Doe anyone else suffer from irritable bowel with lupus? My specialist said that it had nothing to do with it.

[lindabrown]

[luupysue]

I have had IBS most of my life and only recently found out I have lupus, I also have raynards, sygreons, and the list goes on, I think they are all linked but dont know for definate

[kittykat68 in reply to luupysue]

hi lupysue

i have to lol the say its not connected then it is but i know chrones is as my friends mum died of that, the drs normally say its my meds or too much acid in my body, so like u i dont actually know if it is now ibs or a symptom is that how u r

[Thaddeus]

When my health finally let go IBS was very much a part of the picture. Though the name was new and it inevitably attracted scorn and hysteria in equal amounts. ~ I found that live yoghurt was the answer, that and Lacto-fermented veg.

I have suffered with my tendons and joints for most of my life, my cholesterol is off the scale, I fully believe that one day we will see a bigger picture of how these conditions are related. But for now we have to deal with a lot of problems in isolation.

A rather charming old doctor once told me that it had been know for many many years that every single sufferer of early onset rheumatoid aslo had raised cholesterol, though the common factor had not been identified.

[traceyd]

as like you all i'v have sufferd with i b s all my life even when i was a baby the family g-p didn't seem to be worried so you just learn to live with it..i have tryed to swopping my diet add thing's then take them away it seem's to work ( some times i cut wheat out then dairy ask your g-p for a skin test with a dietishon/ allergy consultant thay might give some light on your situation ) best of luckx

[lindabrown in reply to traceyd]

Thanks for your help. Ive been thinking about cutting out some things. It seems worse if I have dairy products and chocolate. I love a bar of chocolate too! Lupus is bad enough without making me stop chocolate.xx

[tiredmum]

Hi ya,

i have had IBS since I was a child. I find dairy makes it much worse, so does acidic, spicy and fatty food. Too much wheat flares it up too. Sometimes though when the lupus is really bad all you want is a slice of toast ! And obviously being a chocoholic doesn't help either. And then the steroids play havoc with my stomach too. Its just a viscious circle.

I now have soya milk yoghurts, and icecream - which are surprisingly nice, also reduce the amount of wheat. Totally avoid spicy and fatty food.

From what I have read though an awful lot of people seem to suffer from IBS along with Lupus.

Its just about getting the right balance and treating yourself on a good day!!!

[chaimee in reply to tiredmum]

Only just been diagnosed, and have suffered I believe for quite a few years with Lupas. think the doc got fed up with me going backwards and forwards with so many different ailments,I now know why . I B S was one of my symptoms, and the last two years have been stuffing chocolate into me for comfort , was this my body wanting help?

[Thaddeus]

Hello again

Quite correct Tiredmum ~Balance and management is everything.

On the subject of Chocolate, I spoke to my Cholesterol specialist at Guys about it and he is all in favour of a few squares of good quality dark chocolate a day. But declined to set up a clinical trial.

Dr. Hunt at St Thomas' was also in favour of the stuff, when I gave her some montizuma dark chocolate buttons.

[lucyloo023]

Hi Linda. I've had ibs for years but only diagnosed recently with sle but they think it may have been there for a long time do the two could be related. It's worse at minute but I am in the middle of a flare just now plus the steroids and immunosuppressants won't be helping. I just avoid dairy and if really bad bread, pasta and rice. Alcohol also seems to make it worse but I do have dark chocolate. Refuse to deny myself everything!

Take care. Sharon x

[Shadows-walker]

Hi just call me windy miller , I have awrful problems with my bowel nearly hospitalised 2 weeks ago , I have undediferated conective tissue desease , sjorgrens , raynaulds , fibro , cronic fatigue at the moment consultant rhummie says I don't have SLE , GP s are treating me as if I have ,I just go with it now they use the same drugs to treat me whether it is lupus or not ,I think it is ,but you can't tell a god how to run the world take care try not to worry it's kinder to yourself x

[Whathappned]

Hi Linda

I don't have a diagnosis but I certainly have the symptoms. I've read on here lots of similar questions and they always get a lot of replies. So your specialist should have a think about his answer lolx