"A Year Since Lockdown" Online Survey - NOW CLOSED - LUPUS UK


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"A Year Since Lockdown" Online Survey - NOW CLOSED

Paul_Howard profile image
27 Replies

***THIS SURVEY IS NOW CLOSED*** Thank you so much to everyone who took the time to complete it and share your views and experiences.

It is one year since the first coronavirus national lockdown was introduced in the UK. We are supporting Cambridge University as they research to better understand how people with autoimmune rheumatic diseases, like lupus, have coped over the past year.

We would like to learn more about how you have coped, changes to your healthcare and your views on telephone appointments etc. We’re also interested in the impact of online peer support groups like the LUPUS UK HealthUnlocked Community Forum.

This study has been requested by rheumatologists and policy makers to help plan changes in care, policies and understand the patient-views, so is a great chance to get your voices heard!

The lead researcher, MelanieSloan , and several of the research team have lupus or another autoimmune rheumatic disease, so will be very sympathetic to any challenges. Please read the Patient Information Sheet for more information at lupusuk.org.uk/wp-content/u...

Contact Melanie if you have any questions on mas229@medschl.cam.ac.uk

The survey is open to everyone over 18 and from any country if you have one of the disease types listed on the information sheet or are on the diagnostic journey.​

Thank you!

GO TO SURVEY - bit.ly/CovidCare2021

NOTE: For anyone in the LISTEN study, you will recently have completed a very similar questionnaire about COVID-19 and peer support. You are welcome to be in this larger study too and complete the survey but many of the questions are the same/similar, although some are new.

27 Replies
Boudica1 profile image


CSLO profile image

Completed, thanks Paul.

GloomyEeyore profile image


happytulip profile image


Spanielmadlady profile image

👍 sorted

Barnclown profile image

🤗 Done 👍👏👏👏👏

Choccy8 profile image


DJK99 profile image


Horsewhisper profile image

Done 👍

MelanieSloan profile image

Wow, thanks everyone! What a great responsive community, we had over 200 surveys completed within the first 2 hours of Paul posting this.

This great response has two very positive outcomes, 1) it makes the research community understand how helpful and keen to be involved in research lupus patients are and hopefully do much more research, and 2), it gives more opinions for this study which makes policy makers and the doctors take our results more seriously.

So thank you so much to everyone who has already completed the survey and if you haven't yet done so, please do complete if you have the time/energy :)

Poppypig profile image


Krazykat26 profile image

✔️ 🌈😽😽xx

Nikkisrf profile image

Done. Love doing them. Hopefully a way to change things. Thank you Paul for the opportunity 😊

ExtremeDuvetDaze profile image

Done ✅

Poshcards profile image

All done Paul, as per the other ones too, very important to fill in these surveys xx

MrsMouseSJ profile image

thank you for posting, Paul.

Cas70 profile image

Done !!

Done ✅

daisydayz profile image

👍me too!

Happykins profile image

Done, thanks for the opportunity Paul & Melanie.

Willow1414 profile image

Hi Paul

I’ve tapped on the link , not sure why , it says 400 bad request ???

I’m also unable to add any photos to my posts , and all links posted I get 400 bad request on my screen , it looks like the link goes to open , but then I get 400 bad request ??

Any ideas 🤷‍♀️🦋❤️

Paul_Howard profile image
Paul_HowardPartner in reply to Willow1414

Hi Willow1414 ,That's strange. Are you able to access it via this page on the 'Latest News' section of the main LUPUS UK website? - lupusuk.org.uk/lockdown-sur...

Willow1414 profile image
Willow1414 in reply to Paul_Howard

Hi Paul ,

Wow it took a while , I’m now back up and running with access to lupus Uk , all sorted now I hope , have missed reading and adding to posts . 🦋❤️

1dayatatime profile image

Done. Thank you Paul for all your valuable support x

JCZW profile image

All done 👍

SurferGuy profile image

Just completed 👍

stiff19 profile image

Thankyou completed

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