2nd hospital bed in 6 wks...update I'm home 😊

[Spanielmadlady]

Happy Monday my friends.

So my recovery from surgery was ticking along nicely..... I was gaining more mobility and finally getting out for some fresh air on a hired mobility scooter.

Rewind to Thurs afternoon when the twinges and an incling a uti was brewing started.

Contacted gp Friday morning and had antibiotics by dinnertime 👍

Saturday morning the vomiting started and after ringing NHS111 in the evening they sent me to A&E at midnight.

8 hrs later ...yes 8 hrs sat on a hard plastic chair with a boot on I was seen and taken to SDEC ( same day emergency care) to be told I was in retention.

So I'm now in my 2nd hospital bed in 6 wks (to the day) on iv antibiotics and fluids with a catheter. 😔 plan is for a kidney scan today.

And they've doubled my prednisone 😫

Is the severity of this uti a consequence of the meds changes needed for my surgery , taking the tacrolimus which comes with an increased risk of utis or my lupus nephritis? Who knows 🤷‍♀️

At least I have a view ......

Keep smiling ...I'm trying too 🙂

[KnitSewPurl]

At least you are in the right place getting treated for it. Get well soon my dear take take. Sending hugs 😘🥰

[Spanielmadlady in reply to KnitSewPurl]

Thank you hugs much needed and appreciated x

[CecilyParsley]

I am so pleased that you are finally comfortable and adequately medicated. You are where you need to be lovely after an horrendous weekend. I hope the kidney scan is ok and that on the increased pred and IV antibiotics you will soon be feeling so much better. Xxx

[Spanielmadlady in reply to CecilyParsley]

Thanks CP x

[Vixen2]

Ah. We all know the ‘joys’ of a chronic condition. How it can bring on other things. Sometimes a UTI can make you feel more ill than having an RA flare. I had a bad UTI at Christmas. Of all the days you want to feel ‘normal’. I’m awful when i’m not well. A real moany cow. That’s when i love to be alone. In my own bed. I always say this. With a big bowl of steaming hot soup, a hot cuppa & something funny on my tablet. Nice view from your hospital bed. When i was first diagnosed, so many yrs ago. I was taken in for tests. I was in nearly a week & a woman wouldn’t stop snoring. I was going mad. I know it was naughty. But i was throwing grapes at her!! I just couldn’t sleep! I hope you haven’t got a snorer. Hope you get well soon. When you get out. Spoil yourself. Get some nice creamy eclairs. They always cheer me up!

[Spanielmadlady in reply to Vixen2]

Thank you vixen. Oh no Christmas day of all days.Unfortunately hugo doesn't allow me much bed rest and I'm lactose intolerant so the delicious eclairs are out but I'm happy in the chair beside the fire with my crochet and a homemade brownie.

Haha I can just the domestic wondering why all the grapes are on the floor 😆.

Im the only one in my bay under 80 but all the ladies are lovely and will have a chat but I've been in wards with disruptive dementia patients so I get where you are coming from. X

[Numptybrain]

So sorry you are going through this, you definitely have a nice view and if the other patients are nice that’s a bonus, I’ve had some real weird neighbours as hospital patients I can tell you, good job nobody brings me grapes! I’m having problems with my kidneys now but I haven’t seen anyone yet. I’m still waiting for RTX infusion but it’s a long wait. Hope you’re feeling a bit better soon, I’ve had a catheter it it’s a tad uncomfortable, especially after a couple of weeks so hope you get something done.

Take care

Wendy xx

[Spanielmadlady in reply to Numptybrain]

Hi Wendy.yes i am thank you. yes catheter isn't the most comfortable is it. I had 2 choices ...stay with catheter and have iv meds or go home on oral meds with Catheter for a week and await Urology. I chose the Iv meds. Just had kidney scan .I hope you get get appointment soon and things improve. They are going to give me a trial without it and send me home on oral meds if its OK. X

[Numptybrain in reply to Spanielmadlady]

I really wish you well, it’s a minefield and we are just tested on these medications but also hope they work.

Take care

Wendy xx

[RosieA]

Oh I am so sorry. Blimey, the deep joys of this illness just can't be underestimated. You chose wisely to stay in the hospital - they will hopefully get everything done in quick time to ensure they can get you home. Fingers crossed re the kidney scan- do let us know how it goes when you feel able. xx

[Spanielmadlady in reply to RosieA]

Thank you Rosie. I had 2 choices to stay in on iv antibiotics fluids and the catheter or go home with oral meds and a catheter and waiting for Urology. Had scan this morning all ok no blockages or infection in it. In 1996 I was diagnosed with a duplex r kidney but my nephrolgist dismissed it in 2018 only for them to pick it up this morning.

Bladder scan showed i had 450ml left later passed 500 then another scan afterwards showed I still had 741 ml 😱 Going to trial me without catheter and if ok I can go home on oral meds depending on blood and urine culture results tomorrow. X

[RosieA in reply to Spanielmadlady]

Here's hoping you can get home. Your pups will be missing you and you them. What is a duplex kidney? xx

[Spanielmadlady in reply to RosieA]

Son said Hugo isn't stressing too much but he will go bonkers when I go home and won't let me out of his sight.im due to have a neighbours dog Fri to Mon too. A duplex kidney is when there are 2 drainage tubes .mine are fused together so it doesnt drain as efficiently as it should. Having said that it rarely gives me any trouble x

[rosebud52]

All my very best wishes go out to you for a very good recovery X

[Spanielmadlady in reply to rosebud52]

Thank you I need to be home by Friday for Hugo as son goes back to work after family leave for surgery x

[bookish in reply to Spanielmadlady]

So sorry to hear about this latest set-back and hope that you soon start to feel much more yourself. Glad that there was no blockage or infection, fingers crossed for tests being ok so they will let you go home tomorrow! Nice sunny view though - took a lot longer for it to clear here, but now blue and breezy, so my washing is out (had a B12 this morning, then a doze, so now a bit more human!). Thinking of you xx

[Spanielmadlady in reply to bookish]

Thank you bookish. I have my b12 next Monday. They've turned the valve off on the catheter so see what happens now.I'm still on iv Gentamicin and co amoxiclav . I have no intentions of a hat trick of beds .Good luck with the washing xx

[honeybug]

OMGOODNESS Sml 🥰🙏🕊️

I’m so very sorry love to hear this 💋🤗. I just prayed for you love. Going for full recovery and safety from all complications.

Take care sweetie. Gentle hugs.

Love and prayers,

EJ 🥰🩷🤗🙏🕊️🌿🌸🦋

[Spanielmadlady in reply to honeybug]

Thank you EJ xx

[honeybug]

most welcome love 🥰🙏🕊️

[MrsMarigold]

I’m so sorry SML. It’s miserable to be in hospital and messing up your regular lupus schedule😃🤦‍♀️ Prayers for you to get out, get up, get going! MM

[Spanielmadlady in reply to MrsMarigold]

Thank MM . Hope you get some answers and relief for your tendinitis xx

[hopegalore20]

Hi Spanielmadlady, hoping you are being well looked after and they treat the cause of all the pain you have been recieving. Sounds like you are going through the wars.

However, you are in good hands.

Great view.

We are all thinking of you 💕

[Spanielmadlady in reply to hopegalore20]

Thank you Hope x

[Stills]

’Room with a view’!

Hope the foods not too bad and you get home again soon

[Spanielmadlady in reply to Stills]

Morning stills. Not bad is it. I'm In a 6 bed bay looking out towards the lakeland fells.Food has been poor for diary free. No lactose free milk at breakfast yesterday so had to get some from home last night. Lunch was a small square of pie and a couple of ginger nuts .

Could be home later ...depends on bloods .

I hope you are ok 🤗 xx

[Stills in reply to Spanielmadlady]

Sounds hopeful, good luck x

[CavendishCool]

OMG. Lovely view - that's all I got! Everyone knows way more than me, so it's all been said. Get outta there soon. Here's another smart ass answer - there's a planet party tonight after sunset and you won't even need binoculars to see most of them. I am so very sorry to hear of your hospitalisation and I hope you recover very quickly and well so that you can leave your second home. Namaste Karen xx

[Spanielmadlady in reply to CavendishCool]

Thanks Cavendish. Not bad is it....lakeland fells in the distance .better than a brick wall which ive had before. I have no intention of making it a hatrick lol. I used to work in end stage dementia and when it was a full moon they all seemed to be climbing the walls so fingers crossed this rare alignment doesn't cause any issues for anyone. SML xx

[CavendishCool in reply to Spanielmadlady]

Aww Bless you. Personally I love a good howl at the moon. Are you allowed any "visitors?" 🐶🐕🐕‍🦺🦮. Could that gorgeous hunk of spaniel be an "assistance" dog? I can just see it now. Take care. I hope you make it home real soon 🙏

[Jackpot67]

I'm wishing you a speedy recovery, take care. Jackie xx

[Spanielmadlady in reply to Jackpot67]

Thank you jackpot x

[lupime]

Adding my best wishes. I hope you are soon back at home where you will feel more comfortable. Getting into your own bed in your own home will do you the world of good. x

[Spanielmadlady in reply to lupime]

Thank you lupime. I'm still sleeping downstairs after my surgery. Ill have the company of Hugo x

[Redwine53]

so sorry to hear about your woes you brave lady, and that you have manages to keep your sense of humour. Hope you are sorted out soon and can get back home.

[Spanielmadlady in reply to Redwine53]

Thank you. Sense of humour is essential helps get you through x

[Bbmuso]

Sorry to hear you've bern so poorly, that eight hour plastic chair sit would not have helped!! Hope you're feeling better soon and the scan is favourable!

[Spanielmadlady in reply to Bbmuso]

Thank you. No it didn't I ended up making a cushion out of my coat x

[Chris21]

oh no! and you were doing so well. Hope they get on top of this problem quickly and youre back speeding on the mobiltiy scooter. x

[Spanielmadlady]

I had Hugo out on the Thurs before I came in...it was an experience lol.

Dog

[Chris21]

oh thats so lovely 🥰