new to Lupus if that's what it is... love to share with anyone local,

Hi, I’m new to Lupus and all that goes with it, I’ve been on the roller coaster of diagnosis for the past year and they still haven't decided, but they have decided enough for me to trial hydroxy' and I started 2 months ago, I think I might be feeling better but not sure, I’ll give it another few months, but had a tough year with spontaneous idiopathic urticaria, which the allergist didn’t think was linked, but I and my rheumy did !!! Medical professionals eh!! it took them 5 months to get it under control, with me having sever reactions about 2-3 times a week, which was draining, but now I’ve gone through all the meds the last in a long line worked.

I love to meet or chat with anyone local, as I find email and blogs useful but nothing beats face to face, please message me or reply if anyone is local.

Hope you all have a happy Christmas

opps sorry guys local is gloucestershire - between gloucester and cheltenham in Churchdown ...

5 Replies

oldestnewest
  • Hey Nickie,,i hope you are doing ok? Hydroxy/plaquenil,,i have used for 4months now and i have improved skin.Hey,we have a group on facebook.Look us up,,,Lupus is real !! xx

  • Hello

    I have had lupus for a long time and can offer you some help if you need it. Also, you don't say where 'local' is!!

    Merry Christmas

    x

  • If you let us know where you live we maybe able to help,

    Or contact Lupus U/K not only can they supply you with info they will be able to tell you who to contact,there are groups in most area's

    Happy Christmasx

  • thanks for your comments ...

    opps sorry guys local is gloucestershire - between gloucester and cheltenham in Churchdown ...

  • Hi Nickle,

    Perhaps you'd like to get in touch with the Western lupus group? I'm now going to send you a message with the group contact details.

You may also like...