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Macular Disease Conference 2021 9.15am Saturday 11th September.

The event will include tailored sessions for people with age-related macular degeneration (AMD), and for those with inherited retinal diseases who are still of working age.
The event will include tailored sessions for people with age-related macular degeneration (AMD), and for those with inherited retinal diseases who are still of working age.
Kelly_macularsociety profile image
Kelly_macularsociety
Administratorin Macular Society

Interesting update for us from American Macular!

Age-Related Macular Degeneration (AMD): Risk Reduction and Improved Treatment Outcomes for Diagnosed People and Those at Risk Led by Dr. David M. Brown, world-renowned thought leader on the research and treatments for AMD.
Age-Related Macular Degeneration (AMD): Risk Reduction and Improved Treatment Outcomes for Diagnosed People and Those at Risk Led by Dr. David M. Brown, world-renowned thought leader on the research and treatments for AMD.
Annsandra13 profile image
Annsandra13
in Macular Society

Purchase of B12 for self administration

Would anyone have details to purchase B12 for self administration via IM injection I am in the UK I am a retired qualified nurse so capable and competent to administer my own injections thanks
Would anyone have details to purchase B12 for self administration via IM injection I am in the UK I am a retired qualified nurse so capable and competent to administer my own injections thanks
Katrina999666 profile image
Katrina999666
in Pernicious Anaemia Society
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Macular Disease Conference 2021

A chance to put your questions to leading experts in live Q&As Tailored sessions for people with age-related macular degeneration (AMD), and for those with inherited retinal diseases and of working age. NEW session for those newly diagnosed, friends and family.
A chance to put your questions to leading experts in live Q&As Tailored sessions for people with age-related macular degeneration (AMD), and for those with inherited retinal diseases and of working age. NEW session for those newly diagnosed, friends and family.
Kelly_macularsociety profile image
Kelly_macularsociety
Partnerin Macular Society

Peripapillary CNV

After 18 months without an Eylea injection, I was given an appointment for treatment. The OCT showed a leak further out from the fovea than the one I had had before, which itself was some way from the fovea. I had a second OCT (which I've not seen) taken of the optic disc. In a letter that came after
After 18 months without an Eylea injection, I was given an appointment for treatment. The OCT showed a leak further out from the fovea than the one I had had before, which itself was some way from the fovea. I had a second OCT (which I've not seen) taken of the optic disc. In a letter that came after
ironbrain profile image
ironbrain
in Macular Society

Black spots upon waking

Hi.. I have this problem also. It started around 6 months ago. Woke up one morning to see 2 black dots upon the white wall which disappeared when blinking. I contacted my gp and have had 2 eye tests including dilated pupil and both say eye health is good. I am now suffering with sleep and hallucinations
Hi.. I have this problem also. It started around 6 months ago. Woke up one morning to see 2 black dots upon the white wall which disappeared when blinking. I contacted my gp and have had 2 eye tests including dilated pupil and both say eye health is good. I am now suffering with sleep and hallucinations
Giro26 profile image
Giro26
in Macular Society

Wet macular degeneration, does it dry up for long?

I’m heading to my second Eylea injections shortly and was wondering how long the Eylea can dry it up for? I think my vision is improved a little so I’m wondering if there is a chance I won’t need further injections after the loading dose. Is it feasible to hope for this as an outcome?
I’m heading to my second Eylea injections shortly and was wondering how long the Eylea can dry it up for? I think my vision is improved a little so I’m wondering if there is a chance I won’t need further injections after the loading dose. Is it feasible to hope for this as an outcome?
BlurryArtist profile image
BlurryArtist
in Macular Society

Virtual Clinic 16th March 2021

This evening's virtual clinic is at 7pm, this virtual clinic will be focused on age-related macular degeneration. (AMD) Martin McKibbin from the Leeds Teaching Hospitals will update on the national AMD Audit.
This evening's virtual clinic is at 7pm, this virtual clinic will be focused on age-related macular degeneration. (AMD) Martin McKibbin from the Leeds Teaching Hospitals will update on the national AMD Audit.
Kelly_macularsociety profile image
Kelly_macularsociety
Partnerin Macular Society

PCa and macular degeneration

I suspect I'm not the only one here with Stage 4 PCa and beginning age-related macular degeneration (AMD). Most ophthalmologists recommend that folks with AMD take the AREDS2 supplements, which were shown in NIH trials to slow AMD progression in some cases.
I suspect I'm not the only one here with Stage 4 PCa and beginning age-related macular degeneration (AMD). Most ophthalmologists recommend that folks with AMD take the AREDS2 supplements, which were shown in NIH trials to slow AMD progression in some cases.
Gearhead profile image
Gearhead
in Advanced Prostate Cancer

Timeframe for antivegf injections…

Hello me again! Sorry this is all really new to me. I ve just a week ago had a macula bleed with suspected myopic maculopathy and my health board is slow to send an urgent appt despite me being an NHS worker and being off work with it. They have classed me as needing an appt in a few weeks but I m aware
Hello me again! Sorry this is all really new to me. I ve just a week ago had a macula bleed with suspected myopic maculopathy and my health board is slow to send an urgent appt despite me being an NHS worker and being off work with it. They have classed me as needing an appt in a few weeks but I m aware
Marathongirl24 profile image
Marathongirl24
in Macular Society

Interesting article: In-office gene therapy for wet age-related macular degeneration is coming

Data presented today shows that six patients with wet age-related macular degeneration (AMD) have, so far, gone at least six months without the need for continued injections to control a disease that typically requires treatment every four to six weeks.
Data presented today shows that six patients with wet age-related macular degeneration (AMD) have, so far, gone at least six months without the need for continued injections to control a disease that typically requires treatment every four to six weeks.
Edman777 profile image
Edman777
in Macular Society

Ozurdex implant.

Hello everyone after being diagnosed 3 years ago (49 now) with macular oedema and CRVO ive had laser, injections and just received my 2nd steroid implant last Friday, it wasn’t my normal doctor of which I’m not happy about as I went through a totally different procedure and he was very rough with me
Hello everyone after being diagnosed 3 years ago (49 now) with macular oedema and CRVO ive had laser, injections and just received my 2nd steroid implant last Friday, it wasn’t my normal doctor of which I’m not happy about as I went through a totally different procedure and he was very rough with me
sarahc333 profile image
sarahc333
in Macular Society

PA and proctitis

My mom was diagnosed with PA awhile back and has struggled with proctitis for some time. Is there any connection? Anyone else experience this? Did B12 injections help?
My mom was diagnosed with PA awhile back and has struggled with proctitis for some time. Is there any connection? Anyone else experience this? Did B12 injections help?
Ctadds1 profile image
Ctadds1
in Pernicious Anaemia Society

Webinar to explore the latest in research and treatment for DMO

It results in a condition very similar to wet age-related macular degeneration (AMD). Ranjan Rajendram, a consultant ophthalmologist from Moorfields Eye Hospital, will join the Virtual Clinic on Thursday 28 January to discuss the latest in treatment and research into the condition.
It results in a condition very similar to wet age-related macular degeneration (AMD). Ranjan Rajendram, a consultant ophthalmologist from Moorfields Eye Hospital, will join the Virtual Clinic on Thursday 28 January to discuss the latest in treatment and research into the condition.
Becky_MacularSociety profile image
Becky_MacularSociety
Administratorin Macular Society

BCD

Hi, I have been recently diagnosed with Bietti Crystalline Dystrophy. I have been getting intravenous avastin in both eyes for wet macular degeneration since 11 years (when needed). But my diagnosis is relatively recent. I personally have neither met or known anyone with BCD and wanted to see if anyone
Hi, I have been recently diagnosed with Bietti Crystalline Dystrophy. I have been getting intravenous avastin in both eyes for wet macular degeneration since 11 years (when needed). But my diagnosis is relatively recent. I personally have neither met or known anyone with BCD and wanted to see if anyone
GC_0007 profile image
GC_0007
in Macular Society

Statin - Side Effects

Actually I am happy to say I do not have any so you might wonder why I am posting? I only check in here every few days as it is all very repetitive particularly on statins. Yes a minute percentage get side effects yet despite numerous posts on the subject often replied to by stalwarts of the forum people
Actually I am happy to say I do not have any so you might wonder why I am posting? I only check in here every few days as it is all very repetitive particularly on statins. Yes a minute percentage get side effects yet despite numerous posts on the subject often replied to by stalwarts of the forum people
Heythrop51 profile image
Heythrop51
in British Heart Foundation

Medication

If I stop my medication will I die. Am on blood thinners, ACE inhibitors and statins.
If I stop my medication will I die. Am on blood thinners, ACE inhibitors and statins.
Batty55 profile image
Batty55
in British Heart Foundation

Steroid dependent membranous nephritis

Hlo everyone. This is my first post and i so eagerly want ur views about my condition. I am 37 years old south Asian male.i was first diagnosed with proteinuria in 2007 and biopsy result showed Minimal change disease.i was given occasional steroids in various forms till 2011.remission occured and went
Hlo everyone. This is my first post and i so eagerly want ur views about my condition. I am 37 years old south Asian male.i was first diagnosed with proteinuria in 2007 and biopsy result showed Minimal change disease.i was given occasional steroids in various forms till 2011.remission occured and went
Sajjadsadique profile image
Sajjadsadique
in Kidney Disease

Chalazion after injection - how long should we leave it after shot before using hot compresses?

Hi guys, I had my lucentis shot last Tuesday (and a very scratchy shot it was too - my worst in two years). I have a repeated chalazion that comes up on the lid of that eye, and it's in the process of flaring now. Has anyone been given guidance on how long we should leave using microwavable compresses
Hi guys, I had my lucentis shot last Tuesday (and a very scratchy shot it was too - my worst in two years). I have a repeated chalazion that comes up on the lid of that eye, and it's in the process of flaring now. Has anyone been given guidance on how long we should leave using microwavable compresses
Sianana profile image
Sianana
in Macular Society

New treatment for wet AMD available in Scotland

A new treatment for wet age-related macular degeneration (AMD), which would require fewer injections, has been approved for NHS patients in Scotland today.
A new treatment for wet age-related macular degeneration (AMD), which would require fewer injections, has been approved for NHS patients in Scotland today.
Becky_MacularSociety profile image
Becky_MacularSociety
Administratorin Macular Society
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