I'm having a party n you're all invited!!

[Krazykat26]

Hi everyone

I had dermy appt today n there's no change in my meds..keep going as I am..whoopeee!! At last they seem to be helping. I've had a busy year trying to get the wolf under some kind of control..constant hydroxy n steroids n then immunosuppressants which I couldn't swallow..constant dressings on weeping bits..etc etc. I was a bit worried that my dermy might try n reduce the meds but he said carry on as I am because I'm making good progress. I have rash on my back which I thought might have been Psoriasis but he said all my skin probs r ' lupus activity'.

So I'm having a little celebration in a cyber sense n you're all welcome.. obviously I realise that we all have our own requirements so feel free to bring whatever makes u comfy..n the DJ is taking requests so if u would like a special track just ask. I've got nibbles!! But I will have to turn in about 8pm..so u will all have to go home!! 🐱🤠🛌

[EOLHPC]

😻👏👏👏👏👏 YAAAAAY Krazykat 😆🥳💃🍀💐

XOXO Coco

[Krazykat26 in reply to EOLHPC]

Hey Coco I'm so glad u can make it!! I'd like to say that u are a real inspiration to me..I read your posts n u have so much going on n yet u are always positive..grab a nice comfy seat!! 🛋️Oh my thats a tiny couch emoji..bit low n it looks really uncomfy!! Just as well it's a cyber party eh?🐱🤗xx

[EOLHPC in reply to Krazykat26]

🤗 LOVE IT ‼️👍👍👍👍👍

[Horsewhisper]

Great news Krazykat! Definitely worth partying about! Shall we kick of with Miley Cyrus & Mark Ronson’s collab? That’ll get me up and dancing in my Sketchers! Whoop Whoop! 💃🏼

[Krazykat26 in reply to Horsewhisper]

Welcome Horse whisperer

Grab yourself a seat..barnclowns on the tiny couch..so I'll get u a slip n u can fill in your request for Miley n I'll pass to DJ Massive!! What's your tipple? X

[Horsewhisper in reply to Krazykat26]

A glass of bubbly will get me off the sofa to throw some shapes! 😜

[Krazykat26 in reply to Horsewhisper]

😂😂 we've got prosecco in the attic..'hubby get the prosecco we were given last year'..he's just gone to get it out the loft 🍾..he might be a while so have a mingle..I'm looking forward to seeing your shapes..watch out for suzannah16 tho..she's having a dance on the ceiling!! X

[Horsewhisper in reply to Krazykat26]

🤣 ooh yeah! He’d better be quick as I’ll need to go soon for a much needed lie down! Suzanna’s still strutting her stuff up there!

[Krazykat26 in reply to Horsewhisper]

I'm with u there..I'm bushed!! Ok everyone..thanx for coming..I've had a fab time n now I've gotta crash!! Peaceful sleep beckons..goodnight n sweet dreams xx🛌😽😴

[pmrkitty in reply to Krazykat26]

I missed it! Damn California timing, I was all ready too. Next time could you give me a days notice? It's not fun to dance alone.

[Krazykat26 in reply to pmrkitty]

Oh klaroche I'm so sorry!! Of course I didn't think that I was inviting the whole world!! How remiss of me!! Next time u will get plenty of notice..I promise!! Xx

[pmrkitty in reply to Krazykat26]

Thank you! I'm so excited. Maybe next time you could do a costume party!!! We could all take selfies and put them on our page!

[suzannah16]

can I come too? dancing on the ceiling sounds appropriate.

[Krazykat26 in reply to suzannah16]

Suzzanah..welcome!! You've come a long way!! I'm deffo gonna pass your request to DJ Massive..I love a bit of Lionel..not that 'hello' one tho..big mistake!! But the Commodores were fab!! I'm looking forward to that dance up the walls n across the ceiling XX💃

[Shorthouse]

Nice to pop on and hear some better news .lets hope you keep feeling better .spring is round the corner and no signs of flu to get us yet .!!!x love shack for me from your d j thanksx

[Krazykat26 in reply to Shorthouse]

Hi shorthouse n welcome!! B52's r definitely gonna get played..over n over if I have my way!! Xx

[Lisalou19]

Love it, what an upbeat inspiring post. X

[Krazykat26 in reply to Lisalou19]

Lisalou welcome!! N thank u XX I wanted to share the news with everyone..accentuate the positive so to speak!! Xx

[KatyM23]

Absolutely fantastic to hear that your medicines are helping you. I was grateful for your help and support when my weepy bits were at their worst. I too am finding that my own cocktail of lupy meds seem to be helping me a bit so yey let's party and thanks for your fantastic positivity. 😃🎉

[Krazykat26 in reply to KatyM23]

Hi Katy n welcome!! Your looking good gal..page three..here u come!! I'm glad that things rgoing well for u too..we gotta make hay while the sun shines eh..although me n the sun have a tricky relationship!! 🤠xx

[Kevin53]

Excellent Guinness. Best wishes Kevin

[pmrkitty]

Thanks for the invite! I'm there. I might have to retire a little earlier than you, it's been a hellofaday. 😊😊😊

[nanleighh]

Sorry I slept through the whole party and missed it darn. 🤨

[Krazykat26 in reply to nanleighh]

It was fun nanleighh n u were missed!! I'm glad u had some good sleep tho..that's a precious thing xx

[eekt]

Ready to start partying all over today? Mogwai's Party in the Dark's on loud! 🤗 💃

So happy to hear your news Krazykat! xxx

[Horsewhisper in reply to eekt]

Ooh eekt! Well I suppose it’s nearly the weekend! I’ve lost many a weekend to parties when a youngster, now I lose the weeks - just because I can’t remember what I have done from one day to the next! Turn it and play it loud and proud sister! 🤪🤣

[eekt in reply to Horsewhisper]

Oooooh thanks, yes, Arab Strap's Lost Weekend too! On a loop, because I won't remember I've just listened to it ! 🤗 xxx

[Krazykat26 in reply to eekt]

Oh yeah eekt!! Party on!! Your place or mine? 😁💃Xx

[eekt in reply to Krazykat26]

Aidan Moffat's Party On is playing right now! One for old-timers like me! 🤣 🤩 xxx

[Melba1]

Great news and love the party idea - although I seem to have slept through it as I do most parties these days 🙄😂

I think we should play the chumbarawanba song (think that’s spelt wrong!) ‘we get knocked down but we get up again’ Always thought that should be the song for those of us with lupus and related diseases.

Thanks for the post - so important to share the positives too and remind us all that we almost always do get back up again - however badly we get knocked down at times!

X

[Krazykat26 in reply to Melba1]

Good choice Melba1

That's definitely an anthem for us!! Would u have a 'whiskey drink' or a 'cider' drink? Xx

[Melba1 in reply to Krazykat26]

Hmm well it should be a soft drink really with the drugs but I’ll go for cider I think 🙂 Whiskey 🤮 X

[Lupiknits]

A day late and a ticket short, but I’m sure there’ll be another one soon. x

[Krazykat26 in reply to Lupiknits]

U were missed lupiknits..I'd even got u some celery juice just in case u rocked up!! Next time hopefully u can make it xx

[Lupiknits in reply to Krazykat26]

x

[Melba1 in reply to Lupiknits]

The ticket short made me laugh! 😂 x