lymph node swelling: I was wondering if anyone gets... - LUPUS UK


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lymph node swelling

Tinkerjack1912 profile image
22 Replies

I was wondering if anyone gets swollen lymph nodes at all?

My ones under the armpit seem to swell and become very tender every now and then. I have seen it can happen with Lupus and I have contacted the doctor to be in the safe side but I was just wondering if others have the same or similar.

22 Replies
Soothingsea profile image

Hi Tinkerjack1912 I get very swollen Lymph nodes in my neck, feels unbearably tender to touch like im bruised. X

Tinkerjack1912 profile image
Tinkerjack1912 in reply to Soothingsea

it is horrible isn’t it . My arm keeps catching it and it is so sore now. X

Sishey1 profile image
Sishey1 in reply to Soothingsea

I have the same - the lymph nodes/glands in my neck have been swollen for the past 10 years - without exception - I had a scan on then a few years back with nothing to see - the doc has no answers 🤷🏻‍♀️

bathouse profile image


I have swelling in my right armpit, the swelling varies from hardly anything to what feels like a golf ball. My GP took it very seriously, went to the breast clinic, had ultrasound and mammogram, all normal. I have had this for over 2 years, i went back to GP who again sent me to the breast clinic, nothing found. GP feels it is a very reactive lymph gland, I just live with it now

Whenever I flare the swelling under my armpit is worse, its very odd

weathervane profile image
weathervane in reply to bathouse

i have the same experience with Sjögren’s. When i was diagnosed all my lymph nodes were enlarged, the ones under my arms were so enlarged I couldn’t put my arms down by my side . If i flare my lymph nodes also flare up , the last time i went to gp as i was worried as I had a lumpectomy last year, it was ok . If you are concerned do talk to your gp or rheumy. I hope things improve for you x

Tinkerjack1912 profile image
Tinkerjack1912 in reply to weathervane

thank-you. I have an appointment Monday just to be safe. X

weathervane profile image
weathervane in reply to Tinkerjack1912

i hope all goes well, best wishes.

bathouse profile image
bathouse in reply to weathervane

interesting, I’m not diagnosed with Sjogrens, I have severe dry eyes, have punctal plugs and on Ikervis immunosuppressant eye drops, my eyes are so dry! My bloods are always ‘Normal’

Tinkerjack1912 profile image
Tinkerjack1912 in reply to bathouse


Potatoheat profile image

I had one in my neck in the early days , not painful but quite large. Rhuemy called in the general surgeon who was in the OPD at the time. He said come in and we will whisk it out ! So it was done as a daycase , that was about 20 years ago, no problems since. TTreatment may be very different these days, he was very old school.

Tinkerjack1912 profile image
Tinkerjack1912 in reply to Potatoheat

Thank-you for your reply. I’m seeing the dr Monday will go from there.

Liz556 profile image

Hi Tinkerjack1912

I have the same problem in my groin, neck and arm pits. This was one of the major issues when I was diagnosed in 2019. I had biopsies taken under arm to rule out CA. Now I have learnt to live with it though when I go for check up I always mention it to my Rheumatologist.

Tinkerjack1912 profile image
Tinkerjack1912 in reply to Liz556

Thank-you. I’m sure it isn’t anything to worry about.

SurferGuy profile image

Same as most of the above. I get minor swelling under my armpits, and as soon as this happens I know it's a sign of a flare or a soon-to-be-flare.

Tinkerjack1912 profile image
Tinkerjack1912 in reply to SurferGuy


Looplylady profile image

yes it also happens to me under arms groins & neck, they get very painful i think it is probably our bodies telling us to rest as it could be a sign of being run down or a virus. You are not alone here you have your lupus friends on this site.

Tinkerjack1912 profile image
Tinkerjack1912 in reply to Looplylady

thank-you so much for your reply. I must admit I am struggling with fatigue at the minute. Just exhausted.

Piscesdreamer profile image

I never had swollen lymph nodes with flares so when i noticed an enlarged NON PAINFUL lymph node in my armpit I was concerned about breast cancer. I had a mammogram, ultrasound, and mri. It showed more enlarged lymphnodes in each armpit. All specialists wanted to wait becuase they assumed they were reactive because I have autoimmune. My intuition told me otherwise so I pushed until one of the doctors agreed to order a biopsy. I had one biopsied and I have been diagnosed with indolent follicular non Hodgkins Lymphoma. What is important to know is that my lymohnodes were NON PAINFUL. That is why I asked for the biopsy. We are at higher risk for certain cancers due to our autoimmune diseases. I am glad you are in tune with your body and asking questions. ♡♡♡

Tinkerjack1912 profile image
Tinkerjack1912 in reply to Piscesdreamer

I am sorry to read your diagnosis. I am glad that you’ve got it looked into though. It is confusing what symptoms are related and which are not.

IsabelleFR profile image
IsabelleFR in reply to Piscesdreamer

Hi Piscesdreamer, sorry to hear about your follicular NHL diagnosis.

Like Tinkerjack1912 and the rest of you in this thread I was also detected swollen lymph nodes (for me it was both armpits). Radiologist says one in particular needs to be checked/biopsied because it has been growing for 1+ year now, it is hard, mobile, "centimetric", roundish, and without fatty hilum. I cannot wait for the biopsy because I am a bit worried. Still 2 weeks to go before seeing a gynecologist...

Just like you Piscesdreamer I have Sjogren's syndrome (among other autoimmune diseases.) I believe I've had Sjogren's for 20 years but no GP could make sense of my odd symptoms before now (or they said it was mild Lupus.)

Good luck to all,

Piscesdreamer profile image
Piscesdreamer in reply to IsabelleFR

Hi Isabelle, please let me know if you have any questions. This was my first core needle biopsy. I had a positive experience. The specialist who performed the biopsy was amazing. I know its difficult, but try to take your mind off of it for now.


IsabelleFR profile image
IsabelleFR in reply to Piscesdreamer

Thank you so much Irene for your kind message.

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