Hi all,
I think I have read something on here about sport but I can’t seem to find it again. I have been diagnosed with myopic cnv and wondered if there was any advice about what sport I can do and any I should avoid? My consultant (who has been great) was a bit hesitant with his answer and said as long as there isn’t a blow to the head I should be ok. I have no reason to doubt him but just wondered what others have been told.
Thank you!
Hello, I have myopic cnv and your post reminded me that I was hit directly in the eye by a tennis ball coming fast and hard. This happened over 20 years ago and now I wonder if it (along with high myopia) anything to do with developing Cnv?
A article I found interesting is attached. I’m not an expert…just a patient so take it for what it’s worth!
ncbi.nlm.nih.gov/pmc/articl... your post reminded me that
Thank you for your reply. I will have a read through the article. This forum is so supportive. I hope you are well.
My understanding form right back to when I was first diagnosed over 30 years ago, is that the effect of a blow is pretty much immediate, as we are at far greater risk of retinal detachment.
The doctor I first saw recommended specifically against playing squash (it's the slamming into the walls) but that was as much because we were both young women who played as anything.
Hello... I don't know if these posts about myopic cnv are of help:
healthunlocked.com/maculars...
Hello!I think one of the posts you saw might have been mine! I was diagnosed in Easter this year with myopic Cnv in left eye. I do karate- full contact (but refrain from direct blows to the head and fighting) and horse riding -but try not to fall off and mainly do it in a riding school now and also running. It’s important to do things you enjoy and continue this I think. The only advice my care team have said is no blows to the head and no bungee jumping. What do you enjoy doing? How are you after the first injection?
Hi Marathongirl24, yes now you mention it it may have been your post. Thanks for replying. That’s great to hear you are still enjoying activities and have had similar advice. I really enjoy rowing, running, yoga and HIIT workouts so I think I should be ok…I hope.
First injection went well and had a second a few weeks ago. The injection team have been great. Still a bit of distortion in my right eye and may have some scarring. I have a third injection booked so I really hope it continues to improve. How are you doing?
Hello! Yes I expected to have my 3rd injection this week but apparently it all looks good so they didn't feel I needed one. The only reason that I would have one would be because I'm going to be out of the country for 2.5 weeks! However on balance I think if it's not clinically indicated then I'd prefer not to risk disturbing things in there! This was my consultant's view as well. This is also inkeeping with recent research. From reading some of the systematic reviews and recent studies a lot of practice has moved now to doing prn (as needed) injections for myopic cnv rather than the 3 x 1 month and a recent study I read cited that 47% only needed one injection and then another 40 something per cent only needed two. These were all the injections they needed to have which is great news. In terms of how I'm doing, things are much better. I am back to work and have 20/20 vision in my left eye (the eye with myopic CNV) and 6/4 (better than 20/20) vision in my right eye (obviously corrected vision with contact lenses!) The left eye still has some small distortion in the centre and I can see a little smudge in the centre but most of the time I really don't notice it. The eyes cancel it out. I also get some flashing sometimes moving from a light to dark room, but this has all been checked too and I think it's just one of those things. I think someone mentioned before it was worse first thing in the morning before the eyes settle and if dehydrated. How are things with you?
Hello Anagramme,
We have a myopic macular degeneration support group. This may be a good way of sharing information for you:
macularsociety.org/support/...
Kind regards,
Macular Society Advice and Information Service
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