Hi everybody. Today is World Lupus Day.
To mark the event we've just released our new awareness video. It features three people with lupus talking about their experiences of getting diagnosed. You can watch it here.
From a survey of LUPUS UK members, we found that it takes an average of 7.5 years from the onset of first symptoms to get a diagnosis. This has remained roughly constant for decades. This delay in diagnosis needs to be reduced.
I think it would be great if lots of you shared your diagnosis stories to help highlight this issue and raise awareness today. Perhaps you could even video yourself talking about it on your webcam or phone and upload it? If not, please write about it in the comments below.
Please share the video. Also, if you're on Facebook, please pop over to our page today, join in the conversation and share the facts we are posting throughout the day.