Skin: As you can see in the photo, i have places on... - LUPUS UK

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Skin

Tiras profile image
20 Replies

As you can see in the photo, i have places on my arm now. it is not just the skin on my feet I have an issue with! It is the skin on my entire body. My skin has gotten so bad, that just to barely bum it even on a round surface, doesn’t have to be a sharp edge, my skin will just roll up, and or peel off. It is to the point I have to wear soft flexible clothing (leggings) to protect my skin, especially if I wear jeans. Jeans will literally wear the skin off everywhere they touch, with out a protective layer.

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Tiras profile image
Tiras
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20 Replies
LupusKaren profile image
LupusKaren

Oh Tiras, my heart aches for you, your photo's are just heartbreaking to witness, and yet here you are with such a wonderful attitude and humour. Sending you a gentle ((((air hug)))))

Tiras profile image
Tiras in reply to LupusKaren

Thank you!

I try to make people smile, maybe even a laugh, it it helps them forget their troubles and pain, even for a few seconds. To me that’s what’s it is all about Helping others. Lord knows y’all help me!

Hope you have a fantastic Sunday!

Ianrussell69 profile image
Ianrussell69

So sorry for you mate that must be miserable please don’t be offended but I’m not go8ng to like this post as it dose not feel right please keep posting it’s good to here from you again

Tiras profile image
Tiras in reply to Ianrussell69

Thank You!

I understand there should be a do not like button!

Ianrussell69 profile image
Ianrussell69 in reply to Tiras

Apart from your skin how’s your health

Tiras profile image
Tiras in reply to Ianrussell69

Well, 3 weeks ago I was diagnosed with cancer. It is contained to 30% of the prostate. Doctors are 95% sure they can get all of the cancer with surgery?

Ianrussell69 profile image
Ianrussell69 in reply to Tiras

So sorry you really are going through a bad time but I have to tell you I work with a couple of lads well I’m 50 in July and there probably 60 who had prostate cancer who left it far to long to go and checked out and they have recovered and are in full remission so please chin up and get well very soon

Tiras profile image
Tiras in reply to Ianrussell69

Thank You!

The doctors say that they are 95% sure that they can get all of the cancer with surgery!?

Lisalou19 profile image
Lisalou19

Wow this is heartbreaking to see. I feel for you and pray that this can be sorted.

I hope you are coping as best as you can xx

Tiras profile image
Tiras in reply to Lisalou19

Thank you! Yes carrying on as usual and the best I can!♥️

milkwoman profile image
milkwoman

Oh, Tiras. This must be so difficult to constantly deal with. 😞

Question: do you take any supplements for skin health? I’m just tossing around thoughts here. Your skin is losing its strength from within (I’m guessing) so perhaps you have some nutritional deficiencies? Thinking collagen, vitamin A, vitamin E, Zinc, Selenium , vitamin C. There could be more.

I know you are treating your skin from the outside with the help of your dermatologist. Just wonder if you are also treating things from within. Us lupus patients often suffer from poor nutrient absorption so various deficiencies can arise despite eating a healthy lifestyle.

Just a thought. Hang in there! 😊

Tiras profile image
Tiras in reply to milkwoman

All blood work comes back ok, except potassium and calcium are sometimes low. Other than that everything is ok?

milkwoman profile image
milkwoman in reply to Tiras

There’s a difference between ok and optimum. 😊 “Standard Ranges” sometimes just don’t work for those of us that are chronically ill. Also, what’s rolling around in the blood can be vastly different from what is getting into the system on a cellular level. Last spring I did some functional medicine tests and found deficiencies not seen on standard blood results. I also found out I do have gut absorption issues so I’m working on correcting that so that I can actually absorb the nutrients I’m taking in.

I am by no means an expert in skin conditions so it would take some research on your part to see if there are any nutritional needs that need addressing. I just hate to see your skin wasting away if there’s something that can be done about it!

milkwoman profile image
milkwoman in reply to Tiras

I just realized as I was making my lunch smoothie that I take a Collagen Protein supplement that you may want to try. It’s a powder that you mix into a beverage of your choice. Besides protein, it has whole bunch of amino acids.

You can read all about it here:

store.amymyersmd.com/produc...

THE MYERS WAY® COLLAGEN PROTEIN:

- Supports a healthy gut lining and normal intestinal permeability

- Promotes vibrant hair, skin, and nails

- Helps maintain healthy bones and joints

- Keto friendly and paleo approved

- Promote fat loss and optimal lean muscle mass

- Is tasteless and mixes easily into any hot or cold beverage

Tiras profile image
Tiras in reply to milkwoman

Thank you! I will try and find this, it definitely won’t hurt. I do appreciate everything, helping each other! I LOVE IT!

♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️

milkwoman profile image
milkwoman in reply to Tiras

You are the best, Tiras! ❤️

You can only get it online from the Amy Myers website. Her stuff is great!

Correction: you may also find it on Amazon.... 😊

Tiras profile image
Tiras in reply to milkwoman

I’ll see what I can come up with?

Again than you SO MUCH!

Tiras profile image
Tiras in reply to milkwoman

Yes, I found it on amazon!

milkwoman profile image
milkwoman in reply to Tiras

Ordering directly from Amy Myers is sometimes less expensive so do compare pricing. She’s the only supplier so even when you order from amazon it untimely comes from her. Good luck! ❤️

Tiras profile image
Tiras in reply to milkwoman

Thanks!

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