Experiences with

Age-related macular degeneration (AMD)

  • Age-related macular degeneration (AMD) is a common condition that affects the middle part of your vision. It usually first affects people in their 50s and 60s.
  • It doesn't cause total blindness. But it can make everyday activities like reading and recognising faces difficult.
  • Without treatment, your vision may get worse. This can happen gradually over several years ("dry AMD"), or quickly over a few weeks or months ("wet AMD").
  • The exact cause is unknown. It's been linked to smoking, high blood pressure, being overweight and having a family history of AMD.

HealthUnlocked contains information from NHS Digital, licensed under the current version of the Open Government Licence

32,480 public posts

Interesting article: In-office gene therapy for wet age-related macular degeneration is coming

Data presented today shows that six patients with wet age-related macular degeneration (AMD) have, so far, gone at least six months without the need for continued injections to control a disease that typically requires treatment every four to six weeks.
in Macular Society

New treatment for wet AMD available in Scotland

A new treatment for wet age-related macular degeneration (AMD), which would require fewer injections, has been approved for NHS patients in Scotland today.
in Macular Society

Macular Society Virtual Clinic

The webinars will be aimed at patients with age-related macular degeneration (AMD) and their family or carers and will cover a range of topics, including nutrition and eye health and Charles Bonnet Syndrome.
in Macular Society
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First in series of webinars for different types of macular disease

Myopic macular degeneration is also known as Myopic maculopathy and causes similar symptoms to age-related macular degeneration (AMD), but usually at a younger age.
in Macular Society

Webinar to explore the latest in research and treatment for DMO

It results in a condition very similar to wet age-related macular degeneration (AMD). Ranjan Rajendram, a consultant ophthalmologist from Moorfields Eye Hospital, will join the Virtual Clinic on Thursday 28 January to discuss the latest in treatment and research into the condition.
in Macular Society

BCD

Hi, I have been recently diagnosed with Bietti Crystalline Dystrophy. I have been getting intravenous avastin in both eyes for wet macular degeneration since 11 years (when needed). But my diagnosis is relatively recent. I personally have neither met or known anyone with BCD and wanted to see if anyone
in Macular Society

Chalazion after injection - how long should we leave it after shot before using hot compresses?

Hi guys, I had my lucentis shot last Tuesday (and a very scratchy shot it was too - my worst in two years). I have a repeated chalazion that comes up on the lid of that eye, and it's in the process of flaring now. Has anyone been given guidance on how long we should leave using microwavable compresses
in Macular Society

Macular degeneration

I have been receiving injection in my eye since September 2019, for what I thought was a gramuloma in the macula.. I asked the nurse today what I have a she said macular degeneration. The eye dr never mentioned this to me, she just kept telling me injection were for fluid or odema ... I am worried
in Macular Society

I just joined today

So happy I found this place! It is a treasure trove of information. I am an 83-year-old woman from California with macular degeneration. It has been very slowly progressing for about 10 years, but recently one eye progressed to the wet form. I have had two Avastin injections and am due for a third next
in Macular Society

Join our Free AMD Conference - today!!

Macular Degeneration (AMD) session 12.45 Welcome to the session John Dunston and Cathy Yelf 1.05 Message from our sponsor OXSIGHT 1.10 Improving care for patients with AMD - how does your health data help?
in Macular Society

Macular Society Virtual Annual Conference

With tailored sessions for those with age-related macular degeneration (AMD) and another for those with inherited retinal diseases and of working age, this virtual conference has something for everyone. It’s free and no need to register.
in Macular Society

SHOCKED

Hi just an update on my last post I was diagnosed with wet macular and a macular pucker I have had 3 Lucentis injections which havnt worked and my consultant suggested a Ozurdex implant I decided to go privately and get another opinion and was told yesterday that I do not have macular degeneration just
in Macular Society

OZURDEX

Hi had my second injection 3 weeks ago and my consultant doesn’t think it’s going to work for me and has suggested trying Ozurdex Implant anybody had this and what does it entail is it like getting the Lucentis injections or different more painful etc.
in Macular Society

Learning about Macular Conditions

Understanding AMD: https://healthunlocked.com/programs/age-related-macular-degeneration Treatment for AMD: https://healthunlocked.com/programs/treatment-for-macular-degeneration We hope you like them. Feel free to share these with your friends and family to help them understand too.
in Macular Society

Lucentis injections

Hi everyone just had my 4th injection today and feeling really well after this latest one. Just a thought, as nearly always takes me a good 24 hours normally to feel brighter after them. Just wondering if this is due to build up, getting used to them or struck lucky with my injector today? Would love
in Macular Society

vision drops after injection

Does anyone know why vision drops after injection? Both my eyes got injected yesterday. Left eye vision is okay but right eye vision drops significantly. Should I contact the doctor? To be precise, I am sure my vision is dropped, not blurred. Btw, what I have is myopia related wet macular degeneration
in Macular Society

Eylea injections and opticians

I have macular oedema and I am having Eyelea injections. I feel my eyesight would be improved if I went to the opticians for some new glasses. Has anyone done this as I believe although it has not been suggested it would help me. I have been having injections for over a year and my opticians appointment
in Macular Society

Brittle eyelashes

So this is a strange question, just had my third Lucentis injection and find for days after that my eyelashes on the injected eye always go very stiff and feel brittle. Does anyone else find this? Thanks
in Macular Society

? anyone know about this?

Basel, 27 May 2020 - Roche (SIX: RO, ROG; OTCQX: RHHBY) today announced positive topline results from the phase III Archway study, evaluating Port Delivery System with ranibizumab (PDS) in people living with neovascular or “wet” age-related macular degeneration (nAMD). PDS is a permanent refillable
in Macular Society

What assistance can my Mum get?

My fiercely independent 85-year-old Mum has deteriorating eyesight due to Wet Age-Related Macular Degeneration. Until recently she was a very active walker, knitter/crafter, involved in church etc. She's had regular injections in both eyes for > 18 months now but her vision continues to deteriorate.
in Macular Society
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