Mouth ulcers: Well thanks to every that responded... - LUPUS UK

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Mouth ulcers

Leighlup profile image
11 Replies

Well thanks to every that responded to my last pst ....

what do people find works with mouth ulcers ?

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Leighlup profile image
Leighlup
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11 Replies
MEW53 profile image
MEW53

Leighlup,

I get mouth ulcers now and again, I try and gargle with cool boiled salted water, it really helps. I also found it very helpful, when I had a tooth extracted in hospital when I came home.

Bonjela gel helps too providing you can use it.

HazelW profile image
HazelW in reply toMEW53

I used to get lots of mouth ulcers but now I use Aloe Dent Triple Action Aloe Vera Toothpaste & I haven't had any for ages . I used to buy it from local pharmacy but now I buy it online.

Lg1968 profile image
Lg1968

Difflam spray when they’re really bad. It numbs the area as it’s got anti inflammatory properties. I bought it over the counter

cpidoc profile image
cpidoc

Make sure you are not iron deficient?

Mifford profile image
Mifford

Corsodyl mouthspray helps - my doctor does it for me on prescription. Bonjela gives a little bit of temporary relief. I was advised to try a paste that was similar to iglu but I’ve never got on with it. The pharmacy gave me some little steroid tablets to use where you place it on the ulcer and that helps them heal quicker. And corsodyl mouthwash helps keep them at bay a little bit - again the gp prescribes this for me as I get so many of them.

foxglove profile image
foxglove

Sounds odd - salt and vinegar crisps!

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi Leighlup ,

You may be interested in taking a look at our blog article on this topic. It compiled information with lots of tips and advice submitted by people with experience - lupusuk.org.uk/coping-with-...

Lupiknits profile image
Lupiknits

Bonjela and salt and water mouthwashes. My dentist and dental hygienist said never use Corsodyl because it stains the teeth. I have no idea if this is true, but if it is, it may well be the lesser of two evils x

Bmagrl profile image
Bmagrl

Hi,

I recently ended up with two really painful ulcers. Called my Rheumy and he prescribed Folic Acid. The rx is for 2 mg daily. After looking it up I'm guessing my ulcers were caused either by the meds I was on (Plaquenil and Imuran) lowered my blood cell count or the count was lowered just by the Lupus. Don't know which caused the problem but the Folic Acid worked wonderfully! Within a week of starting the meds the ulcers were clearing up and they haven't come back. Ive stayed on the Folic Acid and don't plan on stopping it.

While waiting for the meds to kick in I asked my pharmacist and she recommended an oral anesthetic that has 20% Benzocaine. It came in liquid form with a little dropper. I would simple put the liquid directly on the ulcer and it would numb the pain. This allowed me to be able to eat which was impossible before.

Hope this helps!

Joy_1 profile image
Joy_1

MTX gave me mouth ulcers. They were horrendous! I could not eat, speak and they even woke me in the night. Worse than having RA!

I made a list of some 20 solutions folks recommended and took the list to my local pharmacy. The Pharmacist said don't waste your money just use saline 4 to 5 times a day.

Holding warm saline in my mouth for 1 min 5 times a day worked. I could not gargle it was too painful.

Once I got rid of them which took about 2 weeks. I found that to keep them at bay I would take my MTX then 48hrs later I would feel the first signs the ulcers were returning then I would bathe my mouth 5 times a day for 48hrs. After 4 months the ulcers gave up their attack. They v occasionally reappear usually when I am v tired, and then it's back to the saline.

chrisj profile image
chrisj

Difflam mouthwash works for me, I'd recommend it

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