Hii everyone I'm 22 years old and just got diagnosed with mCNV (right eye). As of now my central and a part of peripheral vision is blurry and I see wavy lines and text too. My doctor has told me to wait a month and see where this is going since they can't be sure if I need the injections just yet. I'm scared and idk what to do cause there isn't much that support this eye condition and that makes me feel more hopeless day after day. If you guys has any knowledge and been through with this before please tell me about what should I do or not do?... Thanks for reading.
Have a nice day. ☺️
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Aditya11
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I have this Aditya. It’s horrible and depressing and I have had 3 sets of injections from time to time which stopped it getting worse; they do not bring eyesight back to 100%, but close. I first got it when I was 40. Now I am 48 and it is a constant personal monitoring process - but you will be ok. It’s amazing what doctors can do now x
Thanks for replying I hope you're doing great now and again it's really assuring to know that it can be fixed and get my eyesight back or close to normal.. Thanks again and have a wonderful day ahead 💓
I have mCNV in my right eye. It was diagnosed in 2011 at 53& at that time the regional commissioners wouldn't treat under 65s with CNV! I went private after months of waiting & never regained the central vision in that eye as it has fibrosed. BUT this was after a long history of blips in that eye which resolved themselves in a matter of weeks, so don't get down.
Follow the advice from Carol & join the online support group. I never knew of these groups until I joined Health Unlocked. You don't need to be isolated.
I see I'm sorry to hear that but I'm also glad that you're doing fine now hopefully it'll never comeback so you won't have to worry and thanks for such comforting words I really appreciate it 💗.. I pray for your well-being and have a great day.
If you look at my bio you'll see more detail. All this yet I still see good enough to drive & I've recently been able to thread a large eye needle on the first go without an aid. Low light & changes in light are my main issues. I've known since ages of 5 that I might lose my sight, but here I am. Make sure you get that support.
I'm happy to hear that you're doing great and I truly wish that it keeps improving and also thanks for the support I truly appreciate it and hope I get well too :'(...Thanks you again
In addition to our myopic MD support group, we do have a Working Age and Young people’s section (WAYP), which can also be a useful source of both information and peer support:
Just to make you aware, the impact of the diagnosis of any eye condition, and indeed any stage in the process, is generally compared to experiencing bereavement. Individuals frequently go through very similar feelings and responses and in no set order. We do have a free telephone counselling service:
Referral is either via us on the helpline, or via the form on the website. Link above.
It takes a counsellor a maximum of 10 working days to make the initial call. Our counsellors are fully trained and some have sight loss themselves. Sessions consist of approximately 6 of around 45-50 minutes each.
Sorry to see you here, but at least there is support. Your case sounds a lot like mine. I was told to wait for a month and our amazing brains can get uset to much, so I thought things were improving when in reality I was a few days from going blind on the affected eye 😳 I had not been instructed to do a regular amsler chart check… Do that. And I would get a second opinion and push for injection. I have a very scarred fovea which could have been easily avoided with an early injection.
You’ll be OK - but it can be super scary, this disease, feel free to reach out. I am older (47) but still feel too young for this crap 😏
I see that really is scary my doctor has told me to wait for a month (till 10-11dec) so let's see what he'll say. Rn sometimes my eye sight is close to being normal sometimes it feels worse also it happens more when I'm eating random unhealthy things or it might be just my mind that is playing tricks on me...and yeah I too feel too young for this stuff but ofcourse you're younger haha 😆 thanks for your kind words tho I really appreciate it
Hi I went through this 4 years ago. I didn’t know a lot when it happened and even though I’ve always been short sighted no one mentioned this to me. When it happened I saw a lot of wavy lines - the door frame was always a good barometer and I had blurred vision too. These symptoms were because of the swelling and blood inside the eye. When the blood was absorbed (a few months later) the blurriness was less and as swelling went down the wavy lines reduced (they didn’t disappear but not quite as crazy as this time). I had 14 injections during 24 months…not the most pleasant experience but not that bad. I do have scarring just off to the right of my central vision and initially I read less lines on the eye chart. But our brains are clever and at my last eye exam I was only a few letters off 20/20. I work on computers all day and I manage well…do use computer glasses sometimes. Hope this helps.
I see good to know you're recovering and I hope you get back to having perfect vision soon. Also was it in your both eyes or just one? And about wavy vision were you seeing wavy in general or when you just looked through the affected eye? Well it's in my right eye and I see wavy only when I look through it by closing my left one and also objects appears small through it for some reason :(..I will be going back to my doctor next week let's see what he says I just hope it's not as bad 😞. Also thank you for sharing it helped..I can beat this thing I'm sure of it 😤
Hey. Myopic cnv here. Diagnosed at 22. I've had it for a year and a half now. It developed in both eyes with 1 bleed each and many spots in my left eye. I usually end up getting about a spot every month or so and go in for an eyelea injection as soon as the spot appears. Most of the spots eventually receded after the injections. My vision has only returned to 20/40 in both eyes. I live in a constant state of anxiety that a new spot of a bleed will occur. I hope you have a better experience and outcome. The anxiety of it all is almost worse than the cnv.
Please ignore my reply to your first post. I now understand that what you meant by a "spot" was a bleed. Although the anti VEGF injection aims to slow the development of new capillaries in the eye, it may not be 100% effective at preventing a bleed. If you are concerned, please go to A&E at your eye hospital.
I spoke with my retina specialist who said the medication should still be active and I should wait and monitor for a few days. I am having a very difficult time functioning right now.
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