Oh what a disease this is!!! I just found out that my cold urticaria which I have had for the past three years is from the lupus. They think that I have had lupus much longer than they knew. When they connect the dots, it all fits they say. five years ago they started treating me for low blood sugar, they thought the symptoms fit, but when I almost passed out from the cold my regular doctor did an ice cube test on my arm and found out I had cold urticaria. My fault is not telling that when I touched something cold my hands would swell and burn. If I told them when it started it would have clued them in on something. Now since the lupus was just diag. this past March they are finding that things that have been wrong for the past few years would have pointed to lupus, but no one did the tests. Until January when everything just went completly haywire.
On the cold urticaria, I live in the US in Michigan our winters can be quite bad, so I cannot go outside without being completely covered and then only minutes when it is really cold. I have to have an epy pen just in case I get stuck somewhere where there is no heat. Imagine being in your car dead of winter and it breaks down I have roughly 15 minutes to get inside somewhere warm. In November our temps go down to the 60-50's that is when I start to have issues. It just gets worse the colder it gets. Some people would say move to warmer climate but then there is the aircondioning factor to worry about. In grocery stores you have to have gloves on in the cooler section I touch anything cold, does not need to be frozen, and I have reactions. I breath cold air and it affects my throat and nose. Thus the need for the epy pen. Now throw in the lupus and the sun issues.
Love our Immune Systems!!!!!
Now what?
Just a rash or malar rash
I just knew I was right but maybe not!
What do I do now?
