Hi, I’m a 23 year old recently diagnosed with SLE (lupus cerebritis + HLH on my first flare 1 yr ago). I’m hoping to ask for advice from or to connect with professionals who also have lupus. I recently graduated from medical school despite my lupus episode last year, and I’m at lost as to how to balance a medical career (which isn’t the easiest even for healthy folk) and a life with lupus. I’ll be taking on 36 hour shifts next year with irregular sleeping and eating schedules and in a very high stress environment.
My lupus has now been controlled with cyclophosphamide, steroids, and other medications, but I’m always very scared that I’ll do something and cause a flare up. It’s a very big mental burden to me, and I can’t avoid internship (with its aforementioned stresses) next year. I would ask my doctor, but I don’t feel like my doctor understands my concerns (ironically). I know that diseases like lupus do happen in healthcare workers, there’s no way I can connect with them locally since it’s a silent illness (in more than one sense).
If possible, I’d like to seek advice on how to balance a professional life with having lupus. Thank you very much for your time.