Am I just lazy? : Hi again I’ve felt so crappy and... - LUPUS UK

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Am I just lazy?

Jammyonion13 profile image
10 Replies

Hi again I’ve felt so crappy and exhausted physically and mentally drained my whole body is aching I’m not sleeping (nothing new there) I’ve had to cancel a drs appointment and a hospital appointment because I just feel to rubbish to go my head is all fuzzy I can’t think straight I’m in my bed crying feeling sorry for myself I’ve just got over a sickness bug I want to do something but my body won’t let me I think it’s my body anyway I have pbc fibromyalgia stc lupus osteo bipolar and various other things I try to get up and do stuff but it hurts so much I used to be able to laugh at the pain and fight through it have I just given up or is it really this bad right now sorry to be so down I’ve just had enough and wish they would just take me now

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Jammyonion13 profile image
Jammyonion13
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10 Replies
Mandypandy1969 profile image
Mandypandy1969

I know how you feel. I try to enjoy my sport but can't at county level anymore. too noisy, too stressful. really thinking about calling it a day after the last county game. sick of selfish people. xx

Jammyonion13 profile image
Jammyonion13 in reply toMandypandy1969

I’m so sorry you are feeling this way thank you for replying big hug xx

jane1964 profile image
jane1964

Hello I am so sorry you are having a bad time.I also have PBC as well as other autoimmune diseases, vasculitis and CTD.Its a lot your not just lazy your body is fighting you and fatigue which can be extreme is part of this.I found this article helpful

bmj.com/content/345/bmj.e7004

Hopefully once you recover from the bug you might feel better.I just do what I want now and if I don't want I don't and I keep my energy for things I enjoy.I think that's the only way to be.Hope you have better days soon.Jane.

Lili18 profile image
Lili18

Hi jammyonion,

In no way are you lazy. Don’t be so hard on yourself. It is normal to have bad days considering what we are dealing with. I can totally relate to how you feel. But hang in there, it will get better and you will laugh again. Be good to yourself.

Hugs

Lupiknits profile image
Lupiknits

Well, jammyonion, if you are lazy, so am I. I refuse to call anyone who has a physical or mental illness lazy. Naysayers may disagree with me but they are ill educated to put it politely. I’m sorry you feel so unwell. Here’s a hug x

Jammyonion13 profile image
Jammyonion13

Thank you all so much for your kind words it really means a lot the article was brilliant it set me off again but was good to read big hugs back to you all x😊x💞x

Please don’t think your lazy because your not. Your trapped in a body that is unwell and can’t function properly it’s not your fault. Anyone with all your conditions need rest help and understanding. Try drinking 2 litres of mineral water get some Manuka honey with fresh ginger and fresh lemons you drink this on a empty stomach. Try vit d3 spray and try and get some fresh air and a little bit of sunshine to lift you. Get all your family and friends to help you get chores done so you can rest and get well. If you can get to a steam or sauna room and try sitting in there for they seem to help me. they usually have them at some leisure centres hope your feeling much better soon and when your feeling ok try and keep a food and symptoms diary as it may help you. I too have been very ill like you and still am but only by reading up on what helps and trying it have I seen some improvements.

Jammyonion13 profile image
Jammyonion13

Thank you 😊 my family are great my hubby keeps the house lovely my consultants have all told me only to do things I enjoy so I save energy for that but I haven’t got any energy or strength at the moment to save it up I’ve just seen my rhuemy consultant today he said he’s worried about my mental state and is going to ring my gp and see if there’s any more that can be done to help me get some sleep it’s really hard to feel better when you can’t sleep so we’ll see how it goes thank you again I will try some of your suggestions 😊 take care Jane

Lisalou19 profile image
Lisalou19

😢 sorry for feel so bad. In a way it’s good you post things like this here, for one it reminds me that it’s normal to feel so low and for 2, it’s good that you can be honest.

I’m actually crying responding to this because some days you just don’t want to wake up, it’s too exhausting and painful to live this life. Some might say your over exaggerating, but I know you are not. It’s such a cruel and lonely place. Family don’t get it, friends don’t get it the only ones who do are those you can reach out to on here.

I’ve noticed a decline in how I feel since the weather got dark and cold, I wonder if this is something to do with vitamin D. Saying that the hot weather knocked me for 6 too but I had more get up and go.

I don’t think your being lazy I think your having a tough time, but the more you just lay about the more time you are giving your brain to just keep ticking over those negative thoughts . I generally will sleep when I’m that bad and if I can’t sleep I use all that I have to do something, read a book put a film on anything to stop the negatives drowning me.

I can say it will get better, but I hate it when people say that because In the moment you forget the real you even exists.

You are not alone. Thinking of you and praying that you come out of this real soon. Embrace the good days when they come but for now allow your self to rest but occupy the brain xxx

Jammyonion13 profile image
Jammyonion13 in reply toLisalou19

Hi I’m sorry I’ve just seen this reply thank you for your really kind words I am actually starting to feel better in myself still hurt a lot but my mood is lifting 😊 I always watch things that cheer me up when I can’t sleep I used to love reading but I get to the bottom of the first page and completely forget what I’ve read lol thank you again big hugs and have a great Christmas and new year 😊😊

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