Hello again everyone, I hope you all had a good Christmas and New Year?
As it's been a while since I posted I'll quickly re-cap - I have multiple auto immune diseases, MS, APS Pernicious Anaemia and a few other things.
I have been diagnosed with Lupus 'Like' syndrome. I feel it's either progressing, or I am in a flare. Yesterday I could barely move, today I feel completely done in - typing this is agony!
Can anybody tell me if Lupus Like Syndrome is sometimes a diagnosis given until more is known about the progression of the disease? Does Lupus 'like' have flare ups?
For this I take 400mg hydroxychloroquine daily - have been told I may need to increase it but for now I'm taking calcium and Vit D. for bone pain before we up the hydroxy. (my vit D. levels are very low)
I'm hoping things will ease up - I use a manual wheelchair but my wrists aren't liking it much anymore…
Oh! I forgot to add - I'm 38 and my Gp wants to test me for early menopause. I have heard Lupus can cause this… in which case, at what point does lupus 'like' potentially become Lupus? I have also been hospitalised recently for severe breathing difficulties and the MRI showed 'glassy ground glass patches' throughout my lungs. They seem to be going now. What causes them?
Sorry if I sound like I am moaning, it's hard to get answers from doctors sometimes, it's hard to remember all the questions too!