I was wondering if anyone here has been diagnosed with both? I have lower back pain, but never had any X-ray that shows any degenerative changes. My rheumatologist mentioned last Thursday (over a phone appointment) that he thinks it is osteoarthritis in my lower back.
I have significant morning stiffness of my ankles, knees, and left middle fingers in the morning. But never does any X-Ray show any changes in the joints. He has mentioned poly arthritis to me several times.
The last blood work I had, he says they don’t any active inflammation, and that is great! But I was feeling really good on the day it was taken. I have more of the same bloodwork in three months , and every 3 months for the next year.
I am just tired of not knowing what is going on. One minute it is this, then something else, then it back to what I was told in the first place. It has been 30+ years that I have been in the dark. I have been told by the rheumatologist that I have lupus with a blood clotting disorder. (He was assigned to me while I was in the hospital, and told me I had 8 of the 11 criteria for lupus - something I had never heard of before my sister and aunt had kidney trouble because of it.) The other specialists don’t get along with this one doctor, so they tell me, really, what I have is “ bad luck”. I am ready to give up. I have had 9+ pulmonary embolisms in the past year and a half. I have had new clots on blood thinners and while wearing thigh high compression socks every single day! Bad luck?
Sorry. I don’t usually vent about this or talk about it to anyone, but I have just about had it. I am seriously at the point of just stopping all my medications. Blood thinners, Plaquenil, pain meds etc. the pulmonologist I see was saying he doesn’t even know why I am being given Plaquenil, because the rheumatologist is giving me such a low dose ( I take 200mg in the morning, and 200 at night). Ok fine. I have researched it all and none of these drugs are prescribed for bad luck. 🤷♀️🙄 So, yeah, why take them?