Hi guys -
I need help guys n girls
I've just been coming out of a flare for 4 weeks despite being on pred 7.5 mg and planquenil for about 2.5 months - I still felt pretty pants so upped pred to 10mg which rheumy said I could do - I started to feel loads better only did if for 3 days and felt better for it. On Saturday
I started to feel really odd and went from being really well to having sudden left sided weakness speech difficulties left sided facial numbness and couldn't coordinate my limbs - l ended up going into hospital as a suspected stroke - CT and MRI both clear and no vasculitis. I'm very weak and still have speech problems. I feel like I'm going mad. My oxygen saturation was low, my blood pressure kept dropping below 100 then when physio got me up to walk went up to 180 over something or other and I just felt the life drain out of me, it kept fluctuating rapidly. blood sugar was fine. Can anyone relate please because this is getting me down - is this just a bad flare - I'm happy the scans were clear but flummoxed and just have that am I going mad feeling they've said to go straight back to rheumy which I will do.
The only thing that I have changed recently is for the last 2 weeks the planquenil dose has been increase to twice a day. So was wondering if med side effect?! Although, 3 days b4 this episode and on Saturday morning I was fine, clear headed and happy!
I feel more lost then ever.
I feel like I'm drowning Help