Does anyone have problems with their eyes? I've ... - LUPUS UK

LUPUS UK

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Does anyone have problems with their eyes? I've had lupus and APS for over 30 years and never had any issues with my eyes till now.

Delila profile image
7 Replies

Woke up just before Christmas with a slight blurring in my left eye which didn't go away. Ended up being diagnosed with choroidal neovascular membrane which is linked to wet macular degeneration. Eye specialist thinks this is as a result of lupus but at present my rheumatologist is unsure????

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Delila profile image
Delila
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letslaugh63 profile image
letslaugh63

i havn't been diagnosed yet but just starting test for lupus 1 of my symptons is blurriness;comes and goes like the wind changing can last seconds , minutes or longer.lupus can most definetly affect eyes.search internet lupus eyes

Barb4beachnit profile image
Barb4beachnit in reply toletslaugh63

I just returned from Mayo clinic in Jacksonville, FL where I saw a Rheumatologist . He quickly tested and said I had Fibromyologia. I also have a an aneurism in my brain. I have an appointment with a neurosurgeon on the 15th. That has become main concern, but also APS. I will call tomorrow to try and find out what to expect so I know how many days to book a motel. He wants to set me up with an APS doc closer to where I live. I said I would keep you updated. My opinion is that I should never have left.

Delila profile image
Delila

Thanks for your reply, I know it can affect eyes as I've experienced the blurriness you mention but as it comes and goes and nothing ever noticed by my optician I've never been concerned. However this is very different and in my 30 years of suffering from lupus have never had anything like this.

letslaugh63 profile image
letslaugh63

sorry i'm new to this of course you knew about eyes sorry

Delila profile image
Delila

Don't be sorry we all learn from each other and the symptoms of this horrible illness are so very complex.

MaximumRide profile image
MaximumRide

I also have problems with my eyes. My right eye tries to close by itself and vision is blurry as well as I feel really ill afterwards!! I will be bringing this up with my rheumatologist :)

Nightjar profile image
Nightjar

Perhaps you should ask to be referred to a neurologist as well. I hope you get some answers. xx

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