I just knew I was right but maybe not!

[Littlebitofftoday]

I've been sick for awhile now and I thought I was never going to get an answer. So my husband and I did a Year's worth of research and finally talk to my doctor about lupus. He said that's exactly what you have but then disappeared and moved somewhere else to a new practice overnight and never left a diagnosis. So then when I went to my new doctor he said I don't have Lupus without even knowing me and that my dr. Had tested me way back in 2014 it was negative and that I don't have it. Now once again I am lost even though I am a classic case of lupus and have had other doctors say my ana results are a little high....I come from a small town and I can't afford to go to a specialist without a referal....maybe everyone's right and I'm nuts someone tell me what to do! Please

[Natura]

Hi womanwarrior..my ana was positive and i was told i had low end lupus. Later tested negative in bloodwork. I was told by rheumy, i did not have lupus. Don't care what doctors opinions are. I know how i feel and what my symptoms are. I treat myself as if I have lupus and treat with natural anti inflammatories. I am currently on an anti inflammatory diet. Seems to be helping. And that's that. I dont need confirmation from a doctor. I suppose if you are not low end, and you need medication...you might have to find another doctor. Sounds like the latest doctor is a bit of a jerk. Keep looking is my recommendation, and good luck.

[Littlebitofftoday in reply to Natura]

I have been told I have an auto immune disorder but my PCP refused to call it Lupus...I now have hypothyroidism and ra and they still won't call it that but they have since sent me to a specialist whom is so great!

[Cas70]

I am the same - all symptoms but only showed up in a scalp biopsy when I got a bald patch that itched. Still won't give it a name but gave me Hydroxycloroquine and it helps a lot. I would follow Natura s advice about diet - and find another doctor if you can.

[Paul_Howard Partner LUPUS UK]

Hi Littlebitofftoday ,

Can you not ask your GP to refer you to a specialist for further investigations?

[Littlebitofftoday in reply to Paul_Howard]

I have finally been referred and will be seeing a specialist from now on thank you

[Natura in reply to Littlebitofftoday]

Good to hear you were referred. Keep us in touch with what they say.

[Littlebitofftoday in reply to Natura]

Thank you my dear and I will. I so appreciate your kind words and great advice and most of all your kind ear.