Low white cells

[Lioness42]

Hi everyone Hope you're all doing ok. Just wanted to ask if anyone has experienced low white blood cell due to azathioprine. I have sle and have been on these for years. Recently I had bloods done as I was feeling so run down my wcc is 1.5 and neut is 0.75. I'm waiting on a call back from rheumatologist. Just wanted to know what to expect. Many thanks in advance

[BonnyB]

Be careful because you will pick everything up thats going around and any sign of infection go for treatment promptly. Your body is unable to fight it so you're at risk.

I had letter from my consultant when my neutrophils were very low with this advice.

Take care x

[Sarahjj87]

hi lioness42

My white blood count got very low but by time I went for a repeat bloods I had developed a sinus infection and put straight in a side room.

I was given injections every other day in my stomach (sorry can’t remember what they were called!! Just remember them saying how expensive the injection where)

I stayed in hospital on antibiotics etc for 2 weeks.

please be very careful until they sort your blood out x x

[BonnyB in reply to Sarahjj87]

Typically I had things happen out of the normI fell on a walk. Cut my finger. A uti.

I think my body was weaker and I was clumsy , not sure f thats a symptom of low white blood count x

You certainly went through it xx

[Sarahjj87 in reply to BonnyB]

Am not too sure, I was definitely weaker!

I just remember hospital phoning can you come for more bloods and sit and wait for results. I didn’t want to go 🙈 I felt like I had a bad cold and just wanted to go to bed! But was dragged by my mum, good job really my white blood cells was 0.2 😱

How did they treat your low white blood count?x x

[BonnyB in reply to Sarahjj87]

I didn't gave any treatment. So obviously no where near as low as yours,

Yes, good you listened to mum x

[Lioness42]

Thanks everyone. I got through to rheumatologist and have an appointment booked for review in 2 weeks. In the meantime I'm to stay off the azathioprine.