Pip update......

[willowwag]

Hi all, just a update on my pip claim, i put my claim in back in may this year and had a home visit 2weeks ago, on the day of my visit i was suffering really bad. I had a very nice lady come to see me, i could hardly get my words out that i needed so she asked did i want to carry on another day..we carried on and my husband took over answering the questions with me...consultant says my lupus is really not under control and my levels are going crazy so they added azathioprine to the mix, along with my steriods etc and the other bag fulk of drugs us fello lupies have to take to be able to make it through the day..well im waffling now lol so back to the reason for my post..i went to work thismorning, my body was maxing out and had to return home, feeling upset that im struggling to cope and feeling at a loss, 2 mins in the house and the brown envelope comes through the door, heart racing i felt so scared to open the letter, you know when you have been hoping for some good news but your affraid to get your hopes up just to be let down..well after opening. ......THEY AWARDED ME IT OHHH THANK YOU LORD!

I have been awarded the standard rate living element and the higher mobility part.

I would like to say a massive thank you to Paul from Lupus uk and your team who have sent me out paperwork to help and guide me understanding how to explain your condition in the way the assesers understand, thank you all on lupus uk for even though i dont know you in person, knowing there is a place we can ask questions, get advice and emotional support has and is keeping me going...

If there is any tip or helpfull information from my assesment who was capita is, tell them in as much information about each health problem. Try to think your explaining how things are to a loved one and be honest in how being so ill affect you, there more examples of this the better as they can imagine you doing this and how you cope if you try and the effects it leaves you with..xxx sorry if ive waffled on

[MelAlice]

That's great news willowwag, well done you xx

[Silvergilt]

Congrats! That must be a huge load off your mind, well done

[jeevan05]

Hi we'll done!! I applied in August still waiting, it's a long process..don't mind if results are good. Anyway great advice will get in touch with Paul to for information..

[willowwag]

Its a massive weight of my mind, i found the forms very confusing from the dwp, but the help sheets lupus uk sent out to help made it a whole lot easier to fill it in. Took me over a week tho, i typed it all and then stapled it where all the answers needed to be. I found doing it over a week gave me the time to get my head around each question. X hope you all get it to crossing my fingers for you all. Dont give up on it.

[KarenC]

Brilliant news, I was awarded both the higher rates a couple of months ago and it has helped us massively. All I can say is that I was honest with the lady I saw, but I think it helped that she was carrying and patient with me and willing to listen. My sister filled in my forms and came with me to the meeting I am very lucky to have her.

[Yorkie369]

So glad you succeeded. I had a successfully claim recently. After 4 years trying to convince people of all my health issues citizans advice were a great help in the end they helped me fill all paper work in

[Sheilainacton]

YEEHAR!! sxx

[rlupus]

Great news ,

[willowwag]

Hi all thanks so much for your reply, i must say the stress that lupus brings us all is hard to deal with and like you said, when i opened the letter my first response was i burst into tears, because its like if someone finally understands how hard lupus is and how it effects my life..i wish everyone here sucess in their applications. X Im so lucky to have a wounderfull husband who is my rock and without him i dont know if i could have gone through the whole process so i dedicate this post to him.

[jilly60]

Congratulations on getting your pip I've been waiting since May too but not heard anything yet but wasn't aware there was any hep in filling the forms in so have a strong feeling I will be refused on my first attempt please could you tell me where you got the information about explaining our conditions and on filling out the paper work many thanks Jill x

[willowwag]

Hi jill, Paul from lupus uk postec me out a guide to claiming pip..in there is explains the terminoligy to fill the forms out, meaning it helps you understanding the discriptors..when filling in the form..i made sure i started with each condition under conditions right at the start, so for each one i put the condition, about the condition, what were my symptoms, how this effected my daily activity, when it came to a question i reverted back to my conditions and put down how each activity being asked was made extremely difficalt having those conditions..its very important to use the wordings, can not do it safely,reliably and repeatedly etc..these are the main key words you need to state. With each action they ask have really good think of how you do things and how your condition effects your ability to do it under the key words..good luck i hope its good news for you to.

[willowwag]

I also had a lady from welfare rights who works with my husband to look over it to see if there was anything i missed and she said, the way i filled out the form made it very easy to understand my conditions and their effects on my ability, if your not sure if you need to add anything extra add it, i was told you cant have to much information, i typed it all out and then stapled it to the pages..it was like war and peace lol! But i think they understood what life is like with lupus, and there desease sucks.

[Paul_Howard Partner LUPUS UK]

Hi willowwag,

Thank you for sharing your good news. I'm really pleased that they have awarded you PIP and I hope it is a big weight off your mind. Please let us know if you ever need anything else and we'll do what we can