Cutie Late Delivery: Hello everyoneJust thought i'd... - LUPUS UK

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Cutie Late Delivery

misty14 profile image
misty14
β€’38 Replies

Hello everyoneJust thought i'd post these two late lambs to hopefully help keep your spirits going whilst we turn our clocks back!!. These cuties are from Poll Dorset Ewes which can breed out of season. October is a busy month with them coming.

Hope you like them and your all keeping as well as possible.

MistyX

P.s, had a great appointment with my Pain Consultant who is putting me on her treatment list for my leg injections on the 18/12. I got the last slot. Also, she's very happy to tell my gp i can have the lidocaine patches prescribed. That's a big relief too. Thank you all for your offers of spare ones and all your support. Really do appreciate it all. Xx

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misty14
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CecilyParsley profile image
CecilyParsley

So very cute bless them. I am pleased that your pain specialist is so supportive xxx

misty14 profile image
misty14β€’ in reply toCecilyParsley

Thank you cecily, glad you like them. I'm so sorry your pain specialist turned into a horror by changing her mind as to your care. How did your next appt go as you were giving her one last chance?. Better i hope. When i met my new one for first time it was tough , she wanted to change my treatment radically which didnt work. She changed her attitude when i added more health problems and now she's so helpful and i'm truly grateful.

Enjoy Spooky Strictly. XxπŸ‘πŸ’•πŸ‘πŸ€žπŸ‘πŸ’•

CecilyParsley profile image
CecilyParsleyβ€’ in reply tomisty14

I had to postpone my appointment Misty. My surgery is being awkward about the measelu 5 mg morphine. They would only give me enough to my appointment date so now I have only a few left. The idiocy when I was the one who wanted to reduce my morphine and got mysekf from 15 mg twice daily down to 5 mg before I changed to Taroentadol. I spent 12 1/2 hours in A&E and the Doctor there said my pain was not under control and she was recommending at least 10 mg twice daily with two Cocodamol.. I feel very despondent about it all but I see the Consultant on 7 th and I will give her another chance. I hope it turns out as well as it did for you .

Any update on the operation? Xxx

misty14 profile image
misty14β€’ in reply toCecilyParsley

I'm sorry cecily that you had to postpone that appt and had an awful trip to A&E. You did so well in reducing the dose down as its not easy. So awful the way it worked out. 🀞 for your next appt and that the consultant is much nicer to you and willing to do those injections. I do feel very grateful that mine is so willing to help now. When i first met her, it was really difficult as she wanted to change everything and i really struggled but persevered with her and she changed back to my original treatment. This was achieved over several years, its not done quickly!.

I hope you enjoyed Spooky Strictly and the right one did leave didn't she?. Hope your enjoying All Creatures Great and Small too.

Good luck for your appt and take care. XxπŸ‘πŸ’•πŸ‘πŸ€žπŸ‘πŸ’•πŸ‘πŸ€žπŸ‘πŸ’•πŸ‘πŸ€ž

P.s, may have foot op news soon but gallbladder op not till next year. Pain is tough, thanx for asking. Xx

CecilyParsley profile image
CecilyParsleyβ€’ in reply tomisty14

Thank you so much. This new Consultant is private so I am willing to let her try and control my pain and and do the initial nerve blockers . If they work I will ask her to refer me to a pain clinic and possibly a Neurologist.

I do hope you have the news you need about your foot at least. I think if we have one part of us healed or improved, it makes a huge difference to our ability to cope.

I loved Strictly. My two favourites of the night were Angela and Carlos and Nigel and Katya. Definitely the right person left. Yes I love All Creatures too, such a gentle, carefree programme with heart.

Keep us updated with news about your foot and take care l lots of love xxx

misty14 profile image
misty14β€’ in reply toCecilyParsley

Thank you cecily, for your lovely message. I really do hope your appt gives you everything you need , 🀞. I do so agree with you that getting one painful part sorted does give some respite to cope with the rest. Also, psychologically its important to feel we're making progress!. Yes, Nigel and Angela S were very good on Sat. Its going to be tough once again in the later rounds.

Let me know how you get on at next 'cutie pic' cecily and i'll update as and when i hear anything. There seems to be a push to get the longest waits seen now here in South West which includes me. 🀞.

Keep as dry as you can, a storm is brewing i think and enjoy Strictly. Its going fast. XxπŸ‘πŸ’•πŸ‘πŸ€žπŸ‘πŸ’•πŸ‘πŸ€ž

CecilyParsley profile image
CecilyParsleyβ€’ in reply tomisty14

Sending you huge Cwtches and lots of love l Holefully we will both get some much needed relief soon xxx

misty14 profile image
misty14β€’ in reply toCecilyParsley

Thank you cecily, sending you lots of cwtches too. Xx

Spotty-ewe profile image
Spotty-ewe

Aren’t they a sight for sore eyes? So lovely!!😍 Just what I needed to brighten my week. Thank you Misty. πŸ™πŸ»

SO very pleased to hear what a positive outcome you’ve had from your Pain Consultant! Things are at last beginning to look up for you Misty and I hope they continue that way. 🀞 You’ve had such a long and difficult time of it. Onwards and upwards.πŸ™πŸ» Love and hugs xxxx

misty14 profile image
misty14β€’ in reply toSpotty-ewe

Thank you spotty for your lovely message. I thought we would all benefit from a 'cutie' having to change the clocks. I don't like this end of the year for a lot of reasons. I'm very lucky to have such a supportive consultant who advocates for me as she recognises i'm having to cope with a lot of pain and how it affects your day to day life. How are you doing spotty?. Have you heard from the Oral health dept yet?. I do hope you do soon, its shocking how they're delaying so much!. Hope you didnt have a UTI and your cold is a lot better.

Thank you too for the lovely enclosures you sent as well. We definitely need more positive news at the moment don't we?. I did enjoy them and know friends who will too.

I'm not sure if you got my email again last week as i wished you well for UTI results on monday and said i was thinking of you. I wouldn't be surprised if its happened again.

Hope your having a nice weekend and your feeling better. XxπŸ‘πŸ’•πŸ€žπŸ’•πŸ₯°πŸ€ž

Spotty-ewe profile image
Spotty-eweβ€’ in reply tomisty14

I did indeed receive your e-mail last week Misty and apologise for not answering sooner. It has been a hectic and emotional week one way and another as I’ve explained in an e-mail I’ve just sent to you. About to take my 2nd reduced dose of MTX injection this evening. So fingers crossed it doesn’t produce the same nasty side-effects I had after the 2nd injection last month of the higher dose. 🀞 I SO want to come off these steroids but can’t until the MTX kicks in if I manage to tolerate it this time.πŸ™πŸ»

Take care dear Misty and thanks again for the lovely uplifting Cutie post. Off to get my jab now. πŸ’πŸ€—πŸ˜˜xxx

misty14 profile image
misty14β€’ in reply toSpotty-ewe

Thats ok spotty, i'm not chasing you, i just wondered if the email was up the creek again!. I'm sorry things have been tough and will keep my 🀞that you tolerate the 2nd lowest mtx jab better this time. Big moment!. Take care. XxπŸ‘πŸ’•πŸ‘πŸ€žπŸ’•πŸ‘πŸ’•πŸ€žπŸ’•πŸ‘πŸ’•

Spotty-ewe profile image
Spotty-eweβ€’ in reply tomisty14

Thanks for your kind wishes Misty. I’m actually on the 2nd lowest MTX dose (10mg) because Rheumy didn’t think the lowest (7.5mg) would be enough to tackle this on-going stubborn flare. So fingers crossed I tolerate it better than the 15mg. 🀞 So far so good, but I’ll know better by Tuesday/Wednesday whether any side effects are going to occur. Take care and wishing you a speedy relief of the pain once you have the Lidocaine patched back on prescription. πŸ™πŸ» xxx

misty14 profile image
misty14β€’ in reply toSpotty-ewe

Thank you spotty for your kind wishes. I'll keep my 🀞for you as it sounds promising at last and will be in touch later in the week. XxπŸ’•πŸ‘πŸ’•πŸ€ž

Awww aren’t they cute, wouldn’t expect to see lambs this time of year so that’s a bit special πŸ₯°

Glad all went well with the pain clinic lovely, a far cry from my appointment which was awful and no help whatsoever, I’ve been all around the houses for seven months just to be told I need physio which I knew all along and was asking for , they don’t give medication for pain and offer no alternatives and won’t inject my spine because it’s a one off and doesn’t last long and can cause a flare in people with CTD’s , no follow up appointment after physio to see how I’m getting on, he didn’t have my spine MRI images to look at, didn’t examine me, didn’t have the full report with the addendum added after I asked them to look at my scan again after they missed noting the Tarlov cysts in S2/3 and then he said β€˜ I can’t tell you the cause of your back pain’ … my pain correlates with the findings of the MRI, so it made no sense to me! πŸ™ˆ this is MSK who are outsourced and I’ve found over the years do as little as possible to help, I’m not the only one in my area to have experienced this with them!

Anyway shalln’t go on about it as I feel annoyed at their lack of care and interest πŸ€¦β€β™€οΈ and your cutie pic is cheerful and lovely and I’m just glad you’ve got your appointment booked, fingers crossed they don’t move it 🀞🀞🀞🀞

Take care lovely πŸ₯°β€οΈπŸ‚πŸ’ƒπŸ•ΊπŸ» πŸ‘ πŸ‘xx

misty14 profile image
misty14β€’ in reply toExtremeDuvetDaze

Lovely to hear from you EDD and glad you liked the lambs. No, We certainly don't expect them at this time of year which is why i posted them. I wish it was Spring and not the winter we're facing. Oh Dianne, i'm so sorry at your awful experience at the Pain Clinic. That was a shocking consultation not having your MRI resukts or the info added about those cysts!!. His attitude sounded blunt and horrible and no help with pain relief or willingness to help as they won't inject spines. They have cut right back on this now to save money leaving so many in agony. Backs are notoriously difficult as how they're regarded by different dr's. So is he referring you to physio?.

I'm so very sorry and feel very grateful about the treatment i have access to. Good luck lovely for your impirtant appt's this week. 🀞they will be better. Couldn't be much worse could they?. I'll be thinking of you. Big hugs(wish i could do it in person). XxπŸ€žπŸ’•πŸ’πŸ’•πŸ™πŸ’•πŸ€πŸ’•πŸŒΊπŸ€žπŸ€

ExtremeDuvetDaze profile image
ExtremeDuvetDazeβ€’ in reply tomisty14

Bless you thank you for the hugs lovelyπŸ₯° I’m going back to my GP’s physio, he was the one who referred me to who I thought was a consultant but turned out it was MSK advanced physio, he was very nice but even he said to me β€˜to be quite honest I don’t think there’s anything we can do for you’ which took me by surprise! It’s not what you want to hear when you need help is it πŸ€¦β€β™€οΈ anyway the only good thing is that I had an MRI of my whole spine so at least I know what’s going on with it and my physio will now. I’ll make an appointment soon. He did refer me to their hip physio but I don’t hold out much hope with that either, last time I saw a physio there for my hip he told me it wasn’t bursitis and to walk through the pain, well it was bursitis and I couldn’t walk through the pain ! My GP always feels it when he injects it and says he’s never known a bursa to be so β€˜boggy’ … well it’ll be interesting, maybe they’ll order another MRI so we can really see what’s going on with my hip to. Hey ho we muddle through somehow don’t we ?πŸ˜–

I hope you’re feeling a bit better from the jab today… we live in hope 🀞virtual hugs back my lovelyβ€οΈπŸ‚πŸ‘πŸ’•xxxx

misty14 profile image
misty14β€’ in reply toExtremeDuvetDaze

I'm so sorry also your flaring EDD but it isn't surprising with all your having to cope with. No, it certainly isn't what we want to hear from a health professional saying he can't help!!. Such a horrid shock for you. I'm glad you can go to your gp physio , lets hope he can help better!. Mum went to ours for her hip and knee and he was really good so 🀞 for you. I do think attitudes have really changed in the nhs at the mo and because waits are long , if your a difficult case or not easy to diagnose they don't want to know and you become a parcel going from one dept to another!!.

I'm just so grateful when i hear these horror stories that my leg nerve injury is straightforward and treatable. Bursitis is straightforward. At least with hip thats the Orthapods who are usually very positive. Its good you've got a full MRI of your spine as you say. Do hope these next two appt's are better for you. Keeping my 🀞. XxπŸ’πŸ’•πŸ€ž

ExtremeDuvetDaze profile image
ExtremeDuvetDazeβ€’ in reply tomisty14

Thank you πŸ™ πŸ₯°πŸ’•πŸ’•πŸ’•πŸ’•πŸ’πŸ˜˜XXXX

misty14 profile image
misty14β€’ in reply toExtremeDuvetDaze

Its very possible EDD, that your flu and covid jab is contributing /causing to your flare. I feel really awful after my covid one still . Something to ask your Rheumy on thursday. Its more well known now that jabs can cause flares!. Thinking of you lots. XxπŸ‘πŸ’•

GloomyEeyore profile image
GloomyEeyore

They are just adorable πŸ₯° So happy to read that you have such a super pain consult. A good doctor makes all the difference. Xx πŸ‘ πŸ‘

misty14 profile image
misty14β€’ in reply toGloomyEeyore

So glad ge you liked the lambs. Thank you for your lovely mesdage. I'm very grateful that i do have such a good pain consultant in view of a lot of people's awful experiences on forum. Also, as its an ongoing problem that i have . Your so right that a good doctor makes all the difference. How are you ge?. Hope your long covid symptoms are improving. I read recently that 1 in 20 people are affected in UK by long covid. Thats quite a lot of you really sadly.

Take Care. XxπŸ‘πŸ’•πŸ‘

GloomyEeyore profile image
GloomyEeyoreβ€’ in reply tomisty14

I’m not doing too badly misty. Have learned to take things easy and rest when needed. I got a pneumococcal vaccine, at my consultants request, as my antibodies were low. Bloods were then taken again six weeks later. My antibodies were still low. Had to get another, different, vaccine. Bloods being taken again next week so hopefully my antibodies are normal now. Xxβ€οΈπŸ‘

misty14 profile image
misty14β€’ in reply toGloomyEeyore

Keeping 🀞for you ge and your antibody bloods. Its so important that they're better. Glad you've had the pneumonia jab. I look forward to knowing your results at next 'cutie pic' ge. Take care XxπŸ‘πŸ’•πŸ‘πŸ€žπŸ’•πŸ‘πŸ’•πŸ€ž

Beautiful picture MistyπŸ‘πŸ˜Glad that you are getting more help, with a great pain specialist 😊Hope they find the very best solution quicklyπŸ™ xx

misty14 profile image
misty14β€’ in reply toStriatedCaracara

Thank you Striated , glad you like the lambs. Thats a very kind message but its for ongoing treatment as they've found the best way to treat my leg nerve damage luckily so can keep repeating it. Its getting relief for longer and longer but its taken a long time to reach this stage working with the consultant. I hope you've made progress getting the help and treatment you need. Take care. XxπŸ‘πŸ’•πŸ‘πŸ€žπŸ‘πŸ’•πŸ‘πŸ€žπŸ‘πŸ’•πŸ‘πŸ€žπŸ‘πŸ’•

StriatedCaracara profile image
StriatedCaracaraβ€’ in reply tomisty14

bbc.co.uk/news/health-67239548

Just read this on BBC website, says a lot about communication and getting things in motion.

misty14 profile image
misty14β€’ in reply toStriatedCaracara

Thank you striated for showing me this interesting video. Its really good when these awful experiences happen to journalists as they can publicise them better than us, Rory Cellan Jones was a BBC journalist. It reaΔΊly also made me think how difficult it is for us having to cope with this new, hardened, broken NHS on a daily basis with chronic illness. What i've learnt over the years is how different hospitals can be despite being under the same NHS umbrella, it depends how they're individually run so some are coping better than others. We have to hope that we've got a good hospital locally!. This proves that good ones can still be overwhelmed. The worry is how understaffed A&E's are and how busy is it going to be when we have need of them. Mistakes though are made so we have to be vigilant for ourselves and our loved ones!. Its frightening if we think about it too much. Take care. Xx

StriatedCaracara profile image
StriatedCaracaraβ€’ in reply tomisty14

Me and my mum are thinking of moving to the health authority where a sibling is, also easier to get to London from there.

misty14 profile image
misty14β€’ in reply toStriatedCaracara

Thats a good idea Striated if you both can cope with the move. Brill to be near better hospitals and have help with caring for your mum. XxπŸ‘πŸ’•πŸ‘

Pumpkin2009 profile image
Pumpkin2009

Loved the little lambs. So glad to hear that you have found a very supportive pain consultant. It is definitely a step in the right direction. I am seeing a new neurologist this week for a second opinion on the hallucinations. I could have just continued to deal with them, but my primary care doctor is adamant that I get another opinion. I am feeling doctored out to tell the truth and really feel there are no anwers. But it is obvious, he cares so I will follow through. I saw the ENT doctor this week and the hole from the surgery didn't heal all the way, but the ear is functioning well enough at the moment and doesn't want to pursue anything else at the moment.

Wishing you all the best!

Many healing hugs.

misty14 profile image
misty14

Thank you dear Pumpkin for your lovely mesdage.So glad you liked the lambs. I'm so pleased your seeing a different neuro this week for the hallucinations. Your gp is right that you need this second opinion on them. They should be investigated and different consultants can have different attitudes about these things. Hopefully this one will be a 🌟for you. Its what you deserve. I'll keep 🀞and do let me know how you get on. Hope the weather isn't too stormy where you are and sending lots of healing thoughtwaves to you too. XxπŸ‘πŸ’•πŸ‘

KayHimm profile image
KayHimm

Those faces are so cute and open to experience that you want to try to talk to them. It is such an uplift to be exposed to beautiful little animals in their natural environment.

I bet Lino would like them. He takes the lamb’s wool out of my shoes to play with it.

Thank you for their pictures!

😘😘 Kay

misty14 profile image
misty14β€’ in reply toKayHimm

Thanx kay, so glad you like them. Lino is a lovely , mischievious , cutie himself and its great hearing what he gets up to. XxπŸ‘πŸ’•

KayHimm profile image
KayHimm

haha .. He is mischievous. Not sure what it is about lamb’s wool!

svfarmer profile image
svfarmer

Hi Misty what a cute pic of the late lambs - glad that your appointment went well with the pain consultant and hope you don’t have to wait long for the injection in your legs- things are all ok my end, the furry girls keep me sane xx

misty14 profile image
misty14β€’ in reply tosvfarmer

Sorry svfarmer for later reply. Thank you so much for your lovely mesdage.Lovely you liked the late lambs. You'll like my next one too!. πŸ˜€ Glad all ok with you and the furry girls are looking after you too. Just being able to take the dogs for a walk for a break can be so helpful. Our lives are much more stressful now aren't they?. Hopefully if my injections go ahead it will be 18/12. ,i was so lucky getting the last slot. Its tough having strong pain in 3 places so one being helped will be very welcome.

Have a good fortnight,XxπŸ‘πŸ’•πŸ‘πŸ€žπŸ‘πŸ’•

svfarmer profile image
svfarmerβ€’ in reply tomisty14

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