Sharp pains an cramp

[Vsully]

Is it just me or does anyone else suffer with cramp and needle like stabbing pains in there hands and feet as this seems to be getting more common for me,not so much worried but very curious as to what it may be x

[Spanielmadlady]

Yep I do.mine is caused by b12 deficiency anaemia which I have injections for every 8 weeks .b12 DA is also a AI illness.you can try taking b12 as its water soluble c

[panda2]

I do too, but don't have any vitamin deficiencies. They hurt like the blazes, don't they? For me they are like electric shocks. Sometimes quick stabs, other times sustained for a few seconds which are far worse.

I can get many in a day/night. Or none at all. They can go on for a couple weeks and pause for many days too. It's my understanding that if no deficiencies or another condition is at play, they are a nerve reaction which has been affected by the CTD. The neurologist I saw at the very beginning of my diagnosis explained that nerves share embryonic tissue with the skin and so they can get involved when the disease is active.

Panda x

[Vsully in reply to panda2]

Yes mine come and go,but when they come it can be like an electric shock and really sharp that it can actually make me silently say Ouchh you b??.

[MEGS53 in reply to Vsully]

Yes, I get them too and they really, really hurt - you have my sympathy. I can get them for days and days on end and then they suddenly stop, only to start up again weeks later. I don't suffer from cramps but I do have vit B12 deficiency, caused by gastric parietal cell AI, but it is well controlled with injections, I think. I agree with the 'ouchhh you b......!

[Vsully in reply to MEGS53]

Haha ye I'm getting them in my toes at the moment,so am walking around the house to try ease it x

[panda2 in reply to Vsully]

Can they hear us? 👻😊

[MEGS53 in reply to Vsully]

Shout out loud 'ouchhh you b......' if it helps. Unless you have the vicar around for tea!!

Sending hugs and hope that it passes soon.

[Vsully in reply to MEGS53]

Bless ya meg and thanks for the hugs and no deffo no vicars around me lol,but didn't need to shout out loud as I just took antihistamines Haha,but will give a big shout out to all of yous for being so caring hugs all around x

[MEGS53 in reply to Vsully]

lots of hugs back to you, xxx

[panda2 in reply to Vsully]

They are called ‘the pains that make me shout’ at our house. 😊 So yes exactly like yours.! Electric shocks, yes. Terrible. So sorry you have this too.

Px

[MEGS53 in reply to panda2]

Yes, they feel exactly like electric shocks. A few years ago I had them in my heart - in my opinion - which felt like very strong ectopic beats and led to diastolic dysfunction and stiffening of my left ventricle (dx'd by a cardiologist). I still get this, but it is lessened by BP medication.

[panda2 in reply to MEGS53]

Woah! That is major! Good the cardiologist spotted it.

The closest I got to such bizarre one was when being injected with the dye for the CT scanner on an icey day. The room was freezing and they had to warm up my arm with a warm water glove balloon. If you remember rubbing balloons on your head and getting shocks, well this created an in-vein shock current straight up my arm and around the body. Holy crap!

[MEGS53 in reply to panda2]

Arrhh, that sounds awful! The things they do to us - not deliberately, hopefully!

Yes, it was very scary and it lasted about a year until they sorted my high BP with medication. I'd always had low BP before the ectopics started. Mind you, nobody has actually attributed my heart problems to AI, as yet. Maybe I just have an awful lot of co-morbidities, but my journey started with the violent ectopics and breathlessness (about 10y ago). Cardiologist says I now have subtle signs of heart muscle degeneration.

Take care and stay safe

[panda2 in reply to MEGS53]

Sounds very scary indeed. Sorry to hear of the degeneration too. And for a whole year to go by without understanding or having it under control...😬 That's a lot of stress. It really is no wonder we all must develop our own theories. You take care too.

Px

[MEGS53 in reply to panda2]

Thank you so much, xxx