Surgery and Recovery/any advice?

[MrsMarigold]

Hello Everyone. I became dizzy last week and slam dunked on the kitchen floor. My shoulder took the hit. I tore my rotator cuff very badly and so after X-rays, MRI I’m scheduled for surgery next week. One minute literally laughing and the next on the floor. GP says dizziness was sudden movement from sitting to standing. It has a name but I’m exhausted with medical words so I’ll just say low blood pressure.

The pain is intense and if there were any other way to solve this mess, I would. But the injury is truly acute. Does anyone have tips or advice to recover well with lupus? For the first time I’m very nervous about a major flare afterwards and the nagging oral thrush I have under control finally but will surely be tested with the antibiotics that I will be given. Thx MrsMarigold

[Hoofprints]

I'm so sorry you are in this predicament and in such pain. I don't have any specific tips unfortunately, other than to eat well and stay hydrated - all the usual stuff.Hopefully someone more knowledgeable will be along shortly to help, especially where factoring in the drugs you are on is concerned . Stay strong and try not to worry too much (easier said than done!).

And maybe explain to those helping you with physio and rehab post-surgery what your condition does to limit the extent to which you can ordinarily exercise without triggering flares. That way they can tailor your physiotherapy programme appropriately to get that shoulder strong again but without stressing you too much in terms of the underlying condition.

Good luck and keep us all updated 🤗🍀

[MrsMarigold in reply to Hoofprints]

Thx. Very good advice about post surgery routine. Need to take it slow and steady.

[Hoofprints in reply to MrsMarigold]

healthunlocked.com/lupusuk/....

Not very savvy at posting links, but I just saw this person on the lupus site updating about recent knee surgery. They have lupus and sjorgrens and are on steroids.

They say they were given extra steroids and transferred to HDU rather than an ordinary ward post op. All went well.

Maybe you could contact them for advice? Just a thought.

[MrsMarigold in reply to Hoofprints]

Thank you for this. Any bit helps. I will look it up

[Spanielmadlady]

Postural hypotension Mrs M ? Happened to mum my in Feb when she went out for her lunch.No advice I'm afraid but just want to wish you well and a speedy recovery. I'm possibly facing reconstruction surgery on my ankle so will be interested in any tips just in case .

Good luck xxx

[MrsMarigold in reply to Spanielmadlady]

ThxSML. Yes. I’ve had low blood pressure all my life. I’m definitely vigilant now. Rats what a change of summer plans😬 Thanks for well wishes.

[MrsMarigold in reply to Spanielmadlady]

Also sorry to hear of your ankle. They are tricky and usually require a lot of TLC. Hope you find the right doctor for you.

[Spanielmadlady in reply to MrsMarigold]

Thanks I completely tore my ATFL in a fall in Dec. Orthopaedic consultant reluctant to operate due to immunosuppressants and want advice from the lupus centre at Manchester who would like a decision 🤷‍♀️ xx

[Looplylady]

Just to confirm when I had a new hip they forgot my steroids & I had all over bodyshakes & went into HDU.But I am here to tell the tale.

Stay safe & rest as much as you can.

[MrsMarigold]

Thank you for the advise LL. I’m sorry that happened to you. I will try and rest as much as possible!

[Hidden]

Hi Mrs M

Oh my goodness, ouch - that’s some injury. I hope they’ve your BP under control a bit more now. I’ve nothing of any note to add, as others have said - as long as everyone who is treating you knows everything they need to know, they’ll have a plan of action if needed. Plus, the power of good rest, fluids, doing the physio. All of which I’m sure you’ll do anyway as I recall you take v good care of yourself ordinarily.

I was sorry to read this has happened, so I just wanted to send you a message wishing you a good, uneventful (and flare free) recovery. Please keep us posted with how you are doing too. ✨

[MrsMarigold]

Thx for lovely words❤️