Heartbroken : Today my beautiful friend Jo lost her... - LUPUS UK

LUPUS UK

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Heartbroken

CecilyParsley
CecilyParsley

Today my beautiful friend Jo lost her battle with Covid. I am heartbroken for her and her four children l Jo and I became friends in a Lupus group nine years ago. She had lost her lovely Mum and her younger sister to Lupus and her older sister has Lupus. Jo was diagnosed with SLE by Professor Hughes but sadly subsequent Rheumatologists have been less than helpful and she has despaired like so many of us. We were “ just Facebook friends” to the world but we shared so much and I genuinely loved her. Last year we were due to actually meet up in person. I feel so sad that now this will never happen. I just needed to share this here in this safe space.💔

80 Replies

So very sorry to hear this cecily, thinking of you at this sad time , can say no more as words will not suffice but thoughts with you and your friends family 🙏❤️X

Thank you so much xx

So sorry cecily xx

Thank you so much xx

I’m sorry to hear of the loss of your friend 🌸

Thank you so much xx

So very sad to read this . Lupus and now Covid too. I am no longer shocked by the lack of care for those with A I and Lupus . BUT it does not make it right and is a terrible situation in this so called enlightened times. It so often appears that being forced to travel to experts in their field is setting us up for resentment and worse care. Wendy has so often flagged. Please pass on my deepest sympathy to the family . Sending you a big hug and love.I know how important these friendships become. Lou xx

Thank you Lou. She deserved so much better xxx

I know. xxxx

Oh my goodness. I'm so very sorry to hear of everyones loss. Such a sad time we are living in! Try to stay strong and keep safe and if it becomes overwherrrrrlming, remember to fight your battles. Big or small, for her. God bless, may she rest in eternal peace xx

Thank you so much xx

Our thoughts are with you and her family, sorry for the loss of your dear friend.

Thank you so much xx

I am so sorry, Cecily. I can tell how much Jo meant to you. She looks like a beautiful person.

Thinking of you.

😘 Kay

This is so very sad. I feel for you and for Jo's family. All so unnecessary and horribly tragic.

Awful to hear this, CP. We are all with you at this very sad time. Take care, xxx

Awful to hear this xx so sorry for the loss of this beautiful person xx

I am so sorry for your loss.

Tragic. So sorry.

Oh how very tragic. I am so sorry for the loss of someone you loved and the loss of the dream of meeting. We do indeed live in such sad times. Take the greatest of care and I know the whole community will be thinking of you. xx

Oh my sweet CP 🤗🥰🙏I’m so sorry to hear this tragic news. I can relate. I too lost a dear friend that we bonded to the point of being ‘sisters’.

I met her during my years of therapy in my rehab center. She moved away to take care of her parents. Then we never got to see each other again. I lost her to diabetes about 5 years ago. Her hubby was kind enough to keep his promise to her to call me if she should pass.

It broke my heart💔😭 and I will always have a void inside because should took a large piece of me with her on that day.

Sweetie I’m here when you need me just let me know.

Sending you my warmest loving hugs kisses 🥰and prayers 🙏hun.

Abundant blessings dear friend.

EJ ♥️🙏🕊🌿🌸🦋

I am so very sorry for the loss of your friend.

So sorry and sad to read this. Lots of love to you and her family xx

My heart to her, dear Jo. My prayers to her children, and her family. My Love to you Cecily, because it is the greatest gift we can give each other. Holding all close with blessings, sympathy, and peace. Xxxxxxx

honeybug
honeybug in reply to thestorm

♥️🥰

So sorry to hear about the loss of your friend, Jo. Regardless of how we meet our friends they are important to us, especially when we have a common condition like lupus and have supported each other.

Sending gentle hugs and love your way. Meg 💕xxx

Oh Cecily I’ve only just seen this - I’m so very sorry for the loss of your friend - she looked a beautiful person 😢💗

So very sad to read this CP, a tragic loss to you and Jo’s family. This is indeed a safe space and hopefully our collective thoughts and prayers will help you at this difficult time. Thinking of you 🙏🙏🙏

🥰♥️

I'm so sorry to hear this Cecily. Just so sad. Thinking of you xx

I’m sorry I missed your post this morning Cecily and I’m so sorry to hear the sad news of Jo. Although you never met in person I can understand your love and closeness for each other. My heart goes out to you Cecily. I’ll put up a post for you now as you appear to have been blocked from the site for some reason, just to add to your misery. Hoping you’ll be back on the forum very soon. Love and hug. 💜🤗😘

honeybug
honeybug in reply to Spotty-ewe

🥰♥️

So sorry for your loss. I have a best friend whom I met on this community and I’d be heartbroken if anything happened to her so I can relate 😥🤗🥰🤗🥰

honeybug
honeybug in reply to 282523

♥️🥰

Our deepest thoughts for Jo and her family. Sincerely Kevin

I’ve just read this , CecilyP. So, so sorry to read this heartbreaking news. Sending ❤️ love and 🤗 hugs to you and Jo’s family. I’ll be thinking of you . 🌺🙏

honeybug
honeybug in reply to Barbara17

🥰♥️

HiSo sorry to hear such sad news. My thoughts and prayers to you and her family.

😢❤️😘

This is heartbreaking CP, I'm so sorry for you, and her dear children and family. These are awful times and to add in such a tragedy like that to cope with when many of us are feeling so alone. I am so sorry and hope you find some support and love from the amazing folk on this site and beyond. Sending strength xx

I'm so sorry CecilyParsley. What awful things your friend Jo's family have had to cope with; the lupus and now Covid. Sending hugs.

I’m so sorry to read this Cecile. How desperately sad for Jo, her family and you. It’s yet another stark reminder how brutal COVID is 😢. Sending you much love xx

So sorry to hear that u lost your dear friend Cecily 😔 my thoughts n prayers r with you n Jo's family at this awful time 🌈😽😽xx

So sorry for your loss xx

Sending you love Cecily, such sad news jx❤

I am so sorry Cecily to hear about the loss of your dear friend . Be kind to yourself 🌹xxx

I am so sorry to hear this. My thoughts are with you and Jo's family.

Oh that is so sad Cecily. It’s a beautiful photograph which conveys a warm and beautiful soul. Hoping her family and friends are able to reflect on the good times and that this will give you some comfort.

God bless you all. Virtual hug 🤗

So sad to hear of the lost of your friend Jo.

My heart felt wishes go out to Jo’s Family & Friends.

Stay Safe during these difficult times. 💐

Such sad news 🥲. As for Dr’s, it seems too often common place not to get the care or understanding from Professionals. Have a condition and often battle ongoingly with the medical profession (it’s not just Rheumy’s unfortunately). All wrong! My heart goes out to Jo’s family and friends x RIP

To lose a friend is heartbreaking. look at all the comments you have had, just know the loving arms of your lupus family are hugging you tightly - hope you get some comfort from this. Much love X

Jo was blessed to walk her path with you by her side. She will always be beside you. Peace, Polly x

So sorry x

Sorry for your loss

Hi Cecily I'm am new to the group. I'm so sorry to hear about your loss. My thoughts are with you at this sad time.

Very sorry to hear this sad news Cecily. My prayers are with Jo and her family. And thinking of you in such difficult times. Love, x

Sending you much love. It’s so sad to hear. Thinking of you and Jo’s family. X

So sad. Thinking of you.

So very sorry to hear this awful news. You take care xxx

I am so sorry to hear about you friend. Heartfelt sympathy and prayers for you, her and her family. 🙏❤️

So sorry to hear this sad news 🙏 X

I'm so very sorry for the loss of your FB friend. We build up some great relationships there with people we have never met and it does hit hard when things happen to our friends. Can I ask if she was shielding at all and did Covid come home to her? Just my husband's on the ambulances and it's a worry he will bring Covid home.

Regarding the lack of care for us Lupies, this is so very true. I've not seen or heard from a rheumatologist in over a year, had to request blood tests over 5 times through the secretary who have actually know as I work in the same hospital! In the end my dermatology secretary went down to the department and got me a blood form sent out.

Once again sincere condolences to you and the ladies loved ones.

CecilyParsley
CecilyParsley in reply to MandaM

She did not have a Rheumatologist. He told her she was obese and had Fibro. The Neurologist totally missed the info on her MRI fir six months that she was fitting and blacking out. A registrar reviewed her and she was put on anti epileptics. They dismissed that it could be Lupus related. She was not shielding as such as no one considered her vulnerable but she avoided going out because she felt so ill. She believed she had a chest infection before Christmas. Her four children all tested negative for Covid so they do not know where she caught it from. Only when she was admitted with Covid did they say they would not resuscitate because of Lupus. I feel broken hearted that she was so badly failed. I hope that you and your husband stay safe Manda xx

MandaM
MandaM in reply to CecilyParsley

Poor lady, how utterly disgraceful. So pleasing to know that is Lupies are considered as futile lives to resuscitate too. 😡 My heart bleeds for you all. 😭

MEGS53
MEGS53 in reply to CecilyParsley

Oh no, Cecily

This is too awful for words.

My thoughts and love to you and Jo’s family, xxx

What a lovely tribute to your beautiful friend. My heart goes out to you and here family. I’m so very sorry.

Sending love xx

I am so sorry to hear about your lovely friend and she looks so young and also to loose so many in one family to lupus xx

So sorry to hear this, such sad news 🙏🙏🙏

Dear CP

I am so truly sorry for your loss. How heartbreaking for you and her family. Thinking of you all.

My sincerest condolences

xx

Thank you Wendy. Her daughter messaged me this morning, they cannot even have a funeral until the end of February. The last time her 16 year old son saw her was as she left in the ambulance Boxing Day. I am so utterly heartbroken for them. Bad enough losing your Mum but then all this on top is just so awful. She was a wonderful single Mum who lived for her children xxx

Oh my goodness. I was going to ask how old her children were. Mine are 12, 15 and 16......So can’t think of that scenario without shedding a tear. My worst fear. Who will look after them? Life can be so cruel. Those poor children. xx

Her oldest daughter is 27, then the next one is 23, 21 then 16. The two girls got to talk to her on the phone ( nurse held her phone to her ear) and were able to say goodbye but the two boys have not had that chance. Thankfully Jo had wonderful friends who I am sure will help them all that they can. The Go Fund Me has raised over £7,000 in four days to help them. The two girls are hairdressers and cannot work because of Covid and the youngest boy is still at school 😞 xxx

A horrible, cruel situation for them all. It sounds like they’ll all be able to stick together and get through it. I’ll be thinking of them and you too. xx

Thank you Wendy xxx

So sorry, I do not have the words to express. I am sending a hug 🤗 thinking of you and your lovely friend Jo M x

Hi Cecily ParsleyI'm so sorry for the loss of your friend from covid19. While she may not be here in body she will be forever in your heart and memories. Take care my friend.

That is so very true. She was such a wonderful person despite all her health problems we always managed a giggle xxx

I'm so sorry for your loss Cecily. She looks beautiful and full of radiant energy, may she rest in peace x

She really was such a wonderful friend to so many. Thank you so much xx

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