Lupus rash advice please: Hi everyone! Sorry it’s... - LUPUS UK

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Lupus rash advice please

kaw86 profile image
5 Replies

Hi everyone!

Sorry it’s been a awhile but I have a question about a rash that’s developed on my body. I have SLE and suspected aps disease. I’m on hydroxychoriquin and Rivaroxaban and the mini pill. I take a hay fever tablet every day because of the sun allergy and itching. I also put spf 50 with uv /uva protection and use a ☂️ parasol.

The sun rash or something else has spread up and around my arms and is on my torso and back. It’s not bites as a gp confirmed it with a magnifying glass.

I have a phone appointment with a lupus nurse from guys hospital next week but I’m worried as it’s spreading and I feel fatigued. The gp can’t do anything.

The picture just a section but it’s on my belly and hips and firearms and back etc. Never had it like this. Any advice?

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kaw86
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5 Replies
Genealogy66 profile image
Genealogy66

I had a very similar rash develop last September. In fact it was the rash that prompted me to seek further investigations which led me to my UCTD diagnosis. On biopsy the rash was identified as lymphocytic vasculitis. I was just advised to keep the skin moisturised. The rash stopped spreading and eventually resolved March this year. Like Alexa says it could be caused by an adverse drug reaction but also connective tissue diseases. Wishing you all the best for a speedy resolution.

Krazykat26 profile image
Krazykat26

Hi kaw86

I have SCLE n I constantly have rashes all over my body..sometimes manageable n at other times it's more tricky..usually when I'm flaring..u mention feeling fatigued..do u think u may be having a flare? When my rash gets unmanageable I'm usually prescribed oral steroids for a couple of months as well as topical steroid creams that I use as needed.

Dermol 500 lotion is very soothing..it's prescribed as a soap substitute n moisturiser..it helps with dermatitis n excema.its light n soaks in quickly..helps to relieve the itch!! I get mine prescribed by dermatology but I think it would be possible for GP to prescribe it.

Hope u get some relief soon xx

kaw86 profile image
kaw86

It’s spreading on to my legs. The lupus nurse said to go to a&e if it gets any worse. But I’m not sure I should go ? The lupus nurse said to send pictures and he will get a lupus dr look at it as Dr Sanna is holiday. So I sent the pictures. Maybe I will stop the hay fever tablets as it came up a week after taking it. If I’m covered head to foot I will go to a&e.

Just my local hospital is rubbish when it comes to lupus.

Thanks for all the advice! Xxx

Krazykat26 profile image
Krazykat26 in reply to kaw86

That's exactly what happened to me..rash got so bad all over my body that I went to a&e..ended up being admitted for four days but it did get me seen by dermatologist..I had an outpatient appt with dermatology which was a few months away so it did speed the process up!! That's when I was first prescribed prednisolone n topical steroids ointments.xx

kaw86 profile image
kaw86

Turns out after my biopsies that I have Pityriasis Rosea (Christmas Tree Rash). It’s relief it’s not lupus related yay!

healthline.com/health/skin-...

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