Oral thrush? : Hello all, Hope you’re all keeping... - LUPUS UK

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Oral thrush?

Cazza_dow profile image
14 Replies

Hello all,

Hope you’re all keeping well and taking it easy 💚

I was just wondering if anyone else had had oral thrush with lupus? I was put on steroids around 2 months ago now and the last week I’ve had terrible burning chest which is proving to be oral thrush... and just feel unwell/sore, tired

my gp told me to buy some gavascon but will that work? I feel like the damage is done, maybe by the steroids?

Appreciate any insight! Or if I should keep pushing the go,..

Thanks so much in advance x

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Cazza_dow profile image
Cazza_dow
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14 Replies
PMRpro profile image
PMRpro

Gaviscon won't deal with thrush - you need something like nystatin.

It is a common adverse effect of corticosteroids. Press the GP for something that will work. In the meantime salt water or sodium bicarbonate mouth rinses may ease the discomfort. Yoghurt also often helps.

healthline.com/health/thrush

Cazza_dow profile image
Cazza_dow in reply toPMRpro

Thank you!

I thought that too... thanks for helping, appreciate it! Shall push the GP on Monday x

CecilyParsley profile image
CecilyParsley in reply toCazza_dow

I was going to suggest Nystatin too. It is miserable. Your GP should know Gaviscon will not help the thrush. I hope you get some help xx

Cazza_dow profile image
Cazza_dow in reply toCecilyParsley

Thank you for your reply! It really is miserable, takes over doesn’t it! I shall be onto my gp tomorrow, take care x

Oshgosh profile image
Oshgosh

Hi,will try to keep this as concise as possible.

Have diagnosis of NSIP( lungs) SLE RD.

For a few months have been suffering increased shortness of breath,oral thrush,ulcers.i assumed it was caused by the Myclophenate.

I kept going ver hot,then very .

cold,then clammy.

My hospital team asked me to send a sputum sample through the GP.

THE Receptionist said it showed yeast- fungus,. She ad used me to ring the hospital team to see if they wanted it to be treated. I left a message.

Yes,they wanted it treated.ASAP.

I had a 2 week course of Fluconazole.

Ihad a face 2 face consultation with the lung consultant last week.

He said that the fungal infection had made me worse than normal ! Apparently Azithromycin can make youprone to this.

So. I now have a little more knowledge.

Cazza_dow profile image
Cazza_dow in reply toOshgosh

Hello!

Thank you so much for sharing your story and this information with me.

I hope your chest has eased off and you’re feeling better now? I’m glad that they found the cause and know you are aware!

Hmmm yes this sounds similar to my symptoms, I need to put my foot down with my gp!

Thanks again x

MissusTee profile image
MissusTee

I get it when on antibiotics, you need nystatin.

chrisj profile image
chrisj in reply toMissusTee

They prescribed that for me when an asthma spray with steroids in it gave me oral thrush, its good stuff.

Heatheric profile image
Heatheric

I've had oral thrush, usually following antibiotics or just when I've been a bit tired. I found nystatin didn't clear it and needed tablets (sorry I can't remember the name) that was advice from the lupus uk book. I was advised by my gp/pharmacist to use corsodyl mouthwash as a preventative and if it flares I also use daktarin gel and that keeps it at bay.

chrisj profile image
chrisj

Hi - I was given an emulsion with a dropper. The thrush in my mouth was at the back of my throat and tongue caused by a steroid asthma spray, it made me feel unwell. The emulsion shifted it really quickly.

No burning anywhere, I suppose it depends on what caused the thrush. Hope you find some relief, Gaviscon is usually excellent at dealing with acid/burning.

Just read MissusTees post!! Nystatin is the name of the emulsion...it worked a treat and tasted lovely xxx

PMRpro profile image
PMRpro in reply tochrisj

Didn't anyone tell you to rinse your mouth after using the asthma spray? Does make a difference!

chrisj profile image
chrisj in reply toPMRpro

Not at that time no, but since then had a change in asthma spray, this one has a small amount of steroids in it and I now know to rinse every time :)

PMRpro profile image
PMRpro in reply tochrisj

So simple but saves a lot of agony!

Cazza_dow profile image
Cazza_dow in reply tochrisj

Thank you for sharing this! I shall go forward to my gp tomorrow with this name :) take care x

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