If you have a rare autoimmune rheumatic disease such as lupus, scleroderma or vasculitis, please spare us some time to complete this online survey; lupusuk.org.uk/rairda-survey/
The findings will be featured in a report that will highlight areas in need of improvement in the way care and support is provided. The report will used to bring these issues to the Department of Health, Parliament and other key organisations, with a view to working together to improve care.