ive not been well for 6 years, all the usual Lupus symptoms, my rheumy says (in my last letter) i have Lupus Like Syndrome, i missed my last appointment as i was exhausted and in too much pain to do the 6 hour round journey.
The last two weeks i have had trouble with my jaw, whenever i try to eat i get a shocking pain that last for 3 hours and end up with a milkshake, it even hurts to talk, also i have 3 boils in my groin area that are very painful, i was wondering if anyone else get these symptoms?
Its been a bad day for me, having trouble walking but managed to get 3 loads of washing done, i made the mistake of going in the garden to peg it out, i was only out there for 5 minutes in the sun and ended up with a bumpy red face hot and cold sweats, raynauds in my hand, i just collapsed on my bed as if someone had removed my batteries.
Im getting really fed up of the useless monster ive turned into, i get big lumps on my lips that split and scar, there are days when the staircase seems impossible, im always covered in bruises where i fall over all the time, oh to be 'normal' again! i cant look in the mirror any more, its just too depressing to see my fat red faced crusty lipped image staring back at me, lol
well, if i don't laugh ill end up crying and if i do that it could last for hours.
and now its time for bed and im wide awake!
maybe tomorrow will be better, here;s hoping.