Cnv: Been diagnosed with cnv and a am having... - Macular Society

Macular Society

5,115 members2,531 posts

Cnv

Jharwood18 profile image
19 Replies

Been diagnosed with cnv and a am having monthly injections, does anyone know why I have to have an angio of the eye

Written by
Jharwood18 profile image
Jharwood18
To view profiles and participate in discussions please or .
Read more about...
19 Replies
Ayayay80 profile image
Ayayay80

Hi jharwood18

Usually an angiogram is done even before treatment starts if a swelling is found on the retina. This is part of the normal routine eye examination. A fluorescent dye is injected into a vein in the arm, which then shows if there is any blood or fluid leaking onto the retina and macula and to what extent. It is a straightforward, painless procedure unless you have a particular phobia of needles. Has your treatment already started?

Good luck.

Jharwood18 profile image
Jharwood18 in reply to Ayayay80

Yes I have just had my second injection of eylea and they know it bleeding and I had a big improvement after my first injection

Mine is usaually preceded by a plain photograph not a fluorescene angiogram and always with OCT which detects changes down to 1 micron.

The OCT is so detailed that a slit lamp examination is rarely carried out.

tallyho profile image
tallyho in reply to

I have to disagree the slit lamp is used to check the anterior and posterior parts of the eye that OCT cannot. The OCT is for the inside only yet the slit lamp can look in a detailed way at the cornea, iris etc. My cysts on my eye ball were detected because of the slit lamp. I have a slit lamp test every time I attend clinic to check the health of the outside of my eyes as well as the inside.

in reply to tallyho

Mine is a different condition, cystoid macular oedema.

Injections have been astonishing I went from blind to having vision, that was 7yrs ago. I had No76 three days ago.

tallyho profile image
tallyho in reply to

Ooh we have the same condition mine was caused by diabetes ( Dmo) is it in one eye or both?

Jharwood18 profile image
Jharwood18 in reply to tallyho

It's in both eyes

in reply to tallyho

No, I suffered eye cancer. The radiation damage from a ruthenium plaque placed behind my eye in 2006 was responsible.

Jharwood18 profile image
Jharwood18 in reply to tallyho

Both eyes

Ceri2 profile image
Ceri2

Hi, sometimes in conditions such as myopic CNV, the leaks don’t show up very well on OCT scans, so it can also be another way of checking if fluid is still leaking. Good luck with your injections.

Jharwood18 profile image
Jharwood18 in reply to Ceri2

Thank you I found the second lot of injections very painfull

in reply to Jharwood18

Was it the inj or after that was painful?

If the inj tell them you need more anaesthetic and a lighter touch.

If after inj this is usually sensitivity to the iodine or very dry eye ( if they've taken too long). Tell them you need lots of rinsing and ask about soothing drops (my gp prescribes them for me now) and they made a huge difference.

I did find too that inj in top of eye hurt more than in lower part ( maybe anaesthetic pools at bottom so you get more numb there?).

Anyway, tell your clinic how the last inj was so they can help make the next one better.

Jharwood18 profile image
Jharwood18

I've had scans and they can see the leaks, I'm wondering if I'm having this other test to see if the injections are working

tallyho profile image
tallyho

A Fluorescein angiography is primarily used to tell how well the circulation is doing in your eyes. When the dye is put through your vein a whole series of photos are taken so that the dye can be tracked and seen how well it flows. I had an FA after many injections ( 40) and it showed I had ischemia and therefore it was no longer worth injecting as my vessels were blocked basically. To have an FA now means they can check the circulation and have a baseline to assess how your vessels are doing in the future and asses if there has been any changes. If you are offered one have it done mine cost £500 when I had it done privately.

Jharwood18 profile image
Jharwood18 in reply to tallyho

Ok thanks I will im just worried about having one done

in reply to Jharwood18

Don't worry, it's a simple procedure. Just an inj in your arm then a quick series of photos of the eye. There will be a nurse there the whole time who should explain what's happening. Your vision might be colour tinged after for the rest of the day (I think pink or yellow, can't remember ).

Best wishes going forward x

Jharwood18 profile image
Jharwood18 in reply to

Thank yoy x

in reply to Jharwood18

I really don’t think you need worry about it. I have had up to 5 a year almost every year since 1978.

The amusing thing is that the dye is yellow and and everything goes yellow, i do mean everything. 😃 It lasts for a few hours. I used to want the green version to frighten the office but that it is generally reserved for children.

Macular_1 profile image
Macular_1

Hello J Harwood,

A fluorescein angiogram is often given periodically as part of the monitoring process when someone is being treated for wet macular degeneration.

It would not usually be done every month. It would be done when you are first diagnosed and then usually after the first 3 injections.

After that, it would be at the discretion of your hospital ophthalmologist.

Best wishes

Macular Society

You may also like...

Myopic CNV Success Stories?

heavily on being able to use my eyes, and I have young children. Does anyone have any success...

Sport and myopic cnv

think I have read something on here about sport but I can’t seem to find it again. I have been...

Eylea injections as a maintenance therapy for Myopic CNV

Hi all, I have been having Lucentis injection for myopic CNV that I developed in May, I got 3 so...

Myopic CNV: Workout, Diet and travel habits

years old, freshly diagnosed with my second eye having CNV, and my first eye diagnosed 3 years...

46 with CNV and children

have had cNV in my right eye have had three injections of Eylea, there has been some stabilisation,...