Experiences with

Age-related macular degeneration (AMD)

Age-related macular degeneration (AMD) is a common condition that affects the middle part of your vision. It usually first affects people in their 50s and 60s.
It doesn't cause total blindness. But it can make everyday activities like reading and recognising faces difficult.
Without treatment, your vision may get worse. This can happen gradually over several years ("dry AMD"), or quickly over a few weeks or months ("wet AMD").
The exact cause is unknown. It's been linked to smoking, high blood pressure, being overweight and having a family history of AMD.

28,004 public posts

Stem Cell Human Trials for Macular Degeneration

"Researchers at the National Eye Institute (NEI) are launching a clinical trial to test the safety of a novel patient-specific stem cell-based therapy to treat geographic atrophy, the advanced “dry” form of age-related macular degeneration (AMD), a leading cause of vision loss among people age 65 and"Researchers at the National Eye Institute (NEI) are launching a clinical trial to test the safety of a novel patient-specific stem cell-based therapy to treat geographic atrophy, the advanced “dry” form of age-related macular degeneration (AMD), a leading cause of vision loss among people age 65 and

jimcasterin Parkinson's Movement

Injections for life? Will health insurance or NHS pay?

I am "only" 53 and have needed to have 2 Eylea injections in my left eye to resolve a slight bleed. So far, so good, but I am wondering if I will need regular injections for the rest of my life? Has anyone else found that a few injections can stop the macular degeneration in its tracks? Also, will myI am "only" 53 and have needed to have 2 Eylea injections in my left eye to resolve a slight bleed. So far, so good, but I am wondering if I will need regular injections for the rest of my life? Has anyone else found that a few injections can stop the macular degeneration in its tracks? Also, will my

Mpatzin Macular Society

having one’s replies switched off

I was unaware I’d committed a contravention(!) and extremely relieved the only punishment was to have my replies switched off! If we’re splitting hairs about what constitutes natural, the only additives in the products prescribed to me by Dr Peatfield are: Each capsule contains: Bovine Thyroid GlandI was unaware I’d committed a contravention(!) and extremely relieved the only punishment was to have my replies switched off! If we’re splitting hairs about what constitutes natural, the only additives in the products prescribed to me by Dr Peatfield are: Each capsule contains: Bovine Thyroid Gland

Noelnoelin Thyroid UK

Difference after injection between Lucentis & Eyelea

After having Lucentis injections monthly for most of the last 2 to 3 years it was felt that a switch to Eyelea might help. Had the second set of injections a couple of days ago and I feel that my eyesight is slightly worse after the injections which is not something I felt with the Lucentis injectionsAfter having Lucentis injections monthly for most of the last 2 to 3 years it was felt that a switch to Eyelea might help. Had the second set of injections a couple of days ago and I feel that my eyesight is slightly worse after the injections which is not something I felt with the Lucentis injections

Sijslwsin Macular Society

Ozurdex implant

Hi I have CRVO with macular oedema in my right eye, this happened when I was 46, it’s coming up to a year now and I’ve had 3 lucentis injections and 5 bouts of laser, I’ve recently had the ozurdex implant and i must say that it has improved my sight but I was just wandering if anyone else has had thisHi I have CRVO with macular oedema in my right eye, this happened when I was 46, it’s coming up to a year now and I’ve had 3 lucentis injections and 5 bouts of laser, I’ve recently had the ozurdex implant and i must say that it has improved my sight but I was just wandering if anyone else has had this

sarahc333in Macular Society

Usability study

Hi everyone, I'm doing a study about how easy it is to use mobile phones. If you have Diabetic Macular Edema or Neovascular Age Related Macular Degeneration and would be interested in taking part please let me know. The study takes about 2hrs and we also pay for your time and expenses if you take partHi everyone, I'm doing a study about how easy it is to use mobile phones. If you have Diabetic Macular Edema or Neovascular Age Related Macular Degeneration and would be interested in taking part please let me know. The study takes about 2hrs and we also pay for your time and expenses if you take part

Lee_medHFin Macular Society

Macular degeneration in 2nd eye

I have wet macular degeneration in my right eye for the last 3 years and it has just now started in my left unfortunately. Three days ago I received my first Eylea injection in the left eye and since that time the vision has been worse than it was before the shot - has anyone else experienced this?I have wet macular degeneration in my right eye for the last 3 years and it has just now started in my left unfortunately. Three days ago I received my first Eylea injection in the left eye and since that time the vision has been worse than it was before the shot - has anyone else experienced this?

Kravenin Macular Society

Tirosint users

I have been on a treatment with tirosint and cytomel. I wanted to know if anyone is taking tirosint. I had a wonderful results with the medication. I hope my success with tirosint will help someone else. I know it contains no dyes and acacia, which helps absorption.I have been on a treatment with tirosint and cytomel. I wanted to know if anyone is taking tirosint. I had a wonderful results with the medication. I hope my success with tirosint will help someone else. I know it contains no dyes and acacia, which helps absorption.

MorganLeesosoin Thyroid UK

Anaesthesia

For those for whom the matter is of any interest, I discovered that the anaesthetic used by Manchester Royal Eye Hospital is proxymetacaine (which they generally seem to just refer to as "proxy"). They do not "stock" tetracaine. I know some people, like me, are keen to know how effective the anaestheticFor those for whom the matter is of any interest, I discovered that the anaesthetic used by Manchester Royal Eye Hospital is proxymetacaine (which they generally seem to just refer to as "proxy"). They do not "stock" tetracaine. I know some people, like me, are keen to know how effective the anaesthetic

ironbrainin Macular Society

Eylea injections

Hi. I have just been diagnosed with wet macular degeneration. My eyesight is pretty good, just a wavy line in the corner of one eye. I was given a booklet about eylea and the side effects listed are pretty horrific, and says the odds are 1in 10!! This is very scary. My eyes are fairly sensitive atHi. I have just been diagnosed with wet macular degeneration. My eyesight is pretty good, just a wavy line in the corner of one eye. I was given a booklet about eylea and the side effects listed are pretty horrific, and says the odds are 1in 10!! This is very scary. My eyes are fairly sensitive at

Eyecloudin Macular Society

Amaurosis Fugex

Hi I just wondered Is it possible or has anybody still had symptoms such as loss of vision when INR is in range ?Hi I just wondered Is it possible or has anybody still had symptoms such as loss of vision when INR is in range ?

Lind8in Sticky Blood-Hughes Syndrome Support

Macular Week at Moorfield raising awareness for us all

To mark the occasion, we have been reflecting on a ground-breaking clinical study we completed last year, where wet age related macular degeneration (AMD) patients were able to regain their sight after receiving retinal tissue engineered from stem cells.To mark the occasion, we have been reflecting on a ground-breaking clinical study we completed last year, where wet age related macular degeneration (AMD) patients were able to regain their sight after receiving retinal tissue engineered from stem cells.

Annsandra13in Macular Society

Holiday insurance

I have booked a holiday and in the process of taking out insurance. When I come to the health question do I need to tell them of my eye problem? Diagnosis - Central vein occlusion with neovascularisation as well as macular oedema. I am having 2 monthly injections which will not be due for at least aI have booked a holiday and in the process of taking out insurance. When I come to the health question do I need to tell them of my eye problem? Diagnosis - Central vein occlusion with neovascularisation as well as macular oedema. I am having 2 monthly injections which will not be due for at least a

Mrdgin Macular Society

SHOULD I STOP MY EYE SHOTS?

I have wet Macular degeneration in both eyes with my right eye is the least affected at this point. I been receiving Lucentis at first and now and now Eylea for 12 years. At first I received shots every 2 weeks in alternating eyes. The shots have slowly been stretched out over the years. Now I donI have wet Macular degeneration in both eyes with my right eye is the least affected at this point. I been receiving Lucentis at first and now and now Eylea for 12 years. At first I received shots every 2 weeks in alternating eyes. The shots have slowly been stretched out over the years. Now I don

Eyetimein Macular Society

No treatment?

I noticed my eyesight was blurry in mid october last year. I went to my gp who sent me straight away to the eye clinic at hospital. After several tests I was told they were unsure what was wrong and would ring me the next day after they had consulted a specialist.The phone call the next day was upsettingI noticed my eyesight was blurry in mid october last year. I went to my gp who sent me straight away to the eye clinic at hospital. After several tests I was told they were unsure what was wrong and would ring me the next day after they had consulted a specialist.The phone call the next day was upsetting

norwh59in Macular Society

Update on new anti-VEGF

I had a review and by-monthly injection on my left eye yesterday that is my good eye! I received good news to say that it it was dry and Eyelea was working well for me, 10 days ago I had new of the deterioration of the wet right eye, so that must be seen each month promptly. I thought I would ask theI had a review and by-monthly injection on my left eye yesterday that is my good eye! I received good news to say that it it was dry and Eyelea was working well for me, 10 days ago I had new of the deterioration of the wet right eye, so that must be seen each month promptly. I thought I would ask the

Annsandra13in Macular Society

Macular degeneration / Atherosclerosis

I have been diagnosed with above. Is it safe for me to fly long haul to India in December, before receiving any treatment?I have been diagnosed with above. Is it safe for me to fly long haul to India in December, before receiving any treatment?

felicity99in Macular Society

I am new here.

I have had 8 Eylea injections for Wet AMD in my Right eye which has worked very well and I am being kept under observation by the hospital but I was told that Macu Shield tablets may help the Dry AMD in my left eye but I am reluctant to try these as I can't get much information about them. Has anyoneI have had 8 Eylea injections for Wet AMD in my Right eye which has worked very well and I am being kept under observation by the hospital but I was told that Macu Shield tablets may help the Dry AMD in my left eye but I am reluctant to try these as I can't get much information about them. Has anyone

rosegardin Macular Society

Best time to take Ramipril morning or bedtime?

I'm a 67 yr old woman and I have recently been prescribed Ramipril for really high blood pressure. I was given Amlodipine first, but had every side effect possible and some, then was changed to Propranolol which suited me great but when seeing a doctor because I couldn't breath properly was told it wasI'm a 67 yr old woman and I have recently been prescribed Ramipril for really high blood pressure. I was given Amlodipine first, but had every side effect possible and some, then was changed to Propranolol which suited me great but when seeing a doctor because I couldn't breath properly was told it was

Bonnie20in High Blood Pressure Support

Great news, not so great news and the AMD learning curve

My 1st Eylea injection in my left eye was June last year after which I've gone from every 4, then eventually 6, 8, 10 and now a 12 week gap between injections. The great news is that after my next injection in another 12 weeks they will stop but continue to monitor as the wet MD is pretty well dry nowMy 1st Eylea injection in my left eye was June last year after which I've gone from every 4, then eventually 6, 8, 10 and now a 12 week gap between injections. The great news is that after my next injection in another 12 weeks they will stop but continue to monitor as the wet MD is pretty well dry now

Catseyes235in Macular Society