Jaw/cheek pain!!?? : I recently was diagnosed with... - LUPUS UK

LUPUS UK

32,249 members28,608 posts

Jaw/cheek pain!!??

ZA31 profile image
ZA31
6 Replies

I recently was diagnosed with lupus and Sjögren’s, I was given a steroid shot to deal with pain and started hydroxychloroquine. However the pain in my jaw and cheek bones has suddenly become really bad, nothing seems to alleviate the pain, any advice?

Written by
ZA31 profile image
ZA31
To view profiles and participate in discussions please or .
Read more about...
6 Replies
MusicalFurbaby profile image
MusicalFurbaby

Hi ZA31, definitely get it checked out. I feel your pain, I have terrible TMJ pain on both sides. The jaw is one of the most painful areas of the body, in my opinion!

Where do you get your pain? Can you describe the quality of the pain - dull, aching, sharp, throbbing? The more specific you can be, the more we’ll be able to help. ☺️

I get not only jaw pain but clicking and grinding sounds, and my jaw frequently locks. I am unable to eat on one side of my mouth most mornings. I got it checked out and only when they tried to xray my jaw did they discover significant abnormalities and corrosion - no wonder I was in pain! I ended up seeing a maxillo-facial surgeon (jaw expert) who recommended surgery.

So definitely look into it. I was glad I did. You might need some scans and maybe an expert, especially if painkillers aren’t helping, and especially if it’s getting worse instead of better.

Let us know how you go, and feel free to ask more questions!

ZA31 profile image
ZA31

My father in law is a dentist abs I don’t think it’s an infection as such, I’m presuming something to do with the auto immune condition? But I don’t know, just want it to stop!

ZA31 profile image
ZA31

Hey! Thank you for the message! It’s definitely both sides of the jaw! I can feel pressure in my cheek bones and jaw as though I’m constantly doing a headstand, very very uncomfortable! pain comes and goes, it hurts to open my mouth, chew food and at its worse it even hurts to talk 😔! I just got diagnosed 2 weeks ago and I’m feeling so emotional! It was only my hands and feet before and now suddenly my jaw! The jaw has been really putting me down it’s such a sensitive area!

My rheumy told me to try diazepam, so I’m going to try that tonight! I really just need a break from it!

Was your corrosion because of your auto immune disease?

positiveness profile image
positiveness

Have you ever thought it to be trigeminal neuralgia? I have MS and I didn’t think Oxcarpazepine and not overdoing it would help.

positiveness profile image
positiveness in reply topositiveness

But it did

ZA31 profile image
ZA31

With trigemeninal neuralgia, how would you describe the pain? Xx

Not what you're looking for?

You may also like...

Jaw Pain

I know people have written before about this, I think. I have terrible jaw pain right now. Started...
Natura profile image

Jaw pain

Sorry to have a bit of rant again but thinking of coming off methatrexate got a little cold thought...
Ianrussell69 profile image

Jaw pain

I was getting severe pain in my ear it felt like someone was stabbing my ear inside I went to my...
STAY-C profile image

Jaw pain

Does anyone else experience pain in their jaw? My jaw momentarily dislocated at the end of last...
Haubrey1 profile image

Lower jaw pain?

Hi there Iv bin getting really bad jaw pain on my left side, it's more at the back where my back...
Mainshah profile image

Moderation team

See all
Debbie_kinsey profile image
Debbie_kinseyAdministrator
chelseawong profile image
chelseawongAdministrator
michaellasmith profile image
michaellasmithAdministrator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.