Experiences with

Age-related macular degeneration (AMD)

The first-ever treatment for dry age-related macular degeneration (AMD) will be the topic of our next My Macular and Me webinar.

Our second My Macular and Me webinar of the month will welcome researchers from the Royal Holloway University of London who will discuss their latest research on Charles Bonnet Syndrome (CBS). Professor Robin Walker and his team are the first to study the effectiveness of recommended techniques to manage

Hello, I am going to experiment with self injecting. Have ordered this off amazon.de: Pascoe® Vitamin B12 Depot Injectopaz 1500 μg 10 x 1 ml Ingredients: 1 ampoule 1 ml contains: active ingredient: hydroxocobalamine acetate 1500 μg. Other ingredients: sodium chloride, water for injection purposes

has anybody had triamcinolone injection for macular oedema. I am having a cataract op in 3 weeks time and I will be having this injection around the eye at the same time. I think it is also called Kenalog

I had repeat dexascan says my hips are getting worse, anyone on enoxaparin/lovenox taking vit k2 for “calcium to bone absorption”? Docs are talking about fosamex, etc, but I would rather do vitamins if possible. Not looking for medical advice but would like to know if others with APS are taking it

Like many aspects of life that we're all trying to grapple with, good health comes from a very fine balance. There is no 'one way' to do things, but a sweet spot in the middle. And I believe it's the same with diet, in particular B12. B12 is a regulator of homocysteine. Low B12 is a driver for high

getting my first injection at the lucentis clinic next week and also having a fundus fluorescein angiogram next week! Newly diagnosed! Any tips please?!

Hello. I have intermediate dry AMD in both eyes. I was diagnosed two years ago at age 65. My retina specialist told me all I can do is take Areds 2, drink grape juice or a glass of red wine every day and exercise. Does anyone have any other suggestions or advice you have been told from a professional

Hello, I have just been diagnosed with idiopathic choroidal neovascularization in my left eye at age 43. I have high myopia (-9), but the doctor isn't sure what caused the CNV (hence idiopathic diagnosis.) We caught it extremely fast, as I was already booked into see a specialist for a cataract in my

Hi Guys and thank you all for all your help in my previous posts.... Has any one used Pascoe B12 Depot and did they notice any difference to Panpharma (Rotexmedica) Depot Hydroxy? I know it is stronger and there is only one different ingredient to Panpharma being Sodium Chloride instead of Sodium

Morning, just to update people who might be less far along than I am incase you are interested. Also just to be clear my experiences are limited and based on myopic CNV not wet AMD or dry AMD. So back in April I had a CNV in my left eye, treated 3 weeks later by Eylea x 2- one in May, one in June. It

The event will include tailored sessions for people with age-related macular degeneration (AMD), and for those with inherited retinal diseases who are still of working age.

Hello all, are there any on this forum taking lisinopril for high blood pressure? I just came across this today and it could explain why I and maybe others have more afib episodes than we should; 1. Caution: High blood pressure/heart disease meds and potassium-rich foods like bananas, potatoes and licorice

My dad has been declining since heart attack in September. He has just been prescribed Ramipril. How long do you think it will be before he notices some benefits? We would be grateful to know of others’ experiences with ACE inhibitors

Hi all, First post. This is a great forum, very informative and supportive. Diagnosed with hypertension 18 months ago, usual ACE inhibitors took 6 months to lower BP. Then came AF, on Atenolol and Eliquis, but side effects, and GP switched me to Bisoprolol. Symptoms worsened and I ended up hospitalized

my husband was diagnosed with MPGN in 1999 at age 22. He has been treated with prednisone, BP meds, ace inhibitors since diagnosis they now think it is C3G. I am looking for treatment options or those also treated with prednisone. Drs have concern about long term side effects of prednisone. So far

Hi everyone, I would like to share one interesting experience related with my disease. Just a small recap, I diagnosed with FSGS this year, I am in 3a-3b phase. The problem is since I do not have any other disease, I am classified with primary FSGS. If I had any other certain cause to my kidney disease

Hello me again! Sorry this is all really new to me. I ve just a week ago had a macula bleed with suspected myopic maculopathy and my health board is slow to send an urgent appt despite me being an NHS worker and being off work with it. They have classed me as needing an appt in a few weeks but I m aware

Hi all, it 3 weeks since I came off Spironolactone as my liver specialist asked me to do so as after 6 month checks they believed my results showed I was in a good enough place to do so. I’ve gained 8 pounds in 3 weeks which from what I can see online isn’t classed as rapid but the last few days I’ve

Hi, sorry if this is a bit long winded I am just looking for some support and guidance. My uncle (61) was diagnosed with decompensated cirrhosis at the beginning of feb, this was through an A&E admission as he had considerable ascites. He was in for 6 days and sent home with spironolactone, thiamine