Does anyone else suffer pleurisy with their lupus and what pain killers do u take for it. Thank you :)

[lisadavie]

[scottty]

I was in hospital for 4 days with pleurisy go the docs to get checked out take care

[lisadavie in reply to scottty]

Thanks for your reply, sorry to hear you was hospitalised with your pleurisy TBH the doctors are not much help the first couple of times i had it they gave me an ECG cause they thought it was my heart

[jennywren444]

Hey, I have constant pleuritic pain and have done for the last 3 years since my lupus started, in fact, it was the first symptom I had weirdly. I take morpheine, celebrex and pregabalin pain killer wise but pleurisy is notoriously hard to get rid of. The pregabalin is handy as it works on neuropathic pain but you have to take it long term to have much of an effect. Whenever I get ill it's the first thing to flare up. I started on azathioprine about a year ago and its helped loads so I can actually breathe and walk up a flight if stairs without being in agony but the pain has never gone and unfortunately probably won't!

Take care and good luck, don't take any chances if you're worried about your breathing x

[lisadavie in reply to jennywren444]

lisadavie 0 minutes agoDelete

Wow thats a long time, i seem lucky compared to what you are going thru, i tend to get bouts of it and is not constantly there. Sorry to here you have to live every day like this i usually take cocodomol and nurofen which seems to help and maybe a naproxen if needed

Reply to this

[Djsmall]

I was given colcrys, worled amazing , expensive but it works

[Shann07]

Hi I also have suffered pleurisy and like jennywren i now have chronic pleuritic pain. I cant believe someone else suffers this pain like i do its very debilitating. I had quite a bad attack of pleurisy and was in hosp for 3 weeks as i couldnt breathe so i was put on oxygen, but i never got rid of the constant pain and breathlessness from it? Just to run a hand over the top of my back is agony, but its definately good to know that someone else suffers long term effects like i do, take care x.

[jennywren444]

Oh my lord, I thought I was the only person that had suffered with it for so long! I'm really really sorry that you do too but it's so good to know I'm not alone. It can be awful, my back is also in agony from it and sometimes in a morning or if I've eaten lots it also affects my tummy under my ribs. It can be really hard. I'm only 28 and have 2 young children (pregnancy triggered lupus) so can be tricky sometimes. Take care of yourself, hopefully things will improve one day! X

[jennywren444]

Forgot to say, mine also started as pleurisy from fluid on lungs, I had scepticemia and was on intensive care fighting for my life for a while and whilst there, one lung totaly collapsed and the other partially, then I had pleurisy for the duration of hospital stay and have been left with this as part of my lupus. At least the azathioprine and other medication seems to dull it a little. X

[lupienproud]

I have it today. Cough, back and chest pains, shortness of breath, upset stomach, pain/swelling in the joints of my thumbs and finger which come and go. If it gets any worse I will take myself down to A&E (if I develop phlegm and/or fever), but otherwise I will try to manage it myself by staying warm, taking some cough medicine to ease the scratchy throat and waiting until I feel better.

[field]

I have suffered with inflammatory pleurisy since I developed lupus. It is chronic with me. I have constant pain in my diaphragm and get breathless on exertion. I have been given inhalers but they don't work because I do not have asthma. I try to manage it by walking at a slower pace when out. When I am in a flare I cannot walk any distance at all I just have to rest until it gets better.

[lisadavie]

I can cope with my lupus pain is the pleurisy pain that gets me down thanks for all your replies, im new to this site so it really helps knowing im not the only one who suffers

[nicky1234]

i only had it once proper, every so offen i get twinges and think oh no not again.

i could not talk and breath at the same time, i went to the hosi and she gave me anti-biotitics.

but i did not believe it to be pluresy so went home and never took the tabs. it took about a week to recover. i found laying on the side where the pain was helped.

hope you feel better soon.

[scottty]

Hiya just me again that's me with pleurisy at hospital last night I got go back to my docs on weds morning if I have any problem I to go urgent care center it's linked to my docs what helps xx how's you doing