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Webinar: Pegcetacoplan for Dry AMD

The first-ever treatment for dry age-related macular degeneration (AMD) will be the topic of our next My Macular and Me webinar.
The first-ever treatment for dry age-related macular degeneration (AMD) will be the topic of our next My Macular and Me webinar.
Carol_MacularSociety profile image
Carol_MacularSociety
Partnerin Macular Society
22 days ago

Webinar: Charles Bonnet Syndrome Research

Our second My Macular and Me webinar of the month will welcome researchers from the Royal Holloway University of London who will discuss their latest research on Charles Bonnet Syndrome (CBS). Professor Robin Walker and his team are the first to study the effectiveness of recommended techniques to manage
Our second My Macular and Me webinar of the month will welcome researchers from the Royal Holloway University of London who will discuss their latest research on Charles Bonnet Syndrome (CBS). Professor Robin Walker and his team are the first to study the effectiveness of recommended techniques to manage
Carol_MacularSociety profile image
Carol_MacularSociety
Partnerin Macular Society
2 months ago

Advice for self-injecting.

Hello, I am going to experiment with self injecting. Have ordered this off amazon.de: Pascoe® Vitamin B12 Depot Injectopaz 1500 μg 10 x 1 ml Ingredients: 1 ampoule 1 ml contains: active ingredient: hydroxocobalamine acetate 1500 μg. Other ingredients: sodium chloride, water for injection purposes
Hello, I am going to experiment with self injecting. Have ordered this off amazon.de: Pascoe® Vitamin B12 Depot Injectopaz 1500 μg 10 x 1 ml Ingredients: 1 ampoule 1 ml contains: active ingredient: hydroxocobalamine acetate 1500 μg. Other ingredients: sodium chloride, water for injection purposes
DocAJB profile image
DocAJB
in Pernicious Anaemia Society
4 months ago
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steroid injections

has anybody had triamcinolone injection for macular oedema. I am having a cataract op in 3 weeks time and I will be having this injection around the eye at the same time. I think it is also called Kenalog
has anybody had triamcinolone injection for macular oedema. I am having a cataract op in 3 weeks time and I will be having this injection around the eye at the same time. I think it is also called Kenalog
Koalajane profile image
Koalajane
in Macular Society
4 months ago

osteopenia worse, im on enoxaparin/ lovenox any thoughts on vitk2?

I had repeat dexascan says my hips are getting worse, anyone on enoxaparin/lovenox taking vit k2 for “calcium to bone absorption”? Docs are talking about fosamex, etc, but I would rather do vitamins if possible. Not looking for medical advice but would like to know if others with APS are taking it
I had repeat dexascan says my hips are getting worse, anyone on enoxaparin/lovenox taking vit k2 for “calcium to bone absorption”? Docs are talking about fosamex, etc, but I would rather do vitamins if possible. Not looking for medical advice but would like to know if others with APS are taking it
Wittycjt profile image
Wittycjt
in Hughes Syndrome APS Forum
4 months ago

Thought of the day - B12 paradox

Like many aspects of life that we're all trying to grapple with, good health comes from a very fine balance. There is no 'one way' to do things, but a sweet spot in the middle. And I believe it's the same with diet, in particular B12. B12 is a regulator of homocysteine. Low B12 is a driver for high
Like many aspects of life that we're all trying to grapple with, good health comes from a very fine balance. There is no 'one way' to do things, but a sweet spot in the middle. And I believe it's the same with diet, in particular B12. B12 is a regulator of homocysteine. Low B12 is a driver for high
Pickle500 profile image
Pickle500
in Pernicious Anaemia Society
5 months ago

injections

getting my first injection at the lucentis clinic next week and also having a fundus fluorescein angiogram next week! Newly diagnosed! Any tips please?!
getting my first injection at the lucentis clinic next week and also having a fundus fluorescein angiogram next week! Newly diagnosed! Any tips please?!
Donaldduck31 profile image
Donaldduck31
in Macular Society
8 months ago

Advice needed for dry AMD

Hello. I have intermediate dry AMD in both eyes. I was diagnosed two years ago at age 65. My retina specialist told me all I can do is take Areds 2, drink grape juice or a glass of red wine every day and exercise. Does anyone have any other suggestions or advice you have been told from a professional
Hello. I have intermediate dry AMD in both eyes. I was diagnosed two years ago at age 65. My retina specialist told me all I can do is take Areds 2, drink grape juice or a glass of red wine every day and exercise. Does anyone have any other suggestions or advice you have been told from a professional
Penguin202 profile image
Penguin202
in Macular Society
10 months ago

Anyone with idiopathic CNV out there?

Hello, I have just been diagnosed with idiopathic choroidal neovascularization in my left eye at age 43. I have high myopia (-9), but the doctor isn't sure what caused the CNV (hence idiopathic diagnosis.) We caught it extremely fast, as I was already booked into see a specialist for a cataract in my
Hello, I have just been diagnosed with idiopathic choroidal neovascularization in my left eye at age 43. I have high myopia (-9), but the doctor isn't sure what caused the CNV (hence idiopathic diagnosis.) We caught it extremely fast, as I was already booked into see a specialist for a cataract in my
IdiopathicCNV43 profile image
IdiopathicCNV43
in Macular Society
11 months ago

Anyone Used Pascoe B12 Depot (Hydroxy)

Hi Guys and thank you all for all your help in my previous posts.... Has any one used Pascoe B12 Depot and did they notice any difference to Panpharma (Rotexmedica) Depot Hydroxy? I know it is stronger and there is only one different ingredient to Panpharma being Sodium Chloride instead of Sodium
Hi Guys and thank you all for all your help in my previous posts.... Has any one used Pascoe B12 Depot and did they notice any difference to Panpharma (Rotexmedica) Depot Hydroxy? I know it is stronger and there is only one different ingredient to Panpharma being Sodium Chloride instead of Sodium
WorkingProgress profile image
WorkingProgress
in Pernicious Anaemia Society
9 months ago

myopic CNV update- 4 months on…

Morning, just to update people who might be less far along than I am incase you are interested. Also just to be clear my experiences are limited and based on myopic CNV not wet AMD or dry AMD. So back in April I had a CNV in my left eye, treated 3 weeks later by Eylea x 2- one in May, one in June. It
Morning, just to update people who might be less far along than I am incase you are interested. Also just to be clear my experiences are limited and based on myopic CNV not wet AMD or dry AMD. So back in April I had a CNV in my left eye, treated 3 weeks later by Eylea x 2- one in May, one in June. It
Deepbluesea2022 profile image
Deepbluesea2022
in Macular Society
9 months ago

Macular Disease Conference 2021 9.15am Saturday 11th September.

The event will include tailored sessions for people with age-related macular degeneration (AMD), and for those with inherited retinal diseases who are still of working age.
The event will include tailored sessions for people with age-related macular degeneration (AMD), and for those with inherited retinal diseases who are still of working age.
Kelly_macularsociety profile image
Kelly_macularsociety
Administratorin Macular Society
2 years ago

LISINOPRIL AND AFIB

Hello all, are there any on this forum taking lisinopril for high blood pressure? I just came across this today and it could explain why I and maybe others have more afib episodes than we should; 1. Caution: High blood pressure/heart disease meds and potassium-rich foods like bananas, potatoes and licorice
Hello all, are there any on this forum taking lisinopril for high blood pressure? I just came across this today and it could explain why I and maybe others have more afib episodes than we should; 1. Caution: High blood pressure/heart disease meds and potassium-rich foods like bananas, potatoes and licorice
kocoach profile image
kocoach
in AF Association
1 month ago

when will i feel better?

My dad has been declining since heart attack in September. He has just been prescribed Ramipril. How long do you think it will be before he notices some benefits? We would be grateful to know of others’ experiences with ACE inhibitors
My dad has been declining since heart attack in September. He has just been prescribed Ramipril. How long do you think it will be before he notices some benefits? We would be grateful to know of others’ experiences with ACE inhibitors
TooManyBuzzards profile image
TooManyBuzzards
in British Heart Foundation
2 months ago

Still in HF?

Hi all, First post. This is a great forum, very informative and supportive. Diagnosed with hypertension 18 months ago, usual ACE inhibitors took 6 months to lower BP. Then came AF, on Atenolol and Eliquis, but side effects, and GP switched me to Bisoprolol. Symptoms worsened and I ended up hospitalized
Hi all, First post. This is a great forum, very informative and supportive. Diagnosed with hypertension 18 months ago, usual ACE inhibitors took 6 months to lower BP. Then came AF, on Atenolol and Eliquis, but side effects, and GP switched me to Bisoprolol. Symptoms worsened and I ended up hospitalized
Lloyd2022 profile image
Lloyd2022
in British Heart Foundation
4 months ago

treatment for my husband

my husband was diagnosed with MPGN in 1999 at age 22. He has been treated with prednisone, BP meds, ace inhibitors since diagnosis they now think it is C3G. I am looking for treatment options or those also treated with prednisone. Drs have concern about long term side effects of prednisone. So far
my husband was diagnosed with MPGN in 1999 at age 22. He has been treated with prednisone, BP meds, ace inhibitors since diagnosis they now think it is C3G. I am looking for treatment options or those also treated with prednisone. Drs have concern about long term side effects of prednisone. So far
Dldant profile image
Dldant
in C3 Glomerulopathy
5 months ago

Genetic Testing

Hi everyone, I would like to share one interesting experience related with my disease. Just a small recap, I diagnosed with FSGS this year, I am in 3a-3b phase. The problem is since I do not have any other disease, I am classified with primary FSGS. If I had any other certain cause to my kidney disease
Hi everyone, I would like to share one interesting experience related with my disease. Just a small recap, I diagnosed with FSGS this year, I am in 3a-3b phase. The problem is since I do not have any other disease, I am classified with primary FSGS. If I had any other certain cause to my kidney disease
tas1kubra profile image
tas1kubra
in Kidney Disease
6 months ago

Timeframe for antivegf injections…

Hello me again! Sorry this is all really new to me. I ve just a week ago had a macula bleed with suspected myopic maculopathy and my health board is slow to send an urgent appt despite me being an NHS worker and being off work with it. They have classed me as needing an appt in a few weeks but I m aware
Hello me again! Sorry this is all really new to me. I ve just a week ago had a macula bleed with suspected myopic maculopathy and my health board is slow to send an urgent appt despite me being an NHS worker and being off work with it. They have classed me as needing an appt in a few weeks but I m aware
Deepbluesea2022 profile image
Deepbluesea2022
in Macular Society
1 year ago

Advice Appreciated

Hi all, it 3 weeks since I came off Spironolactone as my liver specialist asked me to do so as after 6 month checks they believed my results showed I was in a good enough place to do so. I’ve gained 8 pounds in 3 weeks which from what I can see online isn’t classed as rapid but the last few days I’ve
Hi all, it 3 weeks since I came off Spironolactone as my liver specialist asked me to do so as after 6 month checks they believed my results showed I was in a good enough place to do so. I’ve gained 8 pounds in 3 weeks which from what I can see online isn’t classed as rapid but the last few days I’ve
Audiking profile image
Audiking
in British Liver Trust
14 days ago

Decompensated Cirrhosis

Hi, sorry if this is a bit long winded I am just looking for some support and guidance. My uncle (61) was diagnosed with decompensated cirrhosis at the beginning of feb, this was through an A&E admission as he had considerable ascites. He was in for 6 days and sent home with spironolactone, thiamine
Hi, sorry if this is a bit long winded I am just looking for some support and guidance. My uncle (61) was diagnosed with decompensated cirrhosis at the beginning of feb, this was through an A&E admission as he had considerable ascites. He was in for 6 days and sent home with spironolactone, thiamine
JenClarkey profile image
JenClarkey
in British Liver Trust
14 days ago
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