Does anyone suffer from jaw/facial pains? It feels like what I am assuming that lock jaw would feel like. It doesn't feel like spasms but it is painful maybe like cramps a little. The pain is frequent and very hard to describe. Should I call my rheumy about this?
Yes! I don't have a diagnosis apart from " auto immune illness ", lupus bloods are equivocal and C3 complement low.
Pain has been present for 10 months now. It started in my jaw and soon spread to my nose. I also have headaches and blurry vision, all 3 symptoms are connected. At first I couldn't eat, lost 8lb in 5 days, my weight has stabilised since but eating is still a problem. The pain has settled with high dose prednisolone and methotrexate, still get flare ups.
This is against a background of 1 year of fatigue, weight loss, arthralgia, myalgia, anemia, low Vit B12 and Vit D.
Have tried conventional painkillers, Gabapentin and amitriptyline with no effect.
I would definitely phone your Rheumy as jaw pain can be an important symptom.
If you get any answers/ diagnosis I would be interested to hear about them.
Thanks so much for your response and telling me your story. I was just recently diagnosed and the only thing im on is plaquenil. I will call rhuemy and let you know if i find out anything. There is just so much to take in and the constant aches and pains are horrible. I have constant chest pain, headaches, blurry vision and now this strange jaw/face pain.
Plaquenil (hydroxychloroquine) soon you'll be on prednisolone, azathioprine and ad cal I've been on this medication for 15 years
Maximillian thanks for your response. If you dont mind sharing what are the other meds treating?