You may remember that I've been feeling confused because I've been getting a negative ANA result and low ESR readings, but I feel worse and worse - I hurt all over with fluey aches, burning pains, stabbing pains, regular headaches with a stiff neck and increased fatigue. Well I have my answer at last: I HAVE FIBROMYALGIA. And the Lupus is 'currently inactive'. Wow I didn't know that could happen. But of course I don't feel any better (worse actually) because the Fibromyalgia has taken centre stage and is shouting loudly! My sleep quality is pretty bad so I'm now taking melatonin (on prescription) to help and I have a treatment plan to do 5-10mins exercise per day and build up slowly. I've been offered other pain killers too and anti-depressants. I'm still taking a very low dose of LDN too - which is helping to keep my mood level and help with the pain.
Anyway I thought you might be interested to know.