pain free, very mild when peeing, but then later this evening got the pain again.

I was reading in America they go through extensive diagnosis - semen tests, Dna culture tests and prostatic massage tests to find the bacteria if it exists in the prostate. I've been told the NHS don't offer any of this which I don't understand. They just told me I have to cope with it basically! They have strict guidelines is the excuse they told me. If 5 to 10% of us get this thing and 2million visits to the doctor in the US regarding it each year, then surely NHS should have these extra diagnostic tests?

I've booked myself into seeing a specialist privately to do a test as the Americans I was talking to believe it's a physical thing that is never going to picked up from a urine test, and not something just in the mind. If they find something then hopefully they can administer the correct antibiotic. I'll let you know how it goes.

Update for anyone in the future reading this - feeling much better now. Thanks for the positive message you sent me when I was in a really bad way Bradfordjoiner. I had the prostatic massage test paid £350, they didn't find any infection though. It's the worst pain imaginable and makes you bleed so I don't recommend it! I'm feeling much better now though but I don't think it is due to the massage. I just started to eat everything again, drink caffeine, fruit juice, rubbish, everything that I was giving up to try to find a cause to the problem. I did lots of activities to take my mind off it. Now I barely notice any pain at all for the last week. Anyone thinking of paying the money I paid, maybe hold off and wait as they told me they only ever find infections in about 10% of people and they want you to keep going back for more. I did it as I was desperate in like 9/10 pain, but be strong hold off for a few weeks without antibiotics or anti inflammatories and your body might just heal itself, which I think mine has done. I imagine one day I'll get it bad again but I'm not worried anymore as I know it does go away eventually.

Very well put jack this is exactly what happens I’m really happy for you mate as it’s unimaginable if you never have experienced this horrible problem ........ and if you do you’ll do anything to rid it .....i honestly wouldn’t bother with the antibiotics as jack says as what happened with me it causes other problems nerve damage I suspect as is what I started to experience but stopped them ...... as jack says it does get better but it’s always on your mind that it could return ..... bit like a true life horror film ....

How are you feeling now? It’s funny I have the same symptoms and seems like antibiotics are making it worst. Please let me know

JackPl
JackPl
in reply to John12123

I’m feeling ok today bit of pain but nothing major. Popped to the hospital earlier as had appointment arranged ages ago and she gave me loads of antibiotics again doxy. I’m not taking them yet only if I go into bad pain again. Azithromycin is the one that made me go into the major pain. What have they given you?

What tablets mate ??? Cyproflaxin ??

The doctor wanted to give me ciproflaxin today is that what they gave you Bradfordjoiner? She told me there’s ofloxacin and moxifloxicin too. But I just took doxy again as I want to look up those. I’m just going to see how my body heals itself before taking anymore. If it does come back least we know we can get remission from it which is a relief.

Please don’t take any —-oxciacin same family these type of antibiotics are really aggressive and are actually flagged as a poison dangerous and prescribed last resort .. I looked them up as I felt like I was going down hill and had completely different symptoms to my chronic prostatitis I took about 4 of these and I could feel the negative side straight away my groin felt like it had a tennis ball stuck in there and wrist was aching badly ..... lymph nodes was swelled in leg badly and it gives you tendinitis ..... I honestly think you should stick to the hot baths when u feel it coming on .... I’m no doctor but the antibiotics did nothing read through all my posts jack as I uploaded them at the exact times .....

Yeah she said to me it could give pain in my Achilles as a side effect but nothing else. What I’ve learnt from this is doctors keep a lot to themselves or simply don’t know. Best to research all these antibiotics yourself. Also to have more faith it my own body’s immune system. Have you ever tried natural remedies? Quercetin? I’ve read a lot about that. Found in berries, onions, grapes, but high doses can cause kidney damage so even that has side effect!

Hahah yeah I started to take saw pelmetto but found out this can reduce your sex drive so I binned them lol .... on a serious note I’ve found my penis has better length and orgasm is more intense and controllable..... I get the sharp feeling at the back of my inner thigh weird I know but very manageable and can stretch it out .... I put mine down to a muscular problem

Yeah I read this can effect libido, cause impotence as well, but I’ve not had those issues yet and if I did I will just have a viagra! It can be very painful 1st time urinating after ejaculating sometimes. I’m not sure what’s best though less sex or more at relieving symptoms. I find a lot of sex helps but then weirdly also when I abstain it helps!

The same mate

I find I feel myself ejaculate very intense like a back fire lol it takes a while for it to appear ...... and like you say can be painful .... definitely something changed in the pipework but not deadly ... 🙏🏼

Hidden
Hidden
in reply to John12123

If antibiotics are making it worse - or kick started it - I wouldn't take them; you could have a fungal infection in the prostate; and taking antibiotics would just be fuel to the flames

Bradfordjoiner
Bradfordjoiner
in reply to Hidden

Hi haydock

Yeah I’ve really given up with the oral antibiotics ..... and yeah I know what you mean about your diagnosis as it must make you feel anxious.... but trust me your body has all it needs to fight the bacteria..... I’ve got the nipping /chaffing in back of my upper thigh / side of scrotum feeling as I’m typing ..... sex really does help me for some reason ... it’s almost like my nerve or pain receptors are being attacked ?? I’m coping and doing everything as I would normally do so I’ve had a massive recovery..... I’m all ears though from anyone to find the real cause and CURE for this pain in the arse problem .... it’s not going to kill any of us so i have relaxed a lot we’ll get there at some point .... I’m here anytime to talk or reply pls feel free to message

Hidden
Hidden
in reply to Bradfordjoiner

Thanks for your reply - I wish I had some answers

Wish I hadn't taken heed of the quacks - I think that "diagnosis" they gave me was so much bs - the burning in the scrotum is worse now and I'm getting more and more constipated

I may have this bacterial infection they're talking about but I'm sure there's an underlying fungal issue - which wasn't detected - and by taking their poxy antibiotics for a week all I've done is poured petrol on the fungal flames - and set myself back god knows how long

Never trust the quacks, they don't know what they're doing - our bodies probably do have the resources - that is if "doctors" don't wreck them

Bradfordjoiner
Bradfordjoiner
in reply to Hidden

You sound down in dumps mate ...keep your head up

Try doing the stretches it helps me control it mate !!! serious try to relax ... this really helps .... take baths before bed it does help u .... keep in there mate honesty it does start to ease ... but you worrying about an infection will make it worse the antibiotics hasn’t helped me and I think a lot of us sufferers agree .... I’m no doctor and don’t want to diagnose but I’ve done tonnes of research and not found anyone cured by the tablets ..... they killl all your good antibodies and wind you down when taken for this sort of bacteria

Hidden
Hidden
in reply to Bradfordjoiner

I'm totally p-ssed off - spent several hundred on Consultant appointments and getting a test done - like you I am very very dubious about antibiotics but when you get a hospital lab report saying bacteria enterococcus faecalis - which can be treated with Amoxicillin - you feel you have to give it a go. You don't expect to be made worse; I;ve been suspicious of the medical profession for any years; now I barely trust a word they say

I do feel this - at least with me - is about infection; but fungal not bacteria

Bradfordjoiner
Bradfordjoiner
in reply to Hidden

I totally understand haydock I would of been the same with your diagnosis you’ve tried mate and been let down .... try keep strong mate .... I’d forget about the antibiotics for a while and see how your body builds up it’s immunity?? You’ll know yourself if your getting worse .... but I very much doubt it !!! It seems to just linger but really settle down after a couple of week ..... let me know how you get on ..... plus it’s gona help a lot of people in the future understand it

Hidden
Hidden
in reply to Bradfordjoiner

It was a terrible, terrible mistake - my balls are now burning up, can't sleep at all

Bradfordjoiner
Bradfordjoiner
in reply to Hidden

Bloody hell mate you’ve got it like I had ! It’s does calm down but takes a while your prostate is inflamed and radiating to the nerves if you look it up you have all your nerves near the prostate bottom of spine

Hidden
Hidden
in reply to Bradfordjoiner

I just can't stand any more of this - thinking very dark thoughts indeed

Bradfordjoiner
Bradfordjoiner
in reply to Hidden

Keep head up mate honest there is light at end

Of tunnel mate it starts to ease and when it does each day then starts getting better .... when did it start with you ?

Hidden
Hidden
in reply to Bradfordjoiner

I've got a strange history going back to 2017 for pelvic type issues - this was made worse by taking the dreadful doxycycline - then the current round of what I now realise is chronic bacterial or fungal started in May 2018 after I drank a lot of beer one day; antibiotics are manufactured from fungi, beer's made from yeast. The thing has basically got to be about yeast whatever the hospital report says

Bradfordjoiner
Bradfordjoiner
in reply to Hidden

They diagnosed me with chronic prostatitis which basically your on your own they haven’t a clue how it starts but what I have learnt is mine is like a muscle thing and feels better if I stretch backs of my thighs and inner thighs ... take hot baths .... mine was the same haydock it started to shift after 3 months .... feels like it’s never gona shift at one point I even suffered importance which really got

Me down ...... ho est mate hang in there do stretches and see how you go .... did you go to gym ??? Someone else on here was going to and noticed it coming on ,,, I was going gym at the time mine started and put 2+2 together maybe not but seems a bit of a coincidence

Hidden
Hidden
in reply to Bradfordjoiner

I'm sure mine is caused by infection - probably both bacterial and fungal; I've never been the physical type and gone in for the gym. I have consulted an American fungal specialist and she told me that my issues are "iatrogenic" - doctor caused - I believe that.. I'm trying to beef up the probiotics in the gut, but so much damage has been done by the quacks - I should never have listened to them

Just a thought mate for the constipation try a herb tablet called colon cleanse aloe Vera ... Holland n Barrett they do work to make your stools softer yeah the forcing when having a shit puts more pressure in the centre bit .... you’ll know exactly what I mean .......us sufferers can feel our prostates ..... and they are very sensitive .......

Hi guys, just thought I'd check in to give you update. After my last posts the pain got worse and I was in a bad way, however, I gave up chocolate and I haven't had the really bad pain since. I also saw another specialist who was shocked about the doctor who was charging £350 for the massages and claiming it worked. He was telling me it was my prostate so would keep going back for more I think. I only used him to check the prostate fluid anyway which was all clear. I'm on alpha blocker now as apparently it's nothing to do with my prostate. It's my pelvic floor muscle which is too tight. Probably due to the squatting I used to do. I'm doing the gym again but just upper body no squats or deadlifts yet. I breathe out when lifting my pelvic floor muscles which then in turn relaxes the muscle when I breath in. The specialist has said this is definitely something you can cure completely. It's the thinking about it as well that screws you up because the anxiety makes you tense your pelvic floor muscles and we don't even realise it's happening. I said to him long walks help he says it's just because it takes your mind off it. Hope this gives you guys some hope.

chronicprostatitis.com/chro...

Yeah it's sometimes painful, and I know what you mean about the back fire! I think there's some improvements for me too! Sex definitely helps. When I had that massage it caused blood in the semen afterwards for a week which was scary as I was worried it wouldn't go away, never have blood in urine or semen usually but heard that can be a symptom too. And yeah as I understand it the prostate is inflamed and squeezes the urethra pipe which means it can be more sensitive and painful, also when the prostate is in pain it has no pain receptors so the pain radiates to the tip of penis which is the excruciating pain. I think it's to do with the nerves surrounding the prostate that get messed up too which in turn leads to this anxiety effect - vicious circle I got caught in. It's not the end of the world though, got to just adapt to it.

Hi again guys thought I'd say what I've done to cope with it maybe to help others. I'm 100% feeling myself again but take alpha blocker after dinner alfuzosin every day. At night I take small dose of Amitriptyline 10mg. I don't go to the toilet during the at all anymore thanks to that. I always have sex or relieve myself at night. Only sex sometimes in the morning. Sex relaxing pelvic floor more than masturbation. Stopped drinking caffeine and chocolate as chocolate contains caffeine. Any time I drank tea it would trigger it. I stopped alcohol and spicy stuff. I still eat tomatoes. I started gym up again properly like I used to same weights, squats, deadlifts everything the same. When I did this I found it helped me greatly. I take whey and creatine which when I started the creatine again that seemed to help too. I took probiotics the ones you get in boots with millions of good bacteria for couple of months, 2 boxes of them. I think the antibiotics killed a lot. I breathe to drop the pelvic floor (drop the balls) a few times during the day. I don't get burning when I go to the toilet anymore at all. Stream is perfect too. Ejactulation doesn't hurt at all anymore, normal. Sex is fine too once per day relieving myself at night. I do lunges before doing the gym and the stretches after the gym and before I go to bed.

I try to avoid thinking about it, and get into the mindset of not worrying about it. I thought I'd tell you guys how I cope with it to make myself feel 100% again and maybe this will help some people out there, who knows. I don't know which of these things helps, maybe a combination of all them together.

Thanks for helping me and hope this helps you all.

Nice one jack really glad for you mate

I’ve also got better , I sometimes feel a bit of pressure in my inner core ( arou d my prostate but I seem to be able to control it By not panicking and relaxing I do notice I get the urge to wee more often at this time of year for soMe reason and preying It doesn’t come back ..... it’s been nearly a year now these. Symptoms started originally ........ hope everyone’s ok and have a good one

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