I’ve had an usually bad relationship with both my rheumatologist and GP, both performing regular checks and hiding my results from me and refusing to send me to specialists.
Both ignoring my chronic chest problems, (pleurisy, serious chest infections and pneumonia more than once each year) and kidney infections (hospital admittance and 3-4 serious infections per year).
Now I have kidney cancer, stage 3 and lost my left kidney.
I would like to see a specialist at St. Thomas as I am still having kidney infections and the Rhumatologist has finally admitted its Lupus related.
I have a new GP, he says he can’t refer me, but has written to mr new Rhumatologist, is this how it happens?