This lupus thing is really driving me crazy, why can we not find a relative reason to this craziness?
I would like to hear what type of hair and skin conditions anyone had or remembers having prior to their lupus days. I will start with my mother, then me then what my daughter has and does deal with.
Mom: would often get what she called sweat bumps on her scalp, itchy like crazy, like our photosensitivity pimples we get. My child hood memory of taking a comb and scratching then until they almost bled to give her relief.
She would also have excessive dandruff but only in certain areas. And the more she had me and my sister "scratch" her head with the comb the bigger the flakes got and more relieved she felt. I understand that a scalp massgae is so soothing, but this would alleviate her pains.
Hair loss. By the clumps. I can remember seeing her, sitting at the kitchen table (I know this sounds gross) and running her fingers through her hair and have oodles of hair just wisp away as she waved her hand away from her hair. But she never really "lost" hair, it always grew back full and healthy.
Me: I had eczema as a child. I remember being sent to a dermatologist and myom having to use some special shampoo on me. It was never bad and I only remember it occurring a small handful of times.
Long silky blonde curly hair. That was me with clumps of it coming out, just like my mom's and still does. But my hair was always envied by people. The shower would always have to be cleaned when I was done. Hoards of hair was lost but new growth came in, just like my mom's.
Dandruff, identical to my mom's when I was a child, teenager and young adult.
I would also (and still do) get those "sweat bumps" the only difference is, my bumps now turn into bald spots.
My daughter: hair loss by the handfuls, dandruff that is atrocious! But no "sweat bumps"
There are some genetic similarities between the three of us. Oh! One other thing I failed to mention. My daughter's hair takes 24-36 hours to dry, mines does the same if I ponytail it right after a shower. This happens regardless of season, humidity level and heat or cold.
Maybe I'm grasping at straws because I am worried about my daughter having lupus and I am seeing commonalities among us, then again, maybe I'm not grasping and am just being aware?
But I would like to hear other people's stories surrounding their hair and scalp prior to diagnosis.